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  • Bratt, Ewa-Lena,1970Gothenburg University,Göteborgs universitet,Institutionen för vårdvetenskap och hälsa,Institute of Health and Care Sciences,Univ Gothenburg, Sweden; Sahlgrens Univ Hosp, Sweden; Lund Univ, Sweden (författare)

Effectiveness of the STEPSTONES Transition Program for Adolescents With Congenital Heart Disease : A Randomized Controlled Trial

  • Artikel/kapitelEngelska2023

Förlag, utgivningsår, omfång ...

  • Elsevier,2023
  • electronicrdacarrier

Nummerbeteckningar

  • LIBRIS-ID:oai:DiVA.org:hb-29727
  • https://urn.kb.se/resolve?urn=urn:nbn:se:hb:diva-29727URI
  • https://doi.org/10.1016/j.jadohealth.2023.02.019DOI
  • https://urn.kb.se/resolve?urn=urn:nbn:se:umu:diva-206797URI
  • https://lup.lub.lu.se/record/64d13754-498a-476b-a051-31b8508be855URI
  • http://kipublications.ki.se/Default.aspx?queryparsed=id:237032211URI
  • https://gup.ub.gu.se/publication/325194URI
  • https://urn.kb.se/resolve?urn=urn:nbn:se:liu:diva-201352URI
  • http://kipublications.ki.se/Default.aspx?queryparsed=id:154982542URI

Kompletterande språkuppgifter

  • Språk:engelska
  • Sammanfattning på:engelska

Ingår i deldatabas

Klassifikation

  • Ämneskategori:ref swepub-contenttype
  • Ämneskategori:art swepub-publicationtype

Anmärkningar

  • Funding Agencies|Swedish Heart-Lung Foundation [20150535]; Swedish Research Council for Health, Working Life and Welfare-FORTE; Swedish Children's Heart Association; Swedish Research Council; Institute of Health and Care Sciences, Sahlgrenska Academy, University of Gothenburg in Sweden; [STYA-2015/0003]; [2015e02503]
  • Purpose: Adolescents with congenital heart disease transition from childhood to adulthood and transfer from pediatric-oriented to adult-oriented care. High-level empirical evidence on the effectiveness of transitional care is scarce. This study investigated the empowering effect (primary outcome) of a structured person-centered transition program for adolescents with congenital heart disease and studied its effectiveness on transition readiness, patient-reported health, quality of life, health behaviors, disease-related knowledge, and parental outcomes e.g., parental uncertainty, readiness for transition as perceived by the parents (secondary outcomes). Methods: The STEPSTONES-trial comprised a hybrid experimental design whereby a randomized controlled trial was embedded in a longitudinal observational study. The trial was conducted in seven centers in Sweden. Two centers were allocated to the randomized controlled trial-arm, randomizing participants to intervention or control group. The other five centers were intervention-naïve centers and served as contamination check control group. Outcomes were measured at the age of 16 years (baseline), 17 years, and 18.5 years. Results: The change in empowerment from 16 years to 18.5 years differed significantly between the intervention group and control group (mean difference = 3.44; 95% confidence interval = 0.27–6.65; p = .036) in favor of intervention group. For the secondary outcomes, significant differences in change over time were found in parental involvement (p = .008), disease-related knowledge (p = .0002), and satisfaction with physical appearance (p = .039). No differences in primary or secondary outcomes were detected between the control group and contamination check control group, indicating that there was no contamination in the control group. Discussion: The STEPSTONES transition program was effective in increasing patient empowerment, reducing parental involvement, improving satisfaction with physical appearance, and increasing disease-related knowledge. © 2023 Society for Adolescent Health and Medicine

Ämnesord och genrebeteckningar

Biuppslag (personer, institutioner, konferenser, titlar ...)

  • Mora, Mariela AcunaGothenburg University,Göteborgs universitet,University of Borås,Högskolan i Borås,Akademin för vård, arbetsliv och välfärd,Institute of Health and Care Science, Sahlgrenska Academy, University of Gothenburg, Gothenburg, Sweden; Academy of Caring Science, Work Life and Social Welfare, University of Borås, Sweden,Institutionen för vårdvetenskap och hälsa,Institute of Health and Care Sciences,Univ Gothenburg, Sweden; Univ Boras, Sweden; Lund Univ, Sweden(Swepub:gu)xacuma (författare)
  • Sparud Lundin, Carina,1964Gothenburg University,Göteborgs universitet,Institutionen för vårdvetenskap och hälsa,Institute of Health and Care Sciences,Univ Gothenburg, Sweden; Lund Univ, Sweden(Swepub:gu)xspaca (författare)
  • Saarijärvi, MarkusGothenburg University,Göteborgs universitet,Karolinska Institutet,Karolinska Institute,Sahlgrenska Academy,Institutionen för vårdvetenskap och hälsa,Institute of Health and Care Sciences,Univ Gothenburg, Sweden; Karolinska Inst, Sweden; Lund Univ, Sweden(Swepub:gu)xsaari (författare)
  • Burström, ÅsaKarolinska Institutet,Karolinska Institute,Karolinska Inst, Sweden; Lund Univ, Sweden (författare)
  • Skogby, Sandra,1989Gothenburg University,Göteborgs universitet,Institutionen för vårdvetenskap och hälsa,Institute of Health and Care Sciences,Univ Gothenburg, Sweden; Lund Univ, Sweden; Univ Cape Town, South Africa; Queen Silvia Childrens Hosp, Sweden(Swepub:gu)xskosa (författare)
  • Fernlund, EvaLinköpings universitet,Linköping University,Lund University,Lunds universitet,Pediatrik, Lund,Sektion V,Institutionen för kliniska vetenskaper, Lund,Medicinska fakulteten,Paediatrics (Lund),Section V,Department of Clinical Sciences, Lund,Faculty of Medicine,Linköping University Hospital,Skåne University Hospital,Avdelningen för barns och kvinnors hälsa,Region Östergötland, H.K.H. Kronprinsessan Victorias barn- och ungdomssjukhus,Lund Univ, Sweden(Swepub:liu)evafe41 (författare)
  • Fadl, ShalanDepartment of Paediatrics, Örebro University Hospital, Örebro, Sweden,Lund Univ, Sweden; Orebro Univ Hosp, Sweden (författare)
  • Rydberg, AnnikaUmeå University,Umeå universitet,Institutionen för klinisk vetenskap,Department of Clinical Sciences, Umeå University, Umeå, Sweden,Lund Univ, Sweden; Umea Univ, Sweden(Swepub:umu)anry0014 (författare)
  • Hanseus, KatarinaChildren's Heart Centre, Skåne University Hospital Lund, Lund, Sweden,Lund Univ, Sweden; Skane Univ Hosp, Sweden(Swepub:lu)pedi-kha (författare)
  • Kazamia, KalliopiKarolinska Institutet,Karolinska Institute,Uppsala University Hospital,Lund Univ, Sweden; Karolinska Univ Hosp, Sweden; Akad Univ Hosp, Sweden (författare)
  • Moons, PhilipGothenburg University,Göteborgs universitet,Institutionen för vårdvetenskap och hälsa,Institute of Health and Care Sciences,Univ Gothenburg, Sweden; Lund Univ, Sweden; Karolinska Inst, Sweden; Katholieke Univ Leuven, Belgium (författare)
  • Göteborgs universitetInstitutionen för vårdvetenskap och hälsa (creator_code:org_t)

Sammanhörande titlar

  • Ingår i:Journal of Adolescent Health: Elsevier1054-139X1879-1972

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