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Development and evaluation of the EOL-ICDQ as a measure of experiences, attitudes and knowledge in end-of-life in patients living with an implantable cardioverter defibrillator

Thylén, Ingela (author)
Östergötlands Läns Landsting,Linköpings universitet,Avdelningen för kardiovaskulär medicin,Hälsouniversitetet,Kardiologiska kliniken US
Wenemark, Marika (author)
Linköpings universitet,Avdelningen för samhällsmedicin,Hälsouniversitetet
Fluur, Christina (author)
Östergötlands Läns Landsting,Kardiologiska kliniken US
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Strömberg, Anna (author)
Östergötlands Läns Landsting,Linköpings universitet,Avdelningen för omvårdnad,Hälsouniversitetet,Kardiologiska kliniken US
Bolse, Kärstin, 1947- (author)
Högskolan i Halmstad,Centrum för forskning om välfärd, hälsa och idrott (CVHI),Halmstad University, Sweden
Årestedt, Kristofer, 1968- (author)
Linköpings universitet,Linnéuniversitetet,Institutionen för hälso- och vårdvetenskap (HV),Linköping Univ Hosp,iCARE,Division of Nursing Sciences, Linköping University, Linköping, Sweden,Avdelningen för omvårdnad,Hälsouniversitetet
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 (creator_code:org_t)
2013-12
2014
English.
In: European Journal of Cardiovascular Nursing. - London, United Kingdom : Oxford University Press (OUP). - 1474-5151 .- 1873-1953. ; 13:2, s. 142-151
  • Journal article (peer-reviewed)
Abstract Subject headings
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  • Background: Due to extended indications and resynchronization therapy, many implantable cardioverter defibrillator (ICD) recipients will experience progressive co-morbid conditions and will be more likely to die of causes other than cardiac death. It is therefore important to elucidate the ICD patients' preferences when nearing end-of-life. Instead of avoiding the subject of end-of-life, a validated questionnaire may be helpful to explore patients' experiences and attitudes about end-of-life concerns and to assess knowledge of the function of the ICD in end-of-life. Validated instruments assessing patients' perspective concerning end-of-life issues are scarce. Aim: The purpose of this study was to develop and evaluate respondent satisfaction and measurement properties of the Experiences, Attitudes and Knowledge of End-of-Life Issues in Implantable Cardioverter Defibrillator Patients' Questionnaire' (EOL-ICDQ). Methods: The instrument was tested for validity, respondent satisfaction, and for homogeneity and stability in the Swedish language. An English version of the EOL-ICDQ was validated, but has not yet been pilot tested. Results: The final instrument contained three domains, which were clustered into 39 items measuring: experiences (10 items), attitudes (18 items), and knowledge (11 items) of end-of-life concerns in ICD patients. In addition, the questionnaire also contained items on socio-demographic background (six items) and ICD-specific background (eight items). The validity and reliability properties were considered sufficient. Conclusions: The EOL-ICDQ has the potential to be used in clinical practice and future research. Further studies are needed using this instrument in an Anglo-Saxon context with a sample of English-speaking ICD recipients.

Subject headings

MEDICIN OCH HÄLSOVETENSKAP  -- Hälsovetenskap (hsv//swe)
MEDICAL AND HEALTH SCIENCES  -- Health Sciences (hsv//eng)
MEDICIN OCH HÄLSOVETENSKAP  -- Annan medicin och hälsovetenskap -- Övrig annan medicin och hälsovetenskap (hsv//swe)
MEDICAL AND HEALTH SCIENCES  -- Other Medical and Health Sciences -- Other Medical and Health Sciences not elsewhere specified (hsv//eng)

Keyword

Cognitive interviewing
end-of-life questionnaire
implantable cardioverter defibrillator
proactive communication
psychometric testing
respondent satisfaction
Health and Caring Sciences
Hälsovetenskap
MEDICINE

Publication and Content Type

ref (subject category)
art (subject category)

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