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A Nordic Perspectiv...
A Nordic Perspective on Patient Online Record Access and the European Health Data Space
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- Hägglund, Maria, Lektor, 1975- (författare)
- Uppsala universitet,E-hälsa och hälsodata
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- Kharko, Anna (författare)
- Uppsala universitet,E-hälsa och hälsodata
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- Bärkås, Annika (författare)
- Uppsala universitet,E-hälsa och hälsodata
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visa fler...
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- Blease, Charlotte (författare)
- Uppsala universitet,E-hälsa och hälsodata
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- Cajander, Åsa, Professor, 1971- (författare)
- Uppsala universitet,Avdelningen Vi3
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- DesRoches, Catherine (författare)
- Division of General Medicine, Department of Medicine, Beth Israel Deaconess Medical Center, Harvard Medical School, Boston, MA, United States,Harvard Med Sch, Beth Israel Deaconess Med Ctr, Dept Med, Div Gen Med, Boston, MA 02115 USA.
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- Fagerlund, Asbjørn Johansen (författare)
- Norwegian Centre for E-Health Research, University Hospital of North Norway, Tromsø, Norway,Univ Hosp North Norway, Norwegian Ctr eHlth Res, Tromso, Norway.
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- Hagström, Josefin (författare)
- Uppsala universitet,Hälsovetenskap och e-hälsa,E-hälsa och hälsodata
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- Huvila, Isto, Professor, 1976- (författare)
- Uppsala universitet,Institutionen för ABM
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- Hörhammer, Iiris (författare)
- Department of Computer Science, Aalto University, Espoo, Finland,Aalto Univ, Dept Comp Sci, Espoo, Finland.
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- Kane, Bridget (författare)
- Uppsala universitet,Karlstads universitet,Handelshögskolan (from 2013),Participatory eHealth and Health Data Research Group, Department of Women's and Children's Health, Uppsala University, Uppsala, Sweden; Business School, Karlstad University, Karlstad, Sweden,E-hälsa och hälsodata
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- Klein, Gunnar O., 1953- (författare)
- Örebro universitet,Handelshögskolan vid Örebro Universitet,Centre for Empirical Research on Information Systems
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- Kristiansen, Eli (författare)
- Norwegian Centre for E-Health Research, University Hospital of North Norway, Tromsø, Norway,Univ Hosp North Norway, Norwegian Ctr eHlth Res, Tromso, Norway.
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- Moll, Jonas, 1982- (författare)
- Örebro universitet,Handelshögskolan vid Örebro Universitet,Centre for Empirical Research on Information Systems
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- Muli, Irene (författare)
- Uppsala universitet,E-hälsa och hälsodata
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- Rexhepi, Hanife, 1984- (författare)
- Högskolan i Skövde,Institutionen för informationsteknologi,Forskningsmiljön Informationsteknologi,Information Systems,Univ Skövde, Sch Informat, Skövde, Sweden.,School of Informatics, University of Skövde, Skövde, Sweden
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- Riggare, Sara, PhD, 1971- (författare)
- Uppsala universitet,E-hälsa och hälsodata,Centrum för forskning om funktionshinder
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- Ross, Peeter (författare)
- E-Medicine Centre, Department of Health Technologies, Tallinn University of Technology, Tallinn, Estonia; Research Department, East Tallinn Central Hospital, Tallinn, Estonia,Tallinn Univ Technol, Emed Ctr, Dept Hlth Technol, Tallinn, Estonia.;East Tallinn Cent Hosp, Res Dept, Tallinn, Estonia.
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- Scandurra, Isabella, 1973- (författare)
- Örebro universitet,Handelshögskolan vid Örebro Universitet,Centre for Empirical Research on Information Systems
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- Simola, Saija (författare)
- Department of Computer Science, Aalto University, Espoo, Finland,Aalto Univ, Dept Comp Sci, Espoo, Finland.
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- Soone, Hedvig (författare)
- E-Medicine Centre, Department of Health Technologies, Tallinn University of Technology, Tallinn, Estonia,Tallinn Univ Technol, Emed Ctr, Dept Hlth Technol, Tallinn, Estonia.
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- Wang, Bo (författare)
- Norwegian Centre for E-Health Research, University Hospital of North Norway, Tromsø, Norway,Univ Hosp North Norway, Norwegian Ctr eHlth Res, Tromso, Norway.
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- Zolbin, Maedeh Ghorbanian (författare)
- Department of Computer Science, Aalto University, Espoo, Finland,Aalto Univ, Dept Comp Sci, Espoo, Finland.
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- Åhlfeldt, Rose-Mharie, 1960- (författare)
- Högskolan i Skövde,Institutionen för informationsteknologi,Forskningsmiljön Informationsteknologi,Information Systems,Univ Skövde, Sch Informat, Skövde, Sweden.,School of Informatics, University of Skövde, Skövde, Sweden
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- Kujala, Sari (författare)
- Department of Computer Science, Aalto University, Espoo, Finland,Aalto Univ, Dept Comp Sci, Espoo, Finland.
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- Johansen, Monika Alise (författare)
- Norwegian Centre for E-Health Research, University Hospital of North Norway, Tromsø, Norway,Univ Hosp North Norway, Norwegian Ctr eHlth Res, Tromso, Norway.
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(creator_code:org_t)
- JMIR Publications, 2024
- 2024
- Engelska.
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Ingår i: Journal of Medical Internet Research. - : JMIR Publications. - 1438-8871. ; 26:1
- Relaterad länk:
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https://doi.org/10.2...
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https://his.diva-por... (primary) (Raw object)
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https://kau.diva-por... (primary) (Raw object)
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https://www.jmir.org...
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https://urn.kb.se/re...
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https://doi.org/10.2...
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https://urn.kb.se/re...
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https://urn.kb.se/re...
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https://urn.kb.se/re...
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Abstract
Ämnesord
Stäng
- The Nordic countries are, together with the United States, forerunners in online record access (ORA), which has now become widespread. The importance of accessible and structured health data has also been highlighted by policy makers internationally. To ensure the full realization of ORA’s potential in the short and long term, there is a pressing need to study ORA from a cross-disciplinary, clinical, humanistic, and social sciences perspective that looks beyond strictly technical aspects. In this viewpoint paper, we explore the policy changes in the European Health Data Space (EHDS) proposal to advance ORA across the European Union, informed by our research in a Nordic-led project that carries out the first of its kind, large-scale international investigation of patients’ ORA—NORDeHEALTH (Nordic eHealth for Patients: Benchmarking and Developing for the Future). We argue that the EHDS proposal will pave the way for patients to access and control third-party access to their electronic health records. In our analysis of the proposal, we have identified five key principles for ORA: (1) the right to access, (2) proxy access, (3) patient input of their own data, (4) error and omission rectification, and (5) access control. ORA implementation today is fragmented throughout Europe, and the EHDS proposal aims to ensure all European citizens have equal online access to their health data. However, we argue that in order to implement the EHDS, we need more research evidence on the key ORA principles we have identified in our analysis. Results from the NORDeHEALTH project provide some of that evidence, but we have also identified important knowledge gaps that still need further exploration.
Ämnesord
- MEDICIN OCH HÄLSOVETENSKAP -- Hälsovetenskap -- Hälso- och sjukvårdsorganisation, hälsopolitik och hälsoekonomi (hsv//swe)
- MEDICAL AND HEALTH SCIENCES -- Health Sciences -- Health Care Service and Management, Health Policy and Services and Health Economy (hsv//eng)
- NATURVETENSKAP -- Data- och informationsvetenskap -- Systemvetenskap, informationssystem och informatik (hsv//swe)
- NATURAL SCIENCES -- Computer and Information Sciences -- Information Systems (hsv//eng)
- MEDICIN OCH HÄLSOVETENSKAP -- Hälsovetenskap (hsv//swe)
- MEDICAL AND HEALTH SCIENCES -- Health Sciences (hsv//eng)
Nyckelord
- digital health
- EHR
- electronic health records
- European Health Data Space
- health care
- open notes
- patient access
- patient portals
- patients’ online record access
- Europe
- European Union
- Humans
- Scandinavian and Nordic Countries
- article
- benchmarking
- electronic health record
- European
- health data
- human
- knowledge gap
- medical record
- telehealth
- United States
- Scandinavia
- Information Systems
- Informationssystem (IS)
- Information Systems
- Medical Informatics
Publikations- och innehållstyp
- ref (ämneskategori)
- art (ämneskategori)
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Till lärosätets databas
- Av författaren/redakt...
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Hägglund, Maria, ...
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Kharko, Anna
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Bärkås, Annika
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Blease, Charlott ...
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Cajander, Åsa, P ...
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DesRoches, Cathe ...
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visa fler...
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Fagerlund, Asbjø ...
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Hagström, Josefi ...
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Huvila, Isto, Pr ...
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Hörhammer, Iiris
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Kane, Bridget
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Klein, Gunnar O. ...
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Kristiansen, Eli
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Moll, Jonas, 198 ...
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Muli, Irene
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Rexhepi, Hanife, ...
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Riggare, Sara, P ...
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Ross, Peeter
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Scandurra, Isabe ...
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Simola, Saija
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Soone, Hedvig
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Wang, Bo
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Zolbin, Maedeh G ...
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Åhlfeldt, Rose-M ...
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Kujala, Sari
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Johansen, Monika ...
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- Om ämnet
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- MEDICIN OCH HÄLSOVETENSKAP
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MEDICIN OCH HÄLS ...
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och Hälsovetenskap
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och Hälso och sjukvå ...
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- NATURVETENSKAP
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NATURVETENSKAP
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och Data och informa ...
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och Systemvetenskap ...
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- MEDICIN OCH HÄLSOVETENSKAP
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MEDICIN OCH HÄLS ...
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och Hälsovetenskap
- Artiklar i publikationen
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Journal of Medic ...
- Av lärosätet
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Högskolan i Skövde
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Karlstads universitet
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Örebro universitet
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Uppsala universitet