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The Core of Parents...
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Gyllén, Jenny,1968Gothenburg University,Göteborgs universitet,University of Gothenburg,Institutionen för neurovetenskap och fysiologi,Institute of Neuroscience and Physiology
(författare)
The Core of Parents’ Main Concerns When Having a Child With Cataract and Its Clinical Implications
- Artikel/kapitelEngelska2019
Förlag, utgivningsår, omfång ...
Nummerbeteckningar
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LIBRIS-ID:oai:lup.lub.lu.se:f6d1c7b7-6aca-4f41-afdd-d0802141e2fc
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https://lup.lub.lu.se/record/f6d1c7b7-6aca-4f41-afdd-d0802141e2fcURI
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https://doi.org/10.1016/j.pedn.2018.10.017DOI
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https://gup.ub.gu.se/publication/274504URI
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Språk:engelska
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Sammanfattning på:engelska
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Ämneskategori:art swepub-publicationtype
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Ämneskategori:ref swepub-contenttype
Anmärkningar
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Purpose: To investigate the main concerns associated with being a parent of a child with cataract and how the parents deal with these concerns. Design and method: Twenty-three parents; 6 mothers, 5 fathers and 6 couples with a child with cataract were included in this study. The parents included some with a personal experience of cataract and some without. Data was collected through 17 in-depth interviews, which were recorded and transcribed verbatim for analysis by the method of Grounded Theory developed by Charmaz. Results: The Grounded Theory describes the parents’ efforts to balance the child's inability and ability in order to maintain their social functioning and lead a normal life through a process comprising four main categories; Mastering, Collaborating, Facilitating, and Adapting. This process makes the path of transition evident, starting when the child is diagnosed and continuing for several years during her/his growth and development. Conclusion: The core of parent-child interaction is mastering the balance between the child's disability and ability in order to achieve the best possible outcome, visually and habitually. The interactions changes through a process towards adjustment and acceptance. All the parents emphasized that you do what you have to do to achieve a successful visual outcome of the child. Clinical implications: The model provides a comprehensive understanding of parental self-management that can be used by a case manager, preferable a nurse, to pilot the parents through the process.
Ämnesord och genrebeteckningar
Biuppslag (personer, institutioner, konferenser, titlar ...)
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Magnusson, Gunilla,1968Gothenburg University,Göteborgs universitet,University of Gothenburg,Institutionen för neurovetenskap och fysiologi, sektionen för klinisk neurovetenskap,Institute of Neuroscience and Physiology, Department of Clinical Neuroscience(Swepub:gu)xmaggu
(författare)
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Forsberg, AnnaLund University,Lunds universitet,Vård i högteknologisk miljö,Forskargrupper vid Lunds universitet,Care in high technological environments,Lund University Research Groups(Swepub:gu)xfoann
(författare)
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University of GothenburgInstitutionen för neurovetenskap och fysiologi
(creator_code:org_t)
Sammanhörande titlar
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Ingår i:Journal of Pediatric Nursing: Elsevier BV44, s. 45-510882-59631532-8449
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