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Facing and dealing ...
Facing and dealing with emotional turbulence : Living with newly diagnosed Parkinson's disease
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- Hammarlund, Catharina Sjödahl (författare)
- Kristianstad University,Lund University,Lunds universitet,Rehabilitering och hållbar hälsa,Forskargrupper vid Lunds universitet,Rehabilitation and Sustainable Health,Lund University Research Groups
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- Khalaf, Atika (författare)
- Kristianstad University
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- Westergren, Albert (författare)
- Kristianstad University
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- Hagell, Petra Lilja (författare)
- Kristianstad University
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- Hagell, Peter (författare)
- Faculty of Health Science,Patient Reported Outcomes - Clinical Assessment Research and Education (PROCARE),Department of Nursing and Integrated Health Sciences,Fakulteten för hälsovetenskap,Avdelningen för sjuksköterskeutbildningarna och integrerad hälsovetenskap
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- Wiley-Blackwell Publishing Ltd, 2024
- 2024
- Engelska 10
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Ingår i: Scandinavian Journal of Caring Sciences. - : Wiley-Blackwell Publishing Ltd. - 0283-9318 .- 1471-6712. ; 38:3, s. 701-710
- Relaterad länk:
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https://doi.org/10.1... (free)
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http://dx.doi.org/10... (free)
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https://doi.org/10.1...
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Abstract
Ämnesord
Stäng
- INTRODUCTION : The experiences of living with Parkinson's disease (PD) from the perspective of newly diagnosed persons with PD (PwPD) have not been previously described. AIM : This study aimed to gain a better understanding of the impact of living with the early stages of PD. METHODS : A qualitative interview study was conducted among nine persons, seven men and two women, from southern Sweden. Participants had a median age of 71 (min-max, 64-77) years and had been diagnosed with PD for a median of 5 (min-max, 2-12) months. Interviews were recorded and analysed using systematic text condensation. RESULTS : The analysis resulted in one core category, Facing and dealing with emotional turbulence, and four categories with 2-3 subcategories each: Something is wrong (Vague signs of change; Losing control); The going gets tough (Recalling; Lack of motivation); Losing direction (Uncertainties; Frightened of disease progression) and Dealing with life (Avoiding social situations; Hope and despair; Ease worries).CONCLUSION : Newly diagnosed PwPD face emotional turbulence with increasing challenges in managing everyday basic needs. Impaired functioning affects self-esteem and identity, which calls for strategies to overcome emotional reactions of embarrassment, frustration and worry. A sense of lost control and direction increased as the future became more uncertain. The participants' emotional burden and struggle to find a reason to go on or some solution to their new situation left them with both hope and despair. Our results suggest that a person-centred needs-based approach may help newly diagnosed PwPD deal with their new life situation.
Ämnesord
- MEDICIN OCH HÄLSOVETENSKAP -- Hälsovetenskap -- Omvårdnad (hsv//swe)
- MEDICAL AND HEALTH SCIENCES -- Health Sciences -- Nursing (hsv//eng)
Nyckelord
- de novo
- impact
- newly diagnosed
- Parkinson's disease
- qualitative research
Publikations- och innehållstyp
- ref (ämneskategori)
- art (ämneskategori)
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