WFRF:(Hodgson Shirley)
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| Fältnamn | Indikatorer | Metadata |
|---|---|---|
| 000 | 04240naa a22006733a 4500 | |
| 001 | 20186405 | |
| 003 | SE-LIBR | |
| 005 | 20170322162000.0 | |
| 007 | cr|||||||||||| | |
| 008 | 170322s2015 sw |||| o |||| ||eng c | |
| 024 | 7 | a http://urn.kb.se/resolve?urn=urn:nbn:se:uu:diva-2457992 uri |
| 024 | 7 | a urn:nbn:se:uu:diva-2457992 urn |
| 024 | 7 | a 10.1038/ejhg.2014.1902 doi |
| 040 | a S | |
| 041 | 0 | a eng |
| 042 | 9 EPLK | |
| 100 | 1 | a Severin, Franziska4 aut |
| 245 | 1 0 | a Points to consider for prioritizing clinical genetic testing servicesh [Elektronisk resurs]b a European consensus process oriented at accountability for reasonableness |
| 260 | c 2015 | |
| 500 | a Published | |
| 506 | 0 | a gratis |
| 520 | a Given the cost constraints of the European health-care systems, criteria are needed to decide which genetic services to fund from the public budgets, if not all can be covered. To ensure that high-priority services are available equitably within and across the European countries, a shared set of prioritization criteria would be desirable. A decision process following the accountability for reasonableness framework was undertaken, including a multidisciplinary EuroGentest/PPPC-ESHG workshop to develop shared prioritization criteria. Resources are currently too limited to fund all the beneficial genetic testing services available in the next decade. Ethically and economically reflected prioritization criteria are needed. Prioritization should be based on considerations of medical benefit, health need and costs. Medical benefit includes evidence of benefit in terms of clinical benefit, benefit of information for important life decisions, benefit for other people apart from the person tested and the patient-specific likelihood of being affected by the condition tested for. It may be subject to a finite time window. Health need includes the severity of the condition tested for and its progression at the time of testing. Further discussion and better evidence is needed before clearly defined recommendations can be made or a prioritization algorithm proposed. To our knowledge, this is the first time a clinical society has initiated a decision process about health-care prioritization on a European level, following the principles of accountability for reasonableness. We provide points to consider to stimulate this debate across the EU and to serve as a reference for improving patient management. | |
| 650 | 7 | a Medical and Health Sciences2 hsv |
| 650 | 7 | a Health Sciences2 hsv |
| 650 | 7 | a Health Care Service and Management, Health Policy and Services and Health Economy2 hsv |
| 650 | 7 | a Medicin och hälsovetenskap2 hsv |
| 650 | 7 | a Hälsovetenskaper2 hsv |
| 650 | 7 | a Hälso- och sjukvårdsorganisation, hälsopolitik och hälsoekonomi2 hsv |
| 700 | 1 | a Borry, Pascal4 aut |
| 700 | 1 | a Cornel, Martina C4 aut |
| 700 | 1 | a Daniels, Norman4 aut |
| 700 | 1 | a Fellmann, Florence4 aut |
| 700 | 1 | a Victoria Hodgson, Shirley4 aut |
| 700 | 1 | a Howard, Heidi C4 aut |
| 700 | 1 | a John, Jürgen4 aut |
| 700 | 1 | a Kääriäinen, Helena4 aut |
| 700 | 1 | a Kayserili, Hülya4 aut |
| 700 | 1 | a Kent, Alastair4 aut |
| 700 | 1 | a Koerber, Florian4 aut |
| 700 | 1 | a Kristoffersson, Ulf4 aut |
| 700 | 1 | a Kroese, Mark4 aut |
| 700 | 1 | a Lewis, Celine4 aut |
| 700 | 1 | a Marckmann, Georg4 aut |
| 700 | 1 | a Meyer, Peter4 aut |
| 700 | 1 | a Pfeufer, Arne4 aut |
| 700 | 1 | a Schmidtke, Jörg4 aut |
| 700 | 1 | a Skirton, Heather4 aut |
| 700 | 1 | a Tranebjærg, Lisbeth4 aut |
| 700 | 1 | a Rogowski, Wolf H4 aut |
| 710 | 1 2 | a Uppsala universitetb Medicinska och farmaceutiska vetenskapsområdet4 pbl |
| 772 | 1 8 | i channel recordw 19753896 |
| 773 | 0 8 | i Värdpublikationt European Journal of Human Geneticsg 23, 729-735x 1018-4813 |
| 856 | 4 0 | u http://urn.kb.se/resolve?urn=urn:nbn:se:uu:diva-245799 |
| 856 | 4 0 | u http://dx.doi.org/10.1038/ejhg.2014.190 |
| 856 | 4 0 | u http://uu.diva-portal.org/smash/get/diva2:791534/FULLTEXT01 |
| 841 | 5 APISa x ab 170322||0000|||||001||||||000000e 1 | |
| 024 | 7 | 5 APISa urn:nbn:se:uu:diva-2457992 urn |
| 852 | 5 APISb APIS | |
| 856 | 4 0 | 5 APISu http://urn.kb.se/resolve?urn=urn:nbn:se:uu:diva-245799 |
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