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  • Nelson, Eugene C.Dartmouth Institute for Health Policy and Clinical Practice, Geisel School of Medicine, Dartmouth College, Lebanon, NH, United States (author)

Patient focused registries can improve health, care, and science

  • Article/chapterEnglish2016

Publisher, publication year, extent ...

  • 2016-07-01
  • BMJ Publishing Group Ltd,2016
  • electronicrdacarrier

Numbers

  • LIBRIS-ID:oai:DiVA.org:hj-34701
  • https://urn.kb.se/resolve?urn=urn:nbn:se:hj:diva-34701URI
  • https://doi.org/10.1136/bmj.i3319DOI
  • http://kipublications.ki.se/Default.aspx?queryparsed=id:133810451URI

Supplementary language notes

  • Language:English
  • Summary in:English

Part of subdatabase

Classification

  • Subject category:ref swepub-contenttype
  • Subject category:art swepub-publicationtype

Notes

  • Large scale collection and analysis of data on patients’ experiences and outcomes have become staples of successful health systems worldwide. The systems go by various names—including registries, quality registries, clinical databases, clinical audits, and quality improvement programmes—but all collect standardised information on patients’ diagnoses, care processes, and outcomes, enabling systematic comparison and analysis across multiple sites. Hundreds of what we will term, for simplicity, “registries,” now exist around the world. The United Kingdom is home to over 50 clinical audit programmes, the United States has over 110 federally qualified registries certified to report quality metrics, and Sweden, perhaps the registry epicentre, has over 100, covering conditions from birth to frail old age.These registries have had far reaching effects. They facilitate public reporting, retrospective and prospective research, professional development, and service improvement. They reveal variations in practices, processes, and outcomes, and identify targets for improvement. In the UK, they have been associated with many notable successes, including improvements in management of cardiovascular disease and stroke, cancer, and joint replacement.

Subject headings and genre

Added entries (persons, corporate bodies, meetings, titles ...)

  • Dixon-Woods, MaryInstitute of Public Health, University of Cambridge, School of Clinical Medicine, Cambridge, United Kingdom (author)
  • Batalden, Paul B.Jönköping University,The Jönköping Academy for Improvement of Health and Welfare,HHJ. IMPROVE (Improvement, innovation, and leadership in health and welfare),Dartmouth Institute for Health Policy and Clinical Practice, Geisel School of Medicine, Dartmouth College, Lebanon, NH, United States(Swepub:hj)bapa (author)
  • Homa, KarenDartmouth-Hitchcock Health, Lebanon, NH, United States (author)
  • Van Citters, Aricca D.Dartmouth Institute for Health Policy and Clinical Practice, Geisel School of Medicine, Dartmouth College, Lebanon, NH, United States (author)
  • Morgan, Tamara S.Dartmouth Institute for Health Policy and Clinical Practice, Geisel School of Medicine, Dartmouth College, Lebanon, NH, United States (author)
  • Eftimovska, ElenaKarolinska Institutet (author)
  • Fisher, Elliott S.Dartmouth Institute for Health Policy and Clinical Practice, Geisel School of Medicine, Dartmouth College, Lebanon, NH, United States (author)
  • Ovretveit, JohnKarolinska Institutet (author)
  • Harrison, WadeDartmouth Institute for Health Policy and Clinical Practice, Geisel School of Medicine, Dartmouth College, Lebanon, NH, United States (author)
  • Lind, CristinQuality Register Center Stockholm, Karolinska Institutet, Stockholm County Council, Stockholm, Sweden (author)
  • Lindblad, StaffanKarolinska Institutet (author)
  • Dartmouth Institute for Health Policy and Clinical Practice, Geisel School of Medicine, Dartmouth College, Lebanon, NH, United StatesInstitute of Public Health, University of Cambridge, School of Clinical Medicine, Cambridge, United Kingdom (creator_code:org_t)

Related titles

  • In:BMJ. British Medical Journal: BMJ Publishing Group Ltd3540959-81460959-535X
  • In:BMJ: BMJ Publishing Group Ltd3541756-1833

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