A review and evaluation of patient-reported outcome measures for spasticity in persons with spinal cord damage: Recommendations from the Ability Network - an international initiative

↓ Direkt till sidans innehåll
↓ Direkt till sidans sekundära innehåll (sidomenyn)

Search: onr:"swepub:oai:DiVA.org:liu-173082" > A review and evalua...

1 of 1
Previous record
Next record
To hitlist

Details
MARC

Ertzgaard, PerLinköpings universitet,Avdelningen för prevention, rehabilitering och nära vård,Medicinska fakulteten,Region Östergötland, Rehabiliteringsmedicinska kliniken (author)

A review and evaluation of patient-reported outcome measures for spasticity in persons with spinal cord damage: Recommendations from the Ability Network - an international initiative

Article/chapterEnglish2020

Publisher, publication year, extent ...

2019-02-13
TAYLOR & FRANCIS LTD,2020
printrdacarrier

Numbers

LIBRIS-ID:oai:DiVA.org:liu-173082
https://urn.kb.se/resolve?urn=urn:nbn:se:liu:diva-173082URI
https://doi.org/10.1080/10790268.2019.1575533DOI

Supplementary language notes

Language:English
Summary in:English

Part of subdatabase

SwePubSwePub

Classification

Subject category:ref swepub-contenttype
Subject category:for swepub-publicationtype

Notes

Funding Agencies|Medtronic, Inc.Medtronic
Context: Patient-reported outcome measures (PROMs) are valuable for capturing the impact of spasticity on health-related quality of life (HRQoL) in persons with spinal cord damage (SCD) and evaluating the efficacy of interventions. Objective: To provide practical guidance for measuring HRQoL in persons with spasticity following SCD. Methods: Literature reviews identified measures of HRQoL and caregiver burden, utilized in studies addressing spasticity in SCD. Identified measures were evaluated for clinical relevance and practicality for use in clinical practice and research. The PRISM, SCI-SET, EQ-5D and SF-36 instruments were mapped to the International Classification of Functioning, Disability and Health (ICF). The PRISM and SCI-SET were evaluated using the Consensus-based Standards for the Selection of Health Measurement Instruments (COSMIN) checklist. Results: Two spasticity-specific, five generic, and four preference-based measures were identified. ICF mapping and the COSMIN checklist supported the use of the PRISM and SCI-SET in SCD. The SF-36 is considered the most useful generic measure; disability-adapted versions may be more acceptable but further studies on psychometric properties are required. The SF-36 can be converted to a preference-based measure (SF-6D), or alternatively the EQ-5D can be used. While no measures specific to caregivers of people with SCD were identified, the Caregiver Burden Scale and the Zarit Burden Interview are considered suitable. Conclusion: Recommended measures include the PRISM and SCI-SET (condition-specific), SF-36 (generic), and Caregiver Burden Scale and Zarit Burden Interview (caregiver burden). Consideration should be given to using condition-specific and generic measures in combination; the PRISM or SCI-SET combined with SF-36 is recommended.

Subject headings and genre

MEDICIN OCH HÄLSOVETENSKAP Hälsovetenskap Omvårdnad hsv//swe
MEDICAL AND HEALTH SCIENCES Health Sciences Nursing hsv//eng
Muscle spasticity; Spinal cord diseases; Spinal cord injuries; Patient reported outcome measures; Health-related quality of life

Added entries (persons, corporate bodies, meetings, titles ...)

Nene, AnandRoessingh Res & Dev, Netherlands (author)
Kiekens, CarlotteKU Leuven Univ Leuven, Belgium; Univ Hosp Leuven, Belgium (author)
Burns, Anthony S.Univ Toronto, Canada (author)
Linköpings universitetAvdelningen för prevention, rehabilitering och nära vård (creator_code:org_t)

Related titles

In:Journal of Spinal Cord Medicine (JSCM): TAYLOR & FRANCIS LTD43:6, s. 813-8231079-02682045-7723

Internet link

Find in a library

Journal of Spinal Cord Medicine (JSCM) (Search for host publication in LIBRIS)

To the university's database

1 of 1
Previous record
Next record
To hitlist

Find more in SwePub

By the author/editor: Ertzgaard, Per; Nene, Anand; Kiekens, Carlott ...; Burns, Anthony S ...

About the subject

MEDICAL AND HEALTH SCIENCES: MEDICAL AND HEAL ...; and Health Sciences; and Nursing

Articles in the publication: Journal of Spina ...

By the university: Linköping University

Search outside SwePub

Extend your search to:: Google; Google Book Search; Google Scholar

Kungliga biblioteket hanterar dina personuppgifter i enlighet med EU:s dataskyddsförordning (2018), GDPR. Läs mer om hur det funkar här.
Så här hanterar KB dina uppgifter vid användning av denna tjänst.

LIBRIS.kb.se