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Patient-Reported Outcomes in Adults With Congenital Heart Disease Following Hospitalization (from APPROACH-IS).

Moons, Philip, 1968 (författare)
Gothenburg University,Göteborgs universitet,Centrum för personcentrerad vård vid Göteborgs universitet (GPCC),Institutionen för vårdvetenskap och hälsa,University of Gothenburg Centre for person-centred care (GPCC),Institute of Health and Care Sciences
Luyckx, Koen (författare)
KU Leuven School Psychology and Development in Context, KU Leuven, Leuven, Belgium (BEL); UNIBS, University of the Free State, Bloemfontein, South Africa (ZAF)
Thomet, Corina (författare)
KU Leuven Department of Public Health and Primary Care, KU Leuven, Leuven, Belgium (BEL); Center for Congenital Heart Disease, Department of Cardiology, Inselspital - Bern University Hospital, University of Bern, Bern, Switzerland (CHE)
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Budts, Werner (författare)
Division of Congenital and Structural Cardiology, University Hospitals Leuven, Leuven, Belgium (BEL); KU Leuven Department of Cardiovascular Sciences, KU Leuven, Leuven, Belgium (BEL)
Enomoto, Junko (författare)
Toyo University, Department of Education, Tokyo, Japan (JPN)
Sluman, Maayke A (författare)
University of Amsterdam, Coronel Institute of Occupational Health, Amsterdam UMC, Amsterdam, the Netherlands (NLD); Department of Cardiology, Jeroen Bosch Hospital, 's Hertogenbosch, the Netherlands (NLD)
Wang, Jou-Kou (författare)
National Taiwan University Hospital, Department of Pediatrics, Taipei, Taiwan (TWN)
Jackson, Jamie L (författare)
Center for Biobehavioral Health, Nationwide Children's Hospital, OH, Columbus, United States
Khairy, Paul (författare)
Université de Montréal, Adult Congenital Heart Center, Montreal Heart Institute, Montreal, Canada (CAN)
Cook, Stephen C (författare)
Adult Congenital Heart Disease Center, Helen DeVos Children's Hospital, Grand Rapids, Michigan (USA),Adult Congenital Heart Disease Center, Helen DeVos Children's Hospital, MI, Grand Rapids, United States
Chidambarathanu, Shanthi (författare)
Pediatric Cardiology, Frontier Lifeline Hospital (Dr. K. M. Cherian Heart Foundation), Chennai, India (IND)
Alday, Luis (författare)
Division of Cardiology, Hospital de Niños, Córdoba, Argentina (ARG)
Oechslin, Erwin (författare)
University of Toronto, Toronto Congenital Cardiac Center for Adults, Peter Munk Cardiac Center, University Health Network, Toronto, Canada (CAN)
Eriksen, Katrine (författare)
Adult Congenital Heart Disease Center, Oslo University Hospital - Rikshospitalet, Oslo, Norway (NOR)
Dellborg, Mikael, 1954 (författare)
Gothenburg University,Göteborgs universitet,Institutionen för medicin,Centrum för personcentrerad vård vid Göteborgs universitet (GPCC),Institute of Medicine,University of Gothenburg Centre for person-centred care (GPCC)
Berghammer, Malin, 1970- (författare)
Högskolan Väst,Avdelningen för omvårdnad - avancerad nivå,Department of Health Sciences, University West, Trollhättan, Sweden; Department of Paediatrics, Queen Silvia Children's Hospital, Sahlgrenska University Hospital, Gothenburg, Sweden,LOV
Johansson, Bengt (författare)
Umeå universitet,Avdelningen för medicin,Umeå University, Department of Public Health and Clinical Medicine,Umeå, Sweden
Mackie, Andrew S (författare)
University of Alberta, Division of Cardiology, Stollery Children's Hospital, Edmonton, Canada (CAN)
Menahem, Samuel (författare)
Monash University, Monash Heart, Monash Medical Centre, Melbourne, Australia (AUS)
Caruana, Maryanne (författare)
Department of Cardiology, Mater Dei Hospital, Birkirkara Bypass, Malta (MLT)
Veldtman, Gruschen (författare)
Adult Congenital Heart Disease Center, Cincinnati Children's Hospital Medical Center, OH, Cincinnati, United States
Soufi, Alexandra (författare)
Department of Cardiac Rehabilitation, Médipôle Lyon-Villeurbanne, Lyon, France (FRA)
Fernandes, Susan M (författare)
Adult Congenital Heart Program at Stanford, Lucile Packard Children's Hospital and Stanford Health Care, Palo Alto, California (USA),Adult Congenital Heart Program at Stanford, Lucile Packard Children's Hospital and Stanford Health Care, CA, Palo Alto, United States
White, Kamila (författare)
Washington University, Adult Congenital Heart Disease Center (USA); University of Missouri, Barnes Jewish Heart & Vascular Center, Saint Louis, Missouri (USA),Adult Congenital Heart Disease Center, Washington University and Barnes Jewish Heart & Vascular Center, University of Missouri, MO, Saint Louis, United States
Callus, Edward (författare)
Clinical Psychology Service, IRCCS Policlinico San Donato, Milan, Italy (ITA); Università degli Studi di Milano, Department of Biomedical Sciences for Health, Milan, Italy (ITA)
Kutty, Shelby (författare)
University of Nebraska, Adult Congenital Heart Disease Center Medical Center/Children's Hospital and Medical Center, Omaha, Nebraska (USA); Taussig Heart Center, Johns Hopkins School of Medicine, Baltimore, Maryland (USA),Adult Congenital Heart Disease Center University of Nebraska Medical Center/Children's Hospital and Medical Center, NE, Omaha, United States; Taussig Heart Center, Johns Hopkins School of Medicine, MD, Baltimore, United States
Apers, Silke (författare)
KU Leuven Department of Public Health and Primary Care, KU Leuven, Leuven, Belgium (BEL)
Kovacs, Adrienne H (författare)
University of Toronto, Toronto Congenital Cardiac Center for Adults, Peter Munk Cardiac Center, University Health Network, Toronto, Canada (CAN); Oregon Health & Science University, Knight Cardiovascular Institute, Portland, Oregon (USA),Toronto Congenital Cardiac Center for Adults, Peter Munk Cardiac Center, University Health Network, University of Toronto, Toronto, Canada; Knight Cardiovascular Institute, Oregon Health & Science University, OR, Portland, United States
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 (creator_code:org_t)
Elsevier BV, 2021
2021
Engelska.
Ingår i: American Journal of Cardiology. - : Elsevier BV. - 0002-9149 .- 1879-1913. ; 145, s. 135-142
Relaterad länk:
https://doi.org/10.1...
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http://www.ajconline...
https://umu.diva-por... (primary) (Raw object)
https://urn.kb.se/re...
https://doi.org/10.1...
https://urn.kb.se/re...
https://gup.ub.gu.se...
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  • Tidskriftsartikel (refereegranskat)
Abstract Ämnesord
Stäng  
  • In this international study, we (1) compared patient-reported outcomes (PROs) in adults with congenital heart disease (CHD) who had versus had not been hospitalized during the previous 12 month, (2) contrasted PROs in patients who had been hospitalized for cardiac surgery versus nonsurgical reasons, (3) assessed the magnitude of differences between the groups (i.e., effect sizes), and (4) explored differential effect sizes between countries. APPROACH-IS was a cross-sectional, observational study that enrolled 4,028 patients from 15 countries (median age 32 years; 53% females). Self-report questionnaires were administered to measure PROs: health status; anxiety and depression; and quality of life. Overall, 668 patients (17%) had been hospitalized in the previous 12 months. These patients reported poorer outcomes on all PROs, with the exception of anxiety. Patients who underwent cardiac surgery demonstrated a better quality of life compared with those who were hospitalized for nonsurgical reasons. For significant differences, the effect sizes were small, whereas they were negligible in nonsignificant comparisons. Substantial intercountry differences were observed. For various PROs, moderate to large effect sizes were found comparing different countries. In conclusion, adults with CHD who had undergone hospitalization in the previous year had poorer PROs than those who were medically stable. Researchers ought to account for the timing of recruitment when conducting PRO research as hospitalization can impact results.

Ämnesord

MEDICIN OCH HÄLSOVETENSKAP  -- Klinisk medicin -- Kardiologi (hsv//swe)
MEDICAL AND HEALTH SCIENCES  -- Clinical Medicine -- Cardiac and Cardiovascular Systems (hsv//eng)
MEDICIN OCH HÄLSOVETENSKAP  -- Hälsovetenskap (hsv//swe)
MEDICAL AND HEALTH SCIENCES  -- Health Sciences (hsv//eng)

Nyckelord

patient-reported outcomes
PROs
congenital heart disease
CHD
Vårdvetenskap
Nursing science

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