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A multinational obs...
A multinational observational investigation of illness perceptions and quality of life among patients with a Fontan circulation
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- Holbein, Christina E. (author)
- Cincinnati Children's Hospital Medical Center, Cincinnati, Ohio, USA
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- Fogleman, Nicholas D. (author)
- Cincinnati Children's Hospital Medical Center, Cincinnati, Ohio, USA
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- Hommel, Kevin (author)
- Cincinnati Children's Hospital Medical Center, Cincinnati, Ohio, USA
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- Apers, Silke (author)
- KU Leuven, Leuven, Belgium
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- Rassart, Jessica (author)
- KU Leuven, Leuven, Belgium
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- Moons, Philip, 1968 (author)
- Gothenburg University,Göteborgs universitet,Institutionen för vårdvetenskap och hälsa,Institute of Health and Care Sciences
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- Luyckx, Koen (author)
- KU Leuven, Leuven, Belgium
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- Sluman, Maayke A. (author)
- Amsterdam Medical Center, Amsterdam, The Netherlands
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- Enomoto, Junko (author)
- Chiba Cardiovascular Center, Chiba, Japan
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- Johansson, Bengt (author)
- Umeå universitet,Kardiologi,Umeå University, Umeå, Sweden
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- Yang, Hsiao-Ling (author)
- National Taiwan University, Taipei, Taiwan
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- Dellborg, Mikael, 1954 (author)
- Gothenburg University,Göteborgs universitet,Institutionen för medicin, avdelningen för molekylär och klinisk medicin,Institute of Medicine, Department of Molecular and Clinical Medicine
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- Subramanyan, Raghavan (author)
- Frontier Lifeline Hospital, Dr. K. M. Cherian Heart Foundation, Chennai, India.
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- Jackson, Jamie L. (author)
- Nationwide Children's Hospital, Columbus, Ohio, USA
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- Budts, Werner (author)
- University Hospitals Leuven and Department of Cardiovascular Sciences, Leuven, Belgium.
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- Kovacs, Adrienne H. (author)
- Oregon Health & Science University, Portland, Oregon, USA
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- Morrison, Stacey (author)
- Cincinnati Children's Hospital Medical Center, Cincinnati, Ohio, USA
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- Tomlin, Martha (author)
- Cincinnati Children's Hospital Medical Center, Cincinnati, Ohio, USA
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- Gosney, Kathy (author)
- Cincinnati Children's Hospital Medical Center, Cincinnati, Ohio, USA
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- Soufi, Alexandra (author)
- Hospital Louis Pradel, Lyon, France
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- Eriksen, Katrine (author)
- Oslo University Hospital, Oslo, Norway
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- Thomet, Corina (author)
- KU Leuven, Leuven, Belgium
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- Berghammer, Malin, 1970- (author)
- Gothenburg University,Göteborgs universitet,Högskolan Väst,Avdelningen för omvårdnad - avancerad nivå,University of Gothenburg, Gothenburg, Sweden,Centrum för personcentrerad vård vid Göteborgs universitet (GPCC),University of Gothenburg Centre for person-centred care (GPCC)
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- Alday, Luis (author)
- Hospital de Niños, Córdoba, Argentina
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- Callus, Edward (author)
- IRCCS Policlinico San Donato Hospital, Milan, Italy
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- Fernandes, Susan M (author)
- Stanford University, Palo Alto, California, USA
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- Caruana, Maryanne (author)
- Mater Dei Hospital, Msida, Malta
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- Menahem, Samuel (author)
- Monash Medical Center, Melbourne, Australia
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- Cook, Stephen C. (author)
- Helen DeVos Children's Hospital, Grand Rapids, Michigan, USA
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- Rempel, Gwen R. (author)
- University of Alberta, Edmonton, Canada
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- White, Kamila (author)
- Washington University and Barnes Jewish Heart & Vascular Center, University of Missouri, Saint Louis, Missouri, USA
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- Khairy, Paul (author)
- Montreal Heart Institute, Montreal, Canada
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- Kutty, Shelby (author)
- Children's Hospital & Medical Center, Omaha, Nebraska, USA
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- Veldtman, Gruschen (author)
- Cincinnati Children's Hospital Medical Center, Cincinnati, Ohio, USA
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(creator_code:org_t)
- 2018-01-03
- 2018
- English.
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In: Congenital Heart Disease. - : Computers, Materials and Continua (Tech Science Press). - 1747-079X .- 1747-0803. ; 13:3, s. 392-400
- Related links:
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https://europepmc.or...
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https://urn.kb.se/re...
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https://doi.org/10.1...
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Abstract
Subject headings
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- Objective First, to compare QOL and illness perceptions between patients with a Fontan circulation and patients with anatomically simple defects (ie, atrial septal defects [ASD] or ventricular septal defects [VSD]). Second, to explore illness perceptions as a mediator of the association between congenital heart disease (CHD) diagnosis and QOL. Design Cross-sectional observational study. Setting Twenty-four cardiology centers from 15 countries across five continents. Patients Four hundred thirty-five adult patients with congenital heart disease (177 Fontan and 258 ASD/VSD) ages 18-83 years. Outcome Measures QOL and illness perceptions were assessed by the Satisfaction With Life Scale and the Brief Illness Perceptions Questionnaire, respectively. Results Patients with a Fontan circulation reported lower QOL (Wald Z = −3.59, p = <.001) and more negative perceptions of their CHD (Wald Z = −7.66, p < .001) compared with patients with ASD/VSD. After controlling for demographics, anxiety, depressive symptoms, and New York Heart Association functional class, path analyses revealed a significant mediation model, αβ = 0.15, p = .002, 95% CI = 0.06-0.25, such that CHD diagnosis was indirectly related to QOL through illness perceptions. Conclusions The Fontan sample’s more negative perceptions of CHD were likely a reflection of life with a more complex defect. Illness perceptions appear to account for unique differences in QOL between groups of varying CHD complexity. Psychosocial screening and interventions may be important treatment components for patients with CHD, particularly those with Fontan circulations.
Subject headings
- MEDICIN OCH HÄLSOVETENSKAP -- Hälsovetenskap -- Omvårdnad (hsv//swe)
- MEDICAL AND HEALTH SCIENCES -- Health Sciences -- Nursing (hsv//eng)
- MEDICIN OCH HÄLSOVETENSKAP -- Klinisk medicin -- Kardiologi (hsv//swe)
- MEDICAL AND HEALTH SCIENCES -- Clinical Medicine -- Cardiac and Cardiovascular Systems (hsv//eng)
- SAMHÄLLSVETENSKAP -- Psykologi (hsv//swe)
- SOCIAL SCIENCES -- Psychology (hsv//eng)
- MEDICIN OCH HÄLSOVETENSKAP -- Hälsovetenskap (hsv//swe)
- MEDICAL AND HEALTH SCIENCES -- Health Sciences (hsv//eng)
Keyword
- congenital heart disease
- Fontan circulation
- illness perceptions
- quality of life
- Vårdvetenskap
- Nursing science
- kardiologi
- congenital heart disease
- Fontan circulation
- illness perceptions
- quality of life
Publication and Content Type
- ref (subject category)
- art (subject category)
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- By the author/editor
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Holbein, Christi ...
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Fogleman, Nichol ...
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Hommel, Kevin
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Apers, Silke
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Rassart, Jessica
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Moons, Philip, 1 ...
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show more...
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Luyckx, Koen
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Sluman, Maayke A ...
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Enomoto, Junko
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Johansson, Bengt
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Yang, Hsiao-Ling
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Dellborg, Mikael ...
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Subramanyan, Rag ...
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Jackson, Jamie L ...
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Budts, Werner
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Kovacs, Adrienne ...
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Morrison, Stacey
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Tomlin, Martha
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Gosney, Kathy
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Soufi, Alexandra
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Eriksen, Katrine
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Thomet, Corina
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Berghammer, Mali ...
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Alday, Luis
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Callus, Edward
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Fernandes, Susan ...
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Caruana, Maryann ...
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Menahem, Samuel
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Cook, Stephen C.
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Rempel, Gwen R.
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White, Kamila
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Khairy, Paul
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Kutty, Shelby
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Veldtman, Grusch ...
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show less...
- About the subject
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- MEDICAL AND HEALTH SCIENCES
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MEDICAL AND HEAL ...
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and Health Sciences
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and Nursing
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- MEDICAL AND HEALTH SCIENCES
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MEDICAL AND HEAL ...
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and Clinical Medicin ...
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and Cardiac and Card ...
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- SOCIAL SCIENCES
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SOCIAL SCIENCES
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and Psychology
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- MEDICAL AND HEALTH SCIENCES
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MEDICAL AND HEAL ...
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and Health Sciences
- Articles in the publication
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Congenital Heart ...
- By the university
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University West
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Umeå University
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University of Gothenburg