Patient-reported outcomes in adults with congenital heart disease: Inter-country variation, standard of living and healthcare system factors

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Patient-reported outcomes in adults with congenital heart disease : Inter-country variation, standard of living and healthcare system factors

Moons, Philip, 1968 (författare): Gothenburg University,Göteborgs universitet,Centrum för personcentrerad vård vid Göteborgs universitet (GPCC),Institutionen för vårdvetenskap och hälsa,University of Gothenburg Centre for person-centred care (GPCC),Institute of Health and Care Sciences

Kovacs, Adrienne H. (författare): University of Toronto, Peter Munk Cardiac Centre, University Health Network, Toronto, Canada; Knight Cardiovascular Institute, Oregon Health & Science University, Portand, OR, USA.

Luyckx, Koen (författare): KU Leuven - University of Leuven, School Psychology and Development in Context, Leuven, Belgium.

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Thomet, Corina (författare): University of Bern, Center for Congenital Heart Disease, Inselspital - Bern University Hospital, Bern, Switzerland.

Budts, Werner (författare): University Hospitals Leuven, Division of Congenital and Structural Cardiology, Leuven, Belgium; KU Leuven Department of Cardiovascular Sciences, KU Leuven - University of Leuven, Leuven, Belgium.

Enomoto, Junko (författare): Department of Adult Congenital Heart Disease, Chiba Cardiovascular Center, Chiba, Japan.

Sluman, Maayke A. (författare): Department of Cardiology, Academic Medical Center, Amsterdam, the Netherlands.

Yang, Hsiao-Ling (författare): National Taiwan University, School of Nursing, College of MedicineTaipei, Taiwan

Jackson, Jamie L. (författare): Center for Biobehavioral Health, Nationwide Children's Hospital, Columbus, OH, USA

Khairy, Paul (författare): Université de Montréal, Adult Congenital Heart Center, Montreal Heart Institute, Montreal, Canada.

Cook, Stephen C. (författare): Adult Congenital Heart Disease Center, Helen DeVos Children's Hospital, Grand Rapids, MI, USA.

Subramanyan, Raghavan (författare): Frontier Lifeline Hospital, Dr. K. M. Cherian Heart Foundation, Chennai, India.

Alday, Luis (författare): Division of Cardiology, Hospital de Niños, Córdoba, Argentina.

Eriksen, Katrine (författare): Adult Congenital Heart Disease Center, Oslo University Hospital - Rikshospitalet, Oslo, Norway.

Dellborg, Mikael, 1954 (författare): Gothenburg University,Göteborgs universitet,Centrum för personcentrerad vård vid Göteborgs universitet (GPCC),Institutionen för medicin, avdelningen för molekylär och klinisk medicin,University of Gothenburg Centre for person-centred care (GPCC),Institute of Medicine, Department of Molecular and Clinical Medicine

Berghammer, Malin, 1970- (författare): Gothenburg University,Göteborgs universitet,Högskolan Väst,Avdelningen för omvårdnad - avancerad nivå,University of Gothenburg, Institute of Medicine, The Sahlgrenska Academy at University of Gothenburg, Sweden. 16 Centre for Person-Centred Care (GPCC), UGothenburg, Sweden,Centrum för personcentrerad vård vid Göteborgs universitet (GPCC),University of Gothenburg Centre for person-centred care (GPCC)

Johansson, Bengt (författare): Umeå universitet,Kardiologi,Umeå University, Department of Public Health and Clinical Medicine,Umeå, Sweden.

Mackie, Andrew S. (författare): University of Alberta, Division of Cardiology, Stollery Children's Hospital, Edmonton, Canada

Menahem, Samuel (författare): Monash University, Monash Heart, Monash Medical Centre, Melbourne, Australia.

Caruana, Maryanne (författare): Department of Cardiology, Mater Dei Hospital, Birkirkara Bypass, Malta.

Veldtman, Gruschen (författare): Adult Congenital Heart Disease Center, Cincinnati Children's Hospital Medical Center, Cincinnati, OH, USA.

Soufi, Alexandra (författare): Department of Congenital Heart Disease, Louis Pradel Hospital, Hospices civils de Lyon, Lyon, France

Fernandes, Susan M. (författare): Adult Congenital Heart Disease Program at Stanford, Lucile Packard Children's Hospital and Stanford Health Care, Palo Alto, CA, USA

White, Kamila (författare): Adult Congenital Heart Disease Center, Washington University and Barnes Jewish Heart & Vascular Center, University of Missouri, Saint Louis, MO, USA.

Callus, Edward (författare): Clinical Psychology Service, IRCCS Policlinico San Donato, Milan, Italy.

Kutty, Shelby (författare): Adult Congenital Heart Disease Center University of Nebraska Medical Center/Children's Hospital and Medical Center, Omaha, NE, USA.

Van Bulck, Liesbet (författare): KU Leuven - University of Leuven, KU Leuven Department of Public Health and Primary Care,Leuven, Belgium.

Apers, Silke (författare): KU Leuven - University of Leuven, KU Leuven Department of Public Health and Primary Care,Leuven, Belgium.

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Elsevier BV, 2018
2018
Engelska.
Ingår i: International Journal of Cardiology. - : Elsevier BV. - 0167-5273 .- 1874-1754. ; 251, s. 34-41

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Tidskriftsartikel (refereegranskat)

Abstract Ämnesord

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AimsGeographical differences in patient-reported outcomes (PROs) of adults with congenital heart disease (ConHD) have been observed, but are poorly understood. We aimed to: (1) investigate inter-country variation in PROs in adults with ConHD; (2) identify patient-related predictors of PROs; and (3) explore standard of living and healthcare system characteristics as predictors of PROs.Methods and resultsAssessment of Patterns of Patient-Reported Outcomes in Adults with Congenital Heart disease – International Study (APPROACH-IS) was a cross-sectional, observational study, in which 4028 patients from 15 countries in 5 continents were enrolled. Self-report questionnaires were administered: patient-reported health (12-item Short Form Health Survey; EuroQOL-5D Visual Analog Scale); psychological functioning (Hospital Anxiety and Depression Scale); health behaviors (Health Behavior Scale–Congenital Heart Disease) and quality of life (Linear Analog Scale for quality of life; Satisfaction With Life Scale). A composite PRO score was calculated. Standard of living was expressed as Gross Domestic Product per capita and Human Development Index. Healthcare systems were operationalized as the total health expenditure per capita and the overall health system performance. Substantial inter-country variation in PROs was observed, with Switzerland having the highest composite PRO score (81.0) and India the lowest (71.3). Functional class, age, and unemployment status were patient-related factors that independently and consistently predicted PROs. Standard of living and healthcare system characteristics predicted PROs above and beyond patient characteristics.ConclusionsThis international collaboration allowed us to determine that PROs in ConHD vary as a function of patient-related factors as well as the countries in which patients live.

Ämnesord

MEDICIN OCH HÄLSOVETENSKAP -- Hälsovetenskap -- Omvårdnad (hsv//swe)
MEDICAL AND HEALTH SCIENCES -- Health Sciences -- Nursing (hsv//eng)
MEDICIN OCH HÄLSOVETENSKAP -- Klinisk medicin -- Allmänmedicin (hsv//swe)
MEDICAL AND HEALTH SCIENCES -- Clinical Medicine -- General Practice (hsv//eng)
MEDICIN OCH HÄLSOVETENSKAP -- Hälsovetenskap -- Hälso- och sjukvårdsorganisation, hälsopolitik och hälsoekonomi (hsv//swe)
MEDICAL AND HEALTH SCIENCES -- Health Sciences -- Health Care Service and Management, Health Policy and Services and Health Economy (hsv//eng)
MEDICIN OCH HÄLSOVETENSKAP -- Hälsovetenskap -- Folkhälsovetenskap, global hälsa, socialmedicin och epidemiologi (hsv//swe)
MEDICAL AND HEALTH SCIENCES -- Health Sciences -- Public Health, Global Health, Social Medicine and Epidemiology (hsv//eng)
MEDICIN OCH HÄLSOVETENSKAP -- Hälsovetenskap (hsv//swe)
MEDICAL AND HEALTH SCIENCES -- Health Sciences (hsv//eng)

Nyckelord

Cross-cultural comparison
Heart defects
congenital
Multilevel analysis
Quality of life
Patient-reported outcomes
Healthcare system
Vårdvetenskap
Nursing science

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