What do patients prefer? A multinational, longitudinal, qualitative study on patient-preferred treatment outcomes in early rheumatoid arthritis

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What do patients prefer? A multinational, longitudinal, qualitative study on patient-preferred treatment outcomes in early rheumatoid arthritis

Van der Elst, Kristien (författare): Department of Rheumatology, University Hospitals Leuven, Leuven, Belgium

Mathijssen, Elke G. E. (författare): Department of Rheumatology, Sint Maartenskliniek Nijmegen, Nijmegen, Netherlands

Landgren, Ellen (författare): Lund University,Lunds universitet,LUBIN Lab- Lunds laboratorium för neurokirurgisk hjärnskadeforskning,Forskargrupper vid Lunds universitet,LUBIN Lab- Lund Brain Injury laboratory for Neurosurgical research,Lund University Research Groups,Department of Clinical Sciences, Section of Rheumatology, Lund University, Lund, Sweden ; Department of Rheumatology, Skåne University Hospital, Lund, Sweden

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Bremander, Ann, 1957- (författare): Lund University,Lunds universitet,LUBIN Lab- Lunds laboratorium för neurokirurgisk hjärnskadeforskning,Forskargrupper vid Lunds universitet,LUBIN Lab- Lund Brain Injury laboratory for Neurosurgical research,Lund University Research Groups,Department of Clinical Sciences, Section of Rheumatology, Lund University, Lund, Sweden ; Department of Regional Health Research, University of Southern Denmark, Odense, Denmark

De Groef, An (författare): Department of Rehabilitation Sciences, KU Leuven, Leuven, Belgium ; Patient Research Partner, KU Leuven University Hospitals Leuven, Leuven, Belgium,Catholic University of Leuven

Lindqvist, Elisabet (författare): Lund University,Lunds universitet,LUBIN Lab- Lunds laboratorium för neurokirurgisk hjärnskadeforskning,Forskargrupper vid Lunds universitet,LUBIN Lab- Lund Brain Injury laboratory for Neurosurgical research,Lund University Research Groups,Department of Clinical Sciences, Section of Rheumatology, Lund University, Lund, Sweden ; Department of Rheumatology, Skåne University Hospital, Lund, Sweden

Nylander, Maria (författare): Spenshult Research and Development Centre, Halmstad, Sweden ; Patient Research Partner, Swedish Rheumatism Association, Stockholm, Sweden

Peters, Alma (författare): Department of Rheumatology, Sint Maartenskliniek, Nijmegen, Netherlands ; Patient Research Partner, Sint Maartenskliniek, Nijmegen, Netherlands,University Medical Center Utrecht

Van den Hoogen, Frank (författare): Department of Rheumatology, Sint Maartenskliniek Nijmegen, Nijmegen, Netherlands

van Eijk-Hustings, Yvonne (författare): Department of Rheumatology, Maastricht University Medical Centre, Maastricht, Netherlands ; Department of Clinical Epidemiology and Medical Technology Assessment, Maastricht University Medical Centre, Maastricht, Netherlands

Verhoeven, Gerard (författare): Department of Rheumatology, Sint Maartenskliniek Nijmegen, Nijmegen, Netherlands ; Patient Research Partner, Sint Maartenskliniek, Nijmegen, Netherlands

Vriezekolk, Johanna E. (författare): Department of Rheumatology, Sint Maartenskliniek Nijmegen, Nijmegen, Netherlands,University Hospitals Leuven

Westhovens, Rene (författare): Department of Rheumatology, University Hospitals Leuven, Leuven, Belgium ; Department of Development and Regeneration, Skeletal Biology and Engineering Research Centre, KU Leuven, Leuven, Belgium,Catholic University of Leuven

Larsson, Ingrid, 1968- (författare): Halmstad University,Högskolan i Halmstad,Hälsa och omvårdnad,Hälsa och hållbar uppväxt,Spenshult Research and Development Center

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2020-09-16
2020
Engelska.
Ingår i: RMD Open. - London : BMJ Publishing Group Ltd. - 2056-5933. ; 6:2

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Abstract Ämnesord

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OBJECTIVES: To explore treatment outcomes preferred by patients with early rheumatoid arthritis (RA) and how these change throughout the early disease stage across three European countries.METHODS: A longitudinal, qualitative, multicentre study was conducted in Belgium, the Netherlands and Sweden. 80 patients with early RA were individually interviewed 3-9 months after treatment initiation and 51 of them participated again in either a focus group or an individual interview 12-21 months after treatment initiation. Data were first analysed by country, following the Qualitative Analysis Guide of Leuven (QUAGOL). Thereafter, a meta-synthesis, inspired by the principles of meta-ethnography and the QUAGOL, was performed, involving the local research teams.RESULTS: The meta-synthesis revealed 11 subthemes from which four main themes were identified: disease control, physical performance, self-accomplishment and well-being. 'A normal life despite RA' was an overarching patient-preferred outcome across countries. Belgian, Dutch and Swedish patients showed many similarities in terms of which outcomes they preferred throughout the early stage of RA. Some outcome preferences (eg, relief of fatigue and no side effects) developed differently over time across countries.CONCLUSIONS: This study on patient-preferred outcomes in early RA revealed that patients essentially want to live a normal life despite RA. Our findings help to understand what really matters to patients and provide specific insights into the early stage of RA, which should be addressed by clinicians of different disciplines from the start of treatment onwards. © Author(s) (or their employer(s)) 2020.

Ämnesord

MEDICIN OCH HÄLSOVETENSKAP -- Klinisk medicin -- Reumatologi och inflammation (hsv//swe)
MEDICAL AND HEALTH SCIENCES -- Clinical Medicine -- Rheumatology and Autoimmunity (hsv//eng)

Nyckelord

Arthritis
Health Care
Outcome and Process Assessment
Qualitative research
Rheumatoid
Arthritis
Health Care
Outcome and Process Assessment
Qualitative research
Rheumatoid

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Av författaren/redakt...: Van der Elst, Kr ...; Mathijssen, Elke ...; Landgren, Ellen; Bremander, Ann, ...; De Groef, An; Lindqvist, Elisa ...; visa fler...; Nylander, Maria; Peters, Alma; Van den Hoogen, ...; van Eijk-Husting ...; Verhoeven, Gerar ...; Vriezekolk, Joha ...; Westhovens, Rene; Larsson, Ingrid, ...; visa färre...

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Av lärosätet: Högskolan i Halmstad; Lunds universitet

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