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Children with home ...
Children with home mechanical ventilation : parents' health-related quality of life, family functioning and sleep
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- Israelsson-Skogsberg, Åsa, 1968- (författare)
- Högskolan i Borås,Akademin för vård, arbetsliv och välfärd,Vårdande i högteknologiska miljöer,Univ Borås, Fac Caring Sci Work Life & Social Welf, SE-50190 Borås, Sweden.
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- Persson, Carina, 1961- (författare)
- Linnéuniversitetet,Institutionen för hälso- och vårdvetenskap (HV),Hållbar hälsa,Linnaeus Univ, Fac Hlth & Life Sci, Kalmar, Sweden.
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- Markström, Agneta (författare)
- Uppsala universitet,Lung- allergi- och sömnforskning,Karolinska Inst, Dept Womens & Childrens Hlth, Stockholm, Sweden.
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- Hedén, Lena (författare)
- University of Borås, Sweden,Univ Borås, Fac Caring Sci Work Life & Social Welf, SE-50190 Borås, Sweden.
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(creator_code:org_t)
- 2020-01-29
- 2020
- Engelska.
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Ingår i: Acta Paediatrica. - : John Wiley & Sons. - 0803-5253 .- 1651-2227. ; 109:9, s. 1807-1814
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Abstract
Ämnesord
Stäng
- AimChildren requiring home mechanical ventilation (HMV) have grown in number and complexity. Parents of children with HMV are often responsible for the advanced homecare. This study explored the health‐related quality of life (HRQoL), family functioning and sleep in parents of children with HMV. A secondary aim was to explore the impact on HRQoL, family functioning and sleep of selected potential determinants.MethodsQuestionnaires were completed by 45 mothers and 40 fathers, to 55 children receiving HMV. Parents were identified via respiratory clinics in the Swedish national quality register for oxygen and home respiratory treatment and invited to participate between December 2016 and December 2018.ResultsThere were no differences between mothers and fathers overall HRQoL or family functioning reports, although differences within the physical (P < .043) and cognitive (P < .009) functioning dimensions were found. One of four parents reported moderate or severe insomnia. The variability in HRQoL and family functioning was predicted by HMV mode and sleep quality to an extent of 45% and 21%, respectively.ConclusionSleep quality and the child's HMV mode predicted parental HRQoL and family functioning. The results underscore the importance of evaluating parents' sleep and of being aware that invasive ventilation influences parental HRQoL and family functioning.
Ämnesord
- MEDICIN OCH HÄLSOVETENSKAP -- Klinisk medicin -- Pediatrik (hsv//swe)
- MEDICAL AND HEALTH SCIENCES -- Clinical Medicine -- Pediatrics (hsv//eng)
- MEDICIN OCH HÄLSOVETENSKAP -- Hälsovetenskap -- Omvårdnad (hsv//swe)
- MEDICAL AND HEALTH SCIENCES -- Health Sciences -- Nursing (hsv//eng)
Nyckelord
- family functioning
- health‐related quality of life
- home mechanical ventilation
- parents
- sleep
- Health and Caring Sciences
- Hälsovetenskap
- Människan i vården
Publikations- och innehållstyp
- ref (ämneskategori)
- art (ämneskategori)
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