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Sökning: onr:"swepub:oai:lup.lub.lu.se:af3d2c99-8ded-46cc-bf45-b59efab61f1b" > The power of empiri...

LIBRIS Formathandbok  (Information om MARC21)
FältnamnIndikatorerMetadata
00004651naa a2200553 4500
001oai:lup.lub.lu.se:af3d2c99-8ded-46cc-bf45-b59efab61f1b
003SwePub
008201102s2020 | |||||||||||000 ||eng|
009oai:prod.swepub.kib.ki.se:144760242
0247 a https://lup.lub.lu.se/record/af3d2c99-8ded-46cc-bf45-b59efab61f1b2 URI
0247 a https://doi.org/10.1080/0284186X.2020.18205732 DOI
0247 a http://kipublications.ki.se/Default.aspx?queryparsed=id:1447602422 URI
040 a (SwePub)lud (SwePub)ki
041 a engb eng
042 9 SwePub
072 7a for2 swepub-publicationtype
072 7a ref2 swepub-contenttype
1001 a Nilbert, Mefu Lund University,Lunds universitet,Bröstcancer-genetik,Sektion I,Institutionen för kliniska vetenskaper, Lund,Medicinska fakulteten,LUCC: Lunds universitets cancercentrum,Övriga starka forskningsmiljöer,Breastcancer-genetics,Section I,Department of Clinical Sciences, Lund,Faculty of Medicine,LUCC: Lund University Cancer Centre,Other Strong Research Environments,University of Copenhagen,Danish Cancer Society,Hvidovre Hospital4 aut0 (Swepub:lu)onk-mni
2451 0a The power of empirical data; lessons from the clinical registry initiatives in Scandinavian cancer care
264 1c 2020
300 a 14 s.
520 a Background: In Scandinavia, there is a strong tradition for research and quality monitoring based on registry data. In Denmark, Norway and Sweden, 63 clinical registries collect data on disease characteristics, treatment and outcome of various cancer diagnoses and groups based on process-related and outcome-related variables. Aim: We describe the cancer-related clinical registries, compare organizational structures and quality indicators and provide examples of how these registries have been used to monitor clinical performance, develop prediction models, assess outcome and provide quality benchmarks. Further, we define unmet needs such as inclusion of patient-reported outcome variables, harmonization of variables and barriers for data sharing. Results and conclusions: The clinical registry framework provides an empirical basis for evidence-based development of high-quality and equitable cancer care. The registries can be used to follow implementation of new treatment principles and monitor patterns of care across geographical areas and patient groups. At the same time, the lessons learnt suggest that further developments and coordination are needed to utilize the full potential of the registry initiative in cancer care.
650 7a MEDICIN OCH HÄLSOVETENSKAPx Hälsovetenskapx Folkhälsovetenskap, global hälsa, socialmedicin och epidemiologi0 (SwePub)303022 hsv//swe
650 7a MEDICAL AND HEALTH SCIENCESx Health Sciencesx Public Health, Global Health, Social Medicine and Epidemiology0 (SwePub)303022 hsv//eng
650 7a MEDICIN OCH HÄLSOVETENSKAPx Klinisk medicinx Cancer och onkologi0 (SwePub)302032 hsv//swe
650 7a MEDICAL AND HEALTH SCIENCESx Clinical Medicinex Cancer and Oncology0 (SwePub)302032 hsv//eng
653 a Epidemiology
653 a health data
653 a malignancies
653 a outcome
653 a parameter
653 a quality registries
7001 a Thomsen, Linda Aagaardu Danish Cancer Society4 aut
7001 a Winther Jensen, Jensu The Danish Clinical Registries (RKKP)4 aut
7001 a Møller, Henriku The Danish Clinical Registries (RKKP)4 aut
7001 a Borre, Michaelu Danske Multidisciplinære Cancer Grupper (DMCG)4 aut
7001 a Widenlou Nordmark, Arvidu Federation of Regional Cancer Centers (RCC)4 aut
7001 a Lambe, Matsu Karolinska Institutet,Karolinska Institute,Federation of Regional Cancer Centers (RCC)4 aut
7001 a Brändström, Helenau Federation of Regional Cancer Centers (RCC)4 aut
7001 a Kørner, Hartwigu University of Bergen4 aut
7001 a Møller, Bjørnu Cancer Registry of Norway, Institute of Population-Based Cancer Research4 aut
7001 a Ursin, Giskeu Cancer Registry of Norway, Institute of Population-Based Cancer Research4 aut
7102 a Bröstcancer-genetikb Sektion I4 org
7730 t Acta Oncologicag 59:11, s. 1343-1356q 59:11<1343-1356x 0284-186X
7730 t Acta oncologica (Stockholm, Sweden)g 59:11, s. 1343-1356q 59:11<1343-1356x 1651-226X
8564 u http://dx.doi.org/10.1080/0284186X.2020.1820573x freey FULLTEXT
8564 8u https://lup.lub.lu.se/record/af3d2c99-8ded-46cc-bf45-b59efab61f1b
8564 8u https://doi.org/10.1080/0284186X.2020.1820573
8564 8u http://kipublications.ki.se/Default.aspx?queryparsed=id:144760242

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