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- Nordin, Åsa, 1975, et al.
(författare)
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Patients' expectations of coming home with Very Early Supported Discharge and home rehabilitation after stroke - an interview study.
- 2015
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Ingår i: BMC neurology. - : Springer Science and Business Media LLC. - 1471-2377. ; 15:1
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Tidskriftsartikel (refereegranskat)abstract
- An Early Supported Discharge (ESD) and rehabilitation from a coordinated team in the home environment is recommended in several high-income countries for patients with mild to moderate symptoms after stroke. Returning home from the hospital takes place very early in Sweden today (12days post stroke), thus the term Very Early Supported Discharge (VESD) is used in the current study. The aim of this study was to describe patients' expectations of coming home very early after stroke with support and rehabilitations at home.
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| 2. |
- Axelsson, Åsa B., 1955, et al.
(författare)
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Representativity and co-morbidity : Two factors of importance when reporting health status among survivors of cardiac arrest.
- 2016
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Ingår i: Resuscitation. - : Elsevier BV. - 0300-9572 .- 1873-1570. ; 101
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Tidskriftsartikel (refereegranskat)abstract
- AIM: Reports on differences between respondents and non-respondents of out-of-hospital cardiac arrest (OHCA) survivors are sparse. This study compares respondents with non-respondents in a follow-up study of a consecutive sample of OHCA survivors and describes the relation between respondents' self-reported morbidity and health.METHODS/DESIGN: Questionnaires were administered within 12 months after the OHCA. The study population was adult patients who had survived an OHCA during 2008 to 2011, with a cerebral performance score of ≤2 at discharge. The patients were identified through the Swedish registry of OHCA. The Self-administered comorbidity questionnaire and EQ VAS (Euroqol questionnaire visual analogue scale) was used to measure morbidity and health status.RESULTS: Of 298 survivors, 224 were eligible for the study and 127 responded. Mean time from cardiac arrest (CA) to follow up was 178 days. Comparing the 127 respondents with the 97 lost to follow-up and non-respondents, no significant differences were found in terms of age, sex, factors at resuscitation and in-hospital interventions. The EQ VAS median was 75 (25th,75th percentile 60,80)). Self-rated health differed between respondents reporting 0-2 conditions (n=68) and respondents reporting more than two (n=43), median EQ VAS 78 (68,90) and 65 (50,80)), respectively; p-value 0.0001.CONCLUSIONS: Despite a limited response rate, representativeness in terms of patient characteristics among survivors of OHCA with an acceptable cerebral function is achievable. A considerable proportion of the survivors lived with the burden of multi-morbidity which worsened health.
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| 5. |
- Elissa, Kawther, et al.
(författare)
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Societal Norms and Conditions and Their Influence on Daily Life in Children With Type 1 Diabetes in the West Bank in Palestine
- 2017
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Ingår i: Journal of Pediatric Nursing. - : Elsevier BV. - 0882-5963 .- 1532-8449. ; 33, s. 16-22
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Tidskriftsartikel (refereegranskat)abstract
- Purpose To explore the experiences of daily life in children with type 1 diabetes (T1D) and their parents living in the West Bank in Palestine. Design and Methods A qualitative study using thematic interviews was performed with 10 children with T1D and their parents (n = 10). Content analysis was performed with the assistance of NVIVO 10. Results The overall theme was facing the social reality of diabetes. This was underpinned by two themes: stigmatization and social constraints. Facing the social reality of diabetes described children and their parents' everyday life attempts to place themselves within the context of the disease and social context. Children and their parents described how stigmatization and social constraints impacted their daily life as a result of fear of disclosing the disease, which could affect their social status. Conclusion These findings highlighted how daily life in children with T1D and their parents was highly affected by cultural impacts, especially as stigma related to the illness affected social interactions of female and male children/adolescents. Lack of knowledge and misunderstandings about T1D in society lead to negative consequences like poorer management of diabetes, and this becomes mediated by gender. Practical Implications The findings suggest health care providers need to be aware of the cultural and social impact of T1D on children's and parents' daily life in order to meet their needs and challenges by providing appropriate interventions, strategies and support.
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| 6. |
- Elissa, Kawther, et al.
(författare)
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Sociocultural Beliefs And Social Pressure In Everyday Life Of Children Living With Congenital Heart Disease In The Palestinian West Bank.
- 2017
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Ingår i: 7th World Congress of Pediatric Cardiology and Cardiac Surgery (WCPCCS), July 16 - 21, 2017, Barcelona, Spain.
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Konferensbidrag (övrigt vetenskapligt/konstnärligt)abstract
- Background: In Palestinian territories, approximately 700 newborns are diagnosed with congenital heart disease (CHD) every year. The advances in early diagnosis, treatment and postoperative care increased the survival rates. Focus has shifted from survival to long-term follow up, wellbeing, daily life experiences and psychosocial consequences. Much remain to be learned about everyday experience in children with CHD in occupied territories as it is assumed that challenging social conditions can have impact on management and support in daily life. It is important to highlight the experiences of everyday life in children with CHD and their parents living under specific social and cultural conditions. The aim of this study was to explore the experience of daily life in children with CHD and their parents in the Palestinian West Bank. Material and method: A qualitative descriptive design based on content analysis was conducted. A purposeful sample of children aged 8-18 years with CHD (n=9) and their parents (n=9) was selected and interviewed individually. Results: Facing barriers and managing challenges was the overall theme that emerged and constituted four themes; socio cultural burden and fatality, challenging physical/structural limitations, self-perceptions and concerns about not standing out and restraints in health care due to the political situation. Facing barriers represented the struggle children and their parents experienced which affected their daily life. Daily life was influenced negatively by socio-economic restraints due to political struggle, societal stereotyping and children’s perceptions of their illness. Some considered the illness as a fate and therefore found comfort in their religious beliefs. Conclusion: The negative impact of sociocultural beliefs and social pressure in everyday life of children with CHD and their parents is related to insufficient knowledge and misunderstanding about CHD in the Palestinian society. In addition, the political situation also contributes to a challenging daily life for children with CHD.
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| 7. |
- Elissa, Kawther, et al.
(författare)
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Struggling and Overcoming Daily Life Barriers Among Children With Congenital Heart Disease and Their Parents in the West Bank, Palestine
- 2018
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Ingår i: Journal of Family Nursing. - : SAGE Publications. - 1074-8407 .- 1552-549X. ; 24:4, s. 585-611
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Tidskriftsartikel (refereegranskat)abstract
- Advances in early diagnosis, treatment, and postoperative care have resulted in increased survival rates among children with congenital heart disease (CHD). Research focus has shifted from survival to long-term follow-up, well-being, daily life experiences, and psychosocial consequences. This study explored the everyday experiences of children with CHD and of their parents living in the Palestinian West Bank. Interviews with nine children aged 8 to 18 years with CHD and nine parents were analyzed using content analysis. The overall theme that emerged was facing and managing challenges, consisting of four themes: sociocultural burden and finding comfort, physical and external limitations, self-perception and concerns about not standing out, and limitations in access to health care due to the political situation. To provide optimum care for children with CHD and their parents, health care providers and policy makers must understand the negative consequences associated with sociocultural conditions and beliefs about chronic illness.
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| 8. |
- Israelsson, Johan, et al.
(författare)
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Health status and psychological distress among in-hospital cardiac arrest survivors in relation to gender
- 2017
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Ingår i: Resuscitation. - : Elsevier. - 0300-9572 .- 1873-1570. ; 114, s. 27-33
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Tidskriftsartikel (refereegranskat)abstract
- AIM: To describe health status and psychological distress among in-hospital cardiac arrest (IHCA) survivors in relation to gender.METHODS: This national register study consists of data from follow-up registration of IHCA survivors 3-6 months post cardiac arrest (CA) in Sweden. A questionnaire was sent to the survivors, including measurements of health status (EQ-5D-5L) and psychological distress (HADS).RESULTS: Between 2013 and 2015, 594 IHCA survivors were included in the study. The median values for EQ-5D-5L index and EQ VAS among survivors were 0.78 (q1-q3=0.67-0.86) and 70 (q1-q3=50-80) respectively. The values were significantly lower (p<0.001) in women compared to men. In addition, women reported more problems than men in all dimensions of EQ-5D-5L, except self-care. A majority of the respondents reported no problems with anxiety (85.4%) and/or symptoms of depression (87.0%). Women reported significantly more problems with anxiety (p<0.001) and symptoms of depression (p<0.001) compared to men. Gender was significantly associated with poorer health status and more psychological distress. No interaction effects for gender and age were found.CONCLUSIONS: Although the majority of survivors reported acceptable health status and no psychological distress, a substantial proportion reported severe problems. Women reported worse health status and more psychological distress compared to men. Therefore, a higher proportion of women may be in need of support. Health care professionals should make efforts to identify health problems among survivors and offer individualised support when needed.
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| 10. |
- Lachonius, Maria, 1962, et al.
(författare)
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Young adult patients' experience of living with mechanical circulatory support: A phenomenological hermeneutical study.
- 2019
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Ingår i: Nursing open. - : Wiley. - 2054-1058. ; 6:2, s. 651-658
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Tidskriftsartikel (refereegranskat)abstract
- To describe young adult patients' experiences of living with a mechanical circulatory support (MSC) as a bridge to heart transplantation and impact of self-efficacy.A qualitative and explorative interview study.Eight interviews with adult participants were conducted and analysed using the phenomenological hermeneutical method.An overall theme, "Navigating from helplessness to feeling strong in the new reality," and three themes were identified: "Feeling homeless in a changed reality" describes the experience of suddenly falling ill and the loneliness caused by the disease; "Finding my own inner resources" shows that the interviewees found the strength to fight for their lives and began to regain control of their situation; and "Adapting to my new reality" describes the importance of finding strength from others and being able to see MCS as a friend providing respite from the disease. Self-efficacy beliefs play a significant role in the process that the participants went through.
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