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Being a close relative of a dying person : development of the concepts "involvement in the light and in the dark"

Andershed, Birgitta (author)
Örebro universitet,Hälsovetenskapliga institutionen
Ternestedt, Britt-Marie (author)
Örebro universitet,Hälsovetenskapliga institutionen
 (creator_code:org_t)
Ovid Technologies (Wolters Kluwer Health), 2000
2000
English.
In: Cancer Nursing. - : Ovid Technologies (Wolters Kluwer Health). - 0162-220X .- 1538-9804. ; 23:2, s. 151-159
  • Journal article (peer-reviewed)
Abstract Subject headings
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  • The current study is based on an earlier article in which relatives' involvement in care was described as involvement in the light or involvement in the dark. Involvement in the light was characterized as the relative being well informed and experiencing a meaningful involvement. The relatives involved in the dark felt uninformed, that they were groping around in the dark when they tried to support the patient. The present study analyzed further the meaning of involvement in the light and involvement in the dark, and investigated whether two different care cultures, the relationship with the staff, and a rapid course of illness influence the involvement of relatives. Relatives of 52 patients who died, 30 at a surgical department and 22 in a hospice ward, were interviewed after the patients' deaths. All the relatives of the patients in the hospice ward and 13 of those in the surgical department were judged to be involved in the light. Of the relatives judged to be involved in the dark, 12 either had a sick relative with a rapid course of illness or felt that the sick relative had died unexpectedly. A pattern was clearly observed: The relatives involved in the light described being met with respect, openness, sincerity, confirmation, and connection, whereas the opposite was experienced by those involved in the dark.

Subject headings

MEDICIN OCH HÄLSOVETENSKAP  -- Hälsovetenskap -- Omvårdnad (hsv//swe)
MEDICAL AND HEALTH SCIENCES  -- Health Sciences -- Nursing (hsv//eng)

Keyword

Caregivers
Humans
Interpersonal Relations
Oncologic Nursing
Palliative Care/*psychology
Questionnaires
Social Support
MEDICINE
MEDICIN
Nursing Science
Vårdvetenskap

Publication and Content Type

ref (subject category)
art (subject category)

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Andershed, Birgi ...
Ternestedt, Brit ...
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MEDICAL AND HEALTH SCIENCES
MEDICAL AND HEAL ...
and Health Sciences
and Nursing
Articles in the publication
Cancer Nursing
By the university
Örebro University
Marie Cederschiöld högskola

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