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The Swedish medical birth register during five decades : documentation of the content and quality of the register

Cnattingius, Sven (author)
Karolinska Institutet,Karolinska Institute
Källén, Karin (author)
Lund University,Lunds universitet,Miljöepidemiologi,Forskargrupper vid Lunds universitet,Tornbladinstitutet,Environmental Epidemiology,Lund University Research Groups,Tornblad Institute
Sandström, Anna (author)
Karolinska Institutet,Karolinska Institute,Karolinska University Hospital
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Rydberg, Henny (author)
Statistics Unit 1, Department of Registers and Statistics, National Board of Health and Welfare, Stockholm, Sweden,Socialstyrelsen / Swedish National Board of Health and Welfare
Månsson, Helena (author)
Statistics Unit 1, Department of Registers and Statistics, National Board of Health and Welfare, Stockholm, Sweden,Socialstyrelsen / Swedish National Board of Health and Welfare
Stephansson, Olof (author)
Karolinska Institutet,Karolinska Institute,Karolinska University Hospital
Frisell, Thomas (author)
Karolinska Institutet,Karolinska Institute
Ludvigsson, Jonas F., 1969- (author)
Karolinska Institutet,Karolinska Institute,Örebro universitet,Institutionen för medicinska vetenskaper,Region Örebro län,Department of Medical Epidemiology and Biostatistics, Karolinska Institutet, Stockholm, Sweden; Department of Pediatrics, Örebro University Hospital, Örebro, Sweden; Department of Medicine, Columbia University College of Physicians and Surgeons, New York NY, USA
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 (creator_code:org_t)
2023-01-03
2023
English.
In: European Journal of Epidemiology. - : Springer. - 0393-2990 .- 1573-7284. ; 38:1, s. 109-120
  • Journal article (peer-reviewed)
Abstract Subject headings
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  • Pregnancy-related factors are important for short- and long-term health in mothers and offspring. The nationwide population-based Swedish Medical Birth Register (MBR) was established in 1973. The present study describes the content and quality of the MBR, using original MBR data, Swedish-language and international publications based on the MBR. The MBR includes around 98% of all births in Sweden. From 1982 onwards, the MBR is based on prospectively recorded information in standardized antenatal, obstetric, and neonatal records. When the mother and infant are discharged from hospital, this information is forwarded to the MBR, which is updated annually. Maternal data include information from first antenatal visit on self-reported obstetric history, infertility, diseases, medication use, cohabitation status, smoking and snuff use, self-reported height and measured weight, allowing calculation of body mass index. Birth and neonatal data include date and time of birth, mode of delivery, singleton or multiple birth, gestational age, stillbirth, birth weight, birth length, head circumference, infant sex, Apgar scores, and maternal and infant diagnoses/procedures, including neonatal care. The overall quality of the MBR is very high, owing to the semi-automated data extraction from the standardized regional electronic health records, Sweden's universal access to antenatal care, and the possibility to compare mothers and offspring to the Total Population Register in order to identify missing records. Through the unique personal identity numbers of mothers and live-born offspring, the MBR can be linked to other health registers. The Swedish MBR contains high-quality pregnancy-related information on more than 5 million births during five decades.

Subject headings

MEDICIN OCH HÄLSOVETENSKAP  -- Hälsovetenskap -- Folkhälsovetenskap, global hälsa, socialmedicin och epidemiologi (hsv//swe)
MEDICAL AND HEALTH SCIENCES  -- Health Sciences -- Public Health, Global Health, Social Medicine and Epidemiology (hsv//eng)
MEDICIN OCH HÄLSOVETENSKAP  -- Klinisk medicin -- Reproduktionsmedicin och gynekologi (hsv//swe)
MEDICAL AND HEALTH SCIENCES  -- Clinical Medicine -- Obstetrics, Gynaecology and Reproductive Medicine (hsv//eng)

Keyword

Antenatal care
Birth infant
Nationwide
Newborn
Population-based pregnancy
Register
Sweden
Antenatal care
Birth infant
Nationwide
Newborn
Population-based pregnancy
Register
Sweden

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