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The NORDeHEALTH 202...
The NORDeHEALTH 2022 Patient Survey : Cross-Sectional Study of National Patient Portal Users in Norway, Sweden, Finland, and Estonia
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- Hägglund, Maria, Lektor, 1975- (author)
- Uppsala universitet,E-hälsa och hälsodata,Medtech Science & Innovation Centre, Uppsala University Hospital, Uppsala, Sweden
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- Kharko, Anna (author)
- Uppsala universitet,E-hälsa och hälsodata,Medtech Science & Innovation Centre, Uppsala University Hospital, Uppsala, Sweden;School of Psychology, Faculty of Health, University of Plymouth, Plymouth, United Kingdom
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- Hagström, Josefin (author)
- Uppsala universitet,E-hälsa och hälsodata,Medtech Science & Innovation Centre, Uppsala University Hospital, Uppsala, Sweden
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- Bärkås, Annika (author)
- Uppsala universitet,E-hälsa och hälsodata,Medtech Science & Innovation Centre, Uppsala University Hospital, Uppsala, Sweden
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- Blease, Charlotte (author)
- Uppsala universitet,E-hälsa och hälsodata,Medtech Science & Innovation Centre, Uppsala University Hospital, Uppsala, Sweden;Department of Medicine, Division of General Medicine, Beth Israel Deaconess Medical Center, Harvard Medical School, Boston, MA, United States
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- Cajander, Åsa, Professor, 1971- (author)
- Uppsala universitet,Bildanalys och människa-datorinteraktion,Datavetenskapens didaktik,Avdelningen Vi3
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- DesRoches, Catherine (author)
- Department of Medicine, Division of General Medicine, Beth Israel Deaconess Medical Center, Harvard Medical School, Boston, MA, United States
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- Fagerlund, Asbjørn Johansen (author)
- Norwegian Centre for E-Health Research, University Hospital of North Norway, Tromsø, Norway
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- Haage, Barbara (author)
- E-Medicine Centre, Department of Health Technologies, Tallinn University of Technology, Tallinn, Estonia
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- Huvila, Isto, Professor, 1976- (author)
- Uppsala universitet,Institutionen för ABM
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- Hörhammer, Iiris (author)
- Department of Computer Science, Aalto University, Espoo, Finland
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- Kane, Bridget (author)
- Karlstads universitet,Handelshögskolan (from 2013),Business School, Karlstad University, Sweden
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- Klein, Gunnar O., 1953- (author)
- Örebro universitet,Handelshögskolan vid Örebro Universitet,Centre for Empirical Research on Information Systems, School of Business, Örebro University, Sweden,Uppsala University Hospital, Sweden
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- Kristiansen, Eli (author)
- Norwegian Centre for E-Health Research, University Hospital of North Norway, Tromsø, Norway
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- Luks, Kerli (author)
- E-Medicine Centre, Department of Health Technologies, Tallinn University of Technology, Tallinn, Estonia
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- Moll, Jonas, 1982- (author)
- Örebro universitet,Handelshögskolan vid Örebro Universitet,Centre for Empirical Research on Information Systems, School of Business, Örebro University, Sweden,Örebro University, Sweden
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- Muli, Irene (author)
- Uppsala universitet,E-hälsa och hälsodata,Medtech Science & Innovation Centre, Uppsala University Hospital, Uppsala, Sweden
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- Raphaug, Eline Hovstad (author)
- Norwegian Centre for E-Health Research, University Hospital of North Norway, Tromsø, Norway
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- Rexhepi, Hanife, 1984- (author)
- Högskolan i Skövde,Institutionen för informationsteknologi,Forskningsmiljön Informationsteknologi,Informationssystem, Information Systems,School of Informatics, University of Skövde, Skövde, Sweden
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- Riggare, Sara (author)
- Uppsala universitet,E-hälsa och hälsodata,Medtech Science & Innovation Centre, Uppsala University Hospital, Uppsala, Sweden
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- Ross, Peeter (author)
- E-Medicine Centre, Department of Health Technologies, Tallinn University of Technology, Tallinn, Estonia
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- Scandurra, Isabella, 1973- (author)
- Örebro universitet,Handelshögskolan vid Örebro Universitet,Centre for Empirical Research on Information Systems, School of Business, Örebro University, Sweden,Örebro University, Sweden
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- Simola, Saija (author)
- Department of Computer Science, Aalto University, Espoo, Finland
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- Soone, Hedvig (author)
- E-Medicine Centre, Department of Health Technologies, Tallinn University of Technology, Tallinn, Estonia
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- Wang, Bo (author)
- Norwegian Centre for E-Health Research, University Hospital of North Norway, Tromsø, Norway
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- Ghorbanian Zolbin, Maedeh (author)
- Department of Computer Science, Aalto University, Espoo, Finland
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- Åhlfeldt, Rose-Mharie, 1960- (author)
- Högskolan i Skövde,Institutionen för informationsteknologi,Forskningsmiljön Informationsteknologi,Informationssystem, Information Systems,School of Informatics, University of Skövde, Skövde, Sweden
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- Kujala, Sari (author)
- Department of Computer Science, Aalto University, Espoo, Finland
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- Johansen, Monika Alise (author)
- Norwegian Centre for E-Health Research, University Hospital of North Norway, Tromsø, Norway ; Department of Clinical Medicine, Telemedicine and E-health Research Group, Arctic University of Norway, Tromsø, Norway
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(creator_code:org_t)
- JMIR Publications, 2023
- 2023
- English.
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In: Journal of Medical Internet Research. - : JMIR Publications. - 1438-8871. ; 25
- Related links:
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https://doi.org/10.2...
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https://his.diva-por... (primary) (Raw object)
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https://kau.diva-por... (primary) (Raw object)
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https://uu.diva-port... (primary) (Raw object)
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https://urn.kb.se/re...
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https://doi.org/10.2...
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https://urn.kb.se/re...
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https://urn.kb.se/re...
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https://urn.kb.se/re...
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Abstract
Subject headings
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- BACKGROUND: Although many surveys have been conducted on patients accessing their own health records in recent years, there is a limited amount of nationwide cross-country data available on patients' views and preferences. To address this gap, an international survey of patient users was conducted in the Nordic eHealth project, NORDeHEALTH. OBJECTIVE: We aimed to investigate the sociodemographic characteristics and experiences of patients who accessed their electronic health records (EHRs) through national patient portals in Norway, Sweden, Finland, and Estonia. METHODS: A cross-sectional web-based survey was distributed using the national online health portals. The target participants were patients who accessed the national patient portals at the start of 2022 and who were aged ≥15 years. The survey included a mixture of close-ended and free-text questions about participant sociodemographics, usability experience, experiences with health care and the EHR, reasons for reading health records online, experience with errors, omissions and offense, opinions about security and privacy, and the usefulness of portal functions. In this paper, we summarized the data on participant demographics, past experience with health care, and the patient portal through descriptive statistics. RESULTS: In total, 29,334 users completed the survey, of which 9503 (32.40%) were from Norway, 13,008 (44.35%) from Sweden, 4713 (16.07%) from Finland, and 2104 (7.17%) from Estonia. National samples were comparable according to reported gender, with about two-thirds identifying as women (19,904/29,302, 67.93%). Age distributions were similar across the countries, but Finland had older users while Estonia had younger users. The highest attained education and presence of health care education varied among the national samples. In all 4 countries, patients most commonly rated their health as "fair" (11,279/29,302, 38.48%). In Estonia, participants were more often inclined to rate their health positively, whereas Norway and Sweden had the highest proportion of negative health ratings. Across the whole sample, most patients received some care in the last 2 years (25,318/29,254, 86.55%). Mental health care was more common (6214/29,254, 21.24%) than oncological care (3664/29,254, 12.52%). Overall, most patients had accessed their health record "2 to 9 times" (11,546/29,306, 39.4%), with the most frequent users residing in Sweden, where about one-third of patients accessed it "more than 20 times" (4571/13,008, 35.14%). CONCLUSIONS: This is the first large-scale international survey to compare patient users' sociodemographics and experiences with accessing their EHRs. Although the countries are in close geographic proximity and demonstrate similar advancements in giving their residents online records access, patient users in this survey differed. We will continue to investigate patients' experiences and opinions about national patient-accessible EHRs through focused analyses of the national and combined data sets from the NORDeHEALTH 2022 Patient Survey.
Subject headings
- MEDICIN OCH HÄLSOVETENSKAP -- Hälsovetenskap -- Hälso- och sjukvårdsorganisation, hälsopolitik och hälsoekonomi (hsv//swe)
- MEDICAL AND HEALTH SCIENCES -- Health Sciences -- Health Care Service and Management, Health Policy and Services and Health Economy (hsv//eng)
- MEDICIN OCH HÄLSOVETENSKAP -- Hälsovetenskap -- Folkhälsovetenskap, global hälsa, socialmedicin och epidemiologi (hsv//swe)
- MEDICAL AND HEALTH SCIENCES -- Health Sciences -- Public Health, Global Health, Social Medicine and Epidemiology (hsv//eng)
- NATURVETENSKAP -- Data- och informationsvetenskap -- Systemvetenskap, informationssystem och informatik (hsv//swe)
- NATURAL SCIENCES -- Computer and Information Sciences -- Information Systems (hsv//eng)
- MEDICIN OCH HÄLSOVETENSKAP -- Hälsovetenskap -- Annan hälsovetenskap (hsv//swe)
- MEDICAL AND HEALTH SCIENCES -- Health Sciences -- Other Health Sciences (hsv//eng)
Keyword
- electronic health record
- health data
- national survey
- online medical record
- online records access
- patient access
- patient portal
- patient-accessible electronic health record
- Cross-Sectional Studies
- Electronic Health Records
- Estonia
- Female
- Finland
- Humans
- Norway
- Patient Portals
- Sweden
- cross-sectional study
- epidemiology
- human
- medical record
- Information Systems
- Informationssystem (IS)
- Information Systems
- Medical Informatics
Publication and Content Type
- ref (subject category)
- art (subject category)
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Hägglund, Maria, ...
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Kharko, Anna
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Hagström, Josefi ...
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Bärkås, Annika
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Blease, Charlott ...
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Cajander, Åsa, P ...
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show more...
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DesRoches, Cathe ...
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Fagerlund, Asbjø ...
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Haage, Barbara
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Huvila, Isto, Pr ...
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Hörhammer, Iiris
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Kane, Bridget
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Klein, Gunnar O. ...
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Kristiansen, Eli
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Luks, Kerli
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Moll, Jonas, 198 ...
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Muli, Irene
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Raphaug, Eline H ...
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Rexhepi, Hanife, ...
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Riggare, Sara
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Ross, Peeter
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Scandurra, Isabe ...
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Simola, Saija
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Soone, Hedvig
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Wang, Bo
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Ghorbanian Zolbi ...
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Åhlfeldt, Rose-M ...
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Kujala, Sari
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Johansen, Monika ...
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- About the subject
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- MEDICAL AND HEALTH SCIENCES
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MEDICAL AND HEAL ...
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MEDICAL AND HEAL ...
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and Health Sciences
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and Public Health Gl ...
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- NATURAL SCIENCES
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NATURAL SCIENCES
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and Computer and Inf ...
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MEDICAL AND HEAL ...
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- Articles in the publication
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Journal of Medic ...
- By the university
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University of Skövde
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Örebro University
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Karlstad University
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Uppsala University