Respondent burden and patient-perceived validity of the PDQ-39

OBJECTIVES: To evaluate the respondent burden and patient-perceived content validity of the Parkinson's disease (PD)-specific health status questionnaire PDQ-39, and the linguistic validity of its revised Swedish version.MATERIALS AND METHODS: Eighteen PD patients completed the revised Swedish version of the PDQ-39. Respondent burden was assessed by recording the time taken to complete the questionnaire. Content and linguistic validity was evaluated qualitatively.RESULTS: Patients with mild, moderate and advanced PD needed a mean time of 9.5, 11.3 and 20.1 min, respectively, to complete the PDQ-39. One-third of the patients identified irrelevant items and 50% identified important health-related areas that were missing. Revisions had eliminated previous linguistic problems with the Swedish PDQ-39.CONCLUSIONS: Undue respondent burden challenged the appropriateness of the PDQ-39 among patients with more advanced disease. Overall content validity was acceptable but compromised by lack of important content areas. Observations supported the linguistic validity of the revised Swedish PDQ-39.

Dahlberg, A.Department of Health Sciences, Lund University (författare)
Hagell, PeterLund University,Lunds universitet,Institutionen för hälsovetenskaper,Medicinska fakulteten,Department of Health Sciences,Faculty of Medicine(Swepub:hkr)hape (författare)
Kim, M-Y (författare)
Dahlberg, A (författare)
Department of Health Sciences, Lund UniversityInstitutionen för hälsovetenskaper (creator_code:org_t)

Ingår i:Acta Neurologica Scandinavica: Wiley-Blackwell113:2, s. 132-1370001-63141600-0404

Av författaren/redakt...: Kim, M.-Y.; Dahlberg, A.; Hagell, Peter; Kim, M-Y; Dahlberg, A

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