| 1. |
- Brodin, Göran, 1945-
(författare)
-
Egenvårdens ansikten : Om egenvård från kvacksalveri till patientdemokrati och e-health
- 2006
-
Doktorsavhandling (övrigt vetenskapligt/konstnärligt)abstract
- The aim of this dissertation is to analyze the relations between self-care and the Swedish state, certain authorities and professional health care organisations Self-care is defined as “the speech of the knowledge and activity of layman related to medicine”. The traditional narrow medical perspectives on self-care are broaden to political conditions, patient democracy and other aspects of social science. In the thesis the analysis focuses on the major actors in the health care field as well as the discursive changes of self-care during the period of 1930 – 2000.Two different methods are combined in the analyse: 1 A historical analysis where different contextual and period related conditions in the development of self-care are considered and 2. A pragmatic discourse analysis. The first method is based on an actor related analysis by a strong focus on the contextual circumstances. In the second method the object is the various discourses concerned with self-care. Discourse is specified as the social dialogue and struggle over self-care as a phenomen of society and health politics. The analysis is based on the speech of self-care from key actors, and not on the implementation of the politic.During the total period four relatively dominant discourses of self-care appear. Together with the fifth – a dominant discourse of health care – self-care follows several historical and extraordinary phases of change. Within the fifth discourse of self-care there are during the turn of the 21th century two strong and new discourses – the Information technology and the Swedish conservative and other liberal parties critiques of the state as well as the welfare state model. The last one is encompassed by an argument for a shift of the system to a market based health care organisation. There has been a dramatic shift during the seven decades of self-care. The developmental process, concerning the changing relationship between health care, sick care, patients and the public, can be described as one from paternalism to autonomy.
|
|
| 2. |
|
|
| 3. |
|
|
| 4. |
|
|
| 5. |
- Nisell, Margret, et al.
(författare)
-
The Imperforate Anus Psychosocial Questionnaire (IAPSQ) : its construction and psychometric properties.
- 2009
-
Ingår i: Child and Adolescent Psychiatry and Mental Health. - London : Springer Science and Business Media LLC. - 1753-2000. ; 3:1, s. article number: 15-
-
Tidskriftsartikel (refereegranskat)abstract
- The origin of the present study was to develop the liaison work between the disciplines of child and adolescent psychiatry and paediatric surgery and nursing, so as to improve the quality of treatment and care of a group of children with imperforate anus (IA) and their families. Imperforate anus is a congenital disease involving a deformity of the anorectum. The early surgery and invasive follow-up treatment associated with IA may affect the child psychosocially, including the child-parent relationship. By developing and testing a questionnaire for children born with anorectal anomalies, a tool for measuring psychosocial functioning can be realized. METHODS: First, a literature review on "Imperforate Anus" was performed. Second, an exploratory interview study was conducted with patients/adolescents with IA and their parents. The findings from these interviews were the foundation for construction of the questionnaire. The Imperforate Anus Psychosocial Questionnaire (IAPSQ) was tested and revised three times before its completion. It contains 45 items on Likert scales. A total of 87 children completed the IAPSQ: 25 children with IA and two comparison groups. Face and content validity were considered. The Rasch approach, an item response theory model, was used to evaluate the psychometric properties of the IAPSQ, where item difficulty and person ability are concurrently approximated. RESULTS: The findings of the Rasch analysis revealed that the psychological dimension was reasonable, and that person reliability (0.83) was moderate and item reliability (0.95) was sufficient. The social dimension showed satisfactory item reliability (0.87). The person reliability (0.52) of the social dimension was weak. Content validity seemed to be established and construct validity was recognized on the psychological dimension. CONCLUSION: The IAPSQ provides a reasonably valid and reliable measure of psychosocial functioning for clinical use among children with IA, although some revisions are suggested for the next version of the IAPSQ. By using the Rasch model, we discovered that specific items should be discarded and other items should be reformulated to make the questionnaire more "on target". The social dimension has to be expanded with further items to reasonably capture a social dimension.
|
|
| 6. |
- Olsson, Gunilla Maria, et al.
(författare)
-
The Adolescent Adjustment Profile (AAP) in comparisons of patients with obesity, phenylketonuria or neurobehavioural disorders
- 2008
-
Ingår i: Nordic Journal of Psychiatry. - : Informa UK Limited. - 0803-9488 .- 1502-4725. ; 62:1, s. 66-76
-
Tidskriftsartikel (refereegranskat)abstract
- Psychosocial development in children with chronic disease is a key issue in paediatrics. This study investigated whether psychosocial adjustment could be reliably assessed with the 42-item Adolescent Adjustment Profile (AAP) instrument. The study mainly focused on adjustment-to-obesity measurement, although it compared three patient groups with chronic conditions. All phenylketonuria (PKU) patients in Sweden between ages 9 and 18 and their parents and teachers were invited to participate. Patients with neurobehavioural syndromes and obesity were age- and gender-matched with PKU patients. Healthy children constituted a reference group. Psychosocial adjustment was measured using the AAP, which is a multi-informant questionnaire that contains four domains. Information concerning parents' socio-economic and civil status was requested separately. Respondents to the three questionnaires judged the PKU patients to be normal in all four domains. Patients with neurobehavioural syndromes demonstrated less competence and the most problems compared with the other three groups. According to the self-rating, the parent rating and the teacher rating questionnaires, obese patients had internalizing problems. The parent rating and the teacher rating questionnaire scored obese patients as having a lower work capacity than the reference group. Compared with the reference group, not only families with obese children but also families with children with neurobehavioural syndromes had significantly higher divorce rates. Obese patients were also investigated with the Strength and Difficulties Questionnaire (SDQ), another instrument that enables comparison between two measures of adjustment. The AAP had good psychometric properties; it was judged a useful instrument in research on adolescents with chronic diseases.
|
|
| 7. |
|
|
