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  • Hagström, JosefinUppsala universitet,E-hälsa och hälsodata (author)

Security and Privacy of Online Record Access : A Survey of Adolescents' Views and Experiences in Sweden

  • Article/chapterEnglish2024

Publisher, publication year, extent ...

  • 2024
  • Elsevier,2024
  • electronicrdacarrier

Numbers

  • LIBRIS-ID:oai:DiVA.org:his-23626
  • https://urn.kb.se/resolve?urn=urn:nbn:se:his:diva-23626URI
  • https://doi.org/10.1016/j.jadohealth.2023.12.027DOI
  • https://urn.kb.se/resolve?urn=urn:nbn:se:kau:diva-98902URI
  • https://urn.kb.se/resolve?urn=urn:nbn:se:oru:diva-111658URI
  • https://urn.kb.se/resolve?urn=urn:nbn:se:uu:diva-522954URI

Supplementary language notes

  • Language:English
  • Summary in:English

Part of subdatabase

Classification

  • Subject category:ref swepub-contenttype
  • Subject category:art swepub-publicationtype

Notes

  • CC BY 4.0 DEED© 2024 Society for Adolescent Health and MedicineAddress correspondence to: Josefin Hagström, M.Sc., Department of Women’s and Children’s Health, Uppsala University, Dag Hammarskjölds väg 14B, 752 37, Uppsala, Sweden.This work was supported by NordForsk through the funding to Nordic eHealth for Patients: Benchmarking and Developing for the Future, NORDeHEALTH [Project #100477]; and the Swedish Research Council for Health, Working Life and Welfare (FORTE) through the funding to Beyond Implementation of eHealth [Project #2020-01229]. C.B. was supported by a Keane Scholar Award.
  • Purpose: Ensuring security of online health records and patients' perceptions of security are concerns in adolescent healthcare. Little is known about adolescents' perceptions about healthcare's ability to protect online health records. This article explores adolescents' perspectives on security and privacy of their online health records, potential differences based on gender and health, attitudes to sharing information, and perceptions of what constitutes sensitive information. Methods: This study included a subset of items from a national online patient survey conducted in Sweden (January-February 2022), focusing on respondents aged 15–19 years. Gender and health status differences were calculated using the Kruskal-Wallis test. Results: Of 218 adolescent respondents (77.1% female), a minority had security and privacy concerns. A notable proportion (41.3%) wished to control who could see their records, and those who reported better perceived health were more likely to want to manage access to their electronic health record (H = 13.569, p = .009). Most had not experienced unauthorized access to their records (75.2%) and had never shared health information on other online applications (85.8%). More than half (56.0%) perceived some information as sensitive, where mental health was the most common (76.0%). Most felt that reading their notes improved their trust for their healthcare professional (65.6%) and supported better communication with healthcare professionals (66.5%). Discussion: In this national survey, adolescents generally reported few concerns about patient portals. Findings emphasize the need for security and privacy protection and to empower adolescents with greater control over access to their health information housed in electronic health record systems. 

Subject headings and genre

Added entries (persons, corporate bodies, meetings, titles ...)

  • Åhlfeldt, Rose-Mharie,1960-Högskolan i Skövde,Institutionen för informationsteknologi,Forskningsmiljön Informationsteknologi,Informationssystem, Information Systems,School of Informatics, University of Skövde, Skövde, Sweden(Swepub:his)ahlo (author)
  • Blease, CharlotteUppsala universitet,E-hälsa och hälsodata(Swepub:uu)chabl597 (author)
  • Cajander, Åsa,Professor,1971-Uppsala universitet,Avdelningen Vi3(Swepub:uu)ascaj168 (author)
  • Rexhepi, Hanife,1984-Högskolan i Skövde,Institutionen för informationsteknologi,Forskningsmiljön Informationsteknologi,Informationssystem, Information Systems,School of Informatics, University of Skövde, Skövde, Sweden(Swepub:his)krah (author)
  • Moll, Jonas,1982-Örebro universitet,Handelshögskolan vid Örebro Universitet,Centre for Empirical Research on Information Systems (CERIS)(Swepub:oru)jsml (author)
  • Kane, BridgetKarlstads universitet,Handelshögskolan (from 2013),Business School, Karlstad University, Karlstad, Sweden(Swepub:kau)bridkane (author)
  • Scandurra, Isabella,1973-Örebro universitet,Handelshögskolan vid Örebro Universitet,Centre for Empirical Research on Information Systems (CERIS)(Swepub:oru)iasa (author)
  • Hägglund, Maria,Lektor,1975-Uppsala universitet,E-hälsa och hälsodata(Swepub:uu)mha05791 (author)
  • Uppsala universitetE-hälsa och hälsodata (creator_code:org_t)

Related titles

  • In:Journal of Adolescent Health: Elsevier1054-139X1879-1972

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