Phenotypes of adults with congenital heart disease around the globe: a cluster analysis.

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Phenotypes of adults with congenital heart disease around the globe : a cluster analysis.

Callus, Edward (författare): Clinical Psychology Service, IRCCS Policlinico San Donato, Milan, Italy (ITA); Università degli Studi di Milano, Department of Biomedical Sciences for Health, Milan, Italy (ITA)

Pagliuca, Silvana (författare): Clinical Psychology Service, IRCCS Policlinico San Donato, Milan, Italy (ITA)

Boveri, Sara (författare): Scientific Directorate, IRCCS Policlinico San Donato, Milan, Italy (ITA)

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Ambrogi, Federico (författare): University of Milan, Department of Clinical Sciences and Community Health, Milan, Italy (ITA)

Luyckx, Koen (författare): KU Leuven School Psychology and Development in Context, KU Leuven, Leuven, Belgium (BEL); UNIBS, University of the Free State, Bloemfontein, South Africa (ZAF)

Kovacs, Adrienne H (författare): University of Toronto, Toronto Congenital Cardiac Center for Adults, Peter Munk Cardiac Center, University Health Network, Toronto, Canada (CAN); Oregon Health & Science University, Knight Cardiovascular Institute, Portland, Oregon (USA)

Apers, Silke (författare): KU Leuven Department of Public Health and Primary Care, KU Leuven, Leuven, Belgium (BEL)

Budts, Werner (författare): Division of Congenital and Structural Cardiology, University Hospitals Leuven, Leuven, Belgium (BEL); KU Leuven Department of Cardiovascular Sciences, KU Leuven, Leuven, Belgium (BEL)

Enomoto, Junko (författare): Toyo University, Department of Education, Tokyo, Japan (JPN)

Sluman, Maayke A (författare): University of Amsterdam, Coronel Institute of Occupational Health, Amsterdam UMC, Amsterdam, the Netherlands (NLD); Department of Cardiology, Jeroen Bosch Hospital, 's Hertogenbosch, the Netherlands (NLD)

Wang, Jou-Kou (författare): National Taiwan University Hospital, Department of Pediatrics, Taipei, Taiwan (TWN)

Jackson, Jamie L (författare): Center for Biobehavioral Health, Nationwide Children's Hospital, Columbus, Ohio (USA)

Khairy, Paul (författare): Université de Montréal, Adult Congenital Heart Center, Montreal Heart Institute, Montreal, Canada (CAN)

Cook, Stephen C (författare): Adult Congenital Heart Disease Center, Helen DeVos Children's Hospital, Grand Rapids, Michigan (USA)

Chidambarathanu, Shanthi (författare): Pediatric Cardiology, Frontier Lifeline Hospital (Dr. K. M. Cherian Heart Foundation), Chennai, India (IND)

Alday, Luis (författare): Division of Cardiology, Hospital de Niños, Córdoba, Argentina (ARG)

Eriksen, Katrine (författare): Adult Congenital Heart Disease Center, Oslo University Hospital - Rikshospitalet, Oslo, Norway (NOR)

Dellborg, Mikael, 1954 (författare): Gothenburg University,Göteborgs universitet,Institutionen för medicin,Centrum för personcentrerad vård vid Göteborgs universitet (GPCC),Institute of Medicine,University of Gothenburg Centre for person-centred care (GPCC)

Berghammer, Malin, 1970- (författare): Gothenburg University,Göteborgs universitet,Högskolan Väst,Avdelningen för omvårdnad - avancerad nivå,University of Gothenburg, Centre for Person-Centred Care (GPCC), Gothenburg, Sweden; Department of Paediatrics, Queen Silvia Children's Hospital, Sahlgrenska University Hospital, Gothenburg, Sweden,LOV,Centrum för personcentrerad vård vid Göteborgs universitet (GPCC),University of Gothenburg Centre for person-centred care (GPCC)

Johansson, Bengt (författare): Umeå universitet,Avdelningen för medicin,Umeå University, Department of Public Health and Clinical Medicine,Umeå, Sweden

Mackie, Andrew S (författare): University of Alberta, Division of Cardiology, Stollery Children's Hospital, Edmonton, Canada (CAN)

Menahem, Samuel (författare): Monash University, Monash Heart, Monash Medical Centre, Melbourne, Australia (AUS)

Caruana, Maryanne (författare): Department of Cardiology, Mater Dei Hospital, Birkirkara Bypass, Malta (MLT)

Veldtman, Gruschen (författare): Adult Congenital Heart Disease Center, Cincinnati Children's Hospital Medical Center, Cincinnati, OH, (USA)

Soufi, Alexandra (författare): Department of Cardiac Rehabilitation, Médipôle Lyon-Villeurbanne, Lyon, France (FRA)

Fernandes, Susan M (författare): Adult Congenital Heart Program at Stanford, Lucile Packard Children's Hospital and Stanford Health Care, Palo Alto, California (USA)

White, Kamila (författare): Washington University, Adult Congenital Heart Disease Center (USA); University of Missouri, Barnes Jewish Heart & Vascular Center, Saint Louis, Missouri (USA)

Kutty, Shelby (författare): University of Nebraska, Adult Congenital Heart Disease Center Medical Center/Children's Hospital and Medical Center, Omaha, Nebraska (USA); Taussig Heart Center, Johns Hopkins School of Medicine, Baltimore, Maryland (USA)

Moons, Philip, 1968 (författare): Gothenburg University,Göteborgs universitet,Centrum för personcentrerad vård vid Göteborgs universitet (GPCC),Institutionen för vårdvetenskap och hälsa,University of Gothenburg Centre for person-centred care (GPCC),Institute of Health and Care Sciences

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2021-02-10
2021
Engelska.
Ingår i: Health and Quality of Life Outcomes. - : Springer Science and Business Media LLC. - 1477-7525 .- 1477-7525. ; 19:1

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Tidskriftsartikel (refereegranskat)

Abstract Ämnesord

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OBJECTIVE: To derive cluster analysis-based groupings for adults with congenital heart disease (ACHD) when it comes to perceived health, psychological functioning, health behaviours and quality of life (QoL).METHODS: This study was part of a larger worldwide multicentre study called APPROACH-IS; a cross sectional study which recruited 4028 patients (2013-2015) from 15 participating countries. A hierarchical cluster analysis was performed using Ward's method in order to group patients with similar psychological characteristics, which were defined by taking into consideration the scores of the following tests: Sense Of Coherence, Health Behavior Scale (physical exercise score), Hospital Anxiety Depression Scale, Illness Perception Questionnaire, Satisfaction with Life Scale and the Visual Analogue Scale scores of the EQ-5D perceived health scale and a linear analogue scale (0-100) measuring QoL.RESULTS: 3768 patients with complete data were divided into 3 clusters. The first and second clusters represented 89.6% of patients in the analysis who reported a good health perception, QoL, psychological functioning and the greatest amount of exercise. Patients in the third cluster reported substantially lower scores in all PROs. This cluster was characterised by a significantly higher proportion of females, a higher average age the lowest education level, more complex forms of congenital heart disease and more medical comorbidities.CONCLUSIONS: This study suggests that certain demographic and clinical characteristics may be linked to less favourable health perception, quality of life, psychological functioning, and health behaviours in ACHD. This information may be used to improve psychosocial screening and the timely provision of psychosocial care.

Ämnesord

MEDICIN OCH HÄLSOVETENSKAP -- Klinisk medicin -- Kardiologi (hsv//swe)
MEDICAL AND HEALTH SCIENCES -- Clinical Medicine -- Cardiac and Cardiovascular Systems (hsv//eng)
SAMHÄLLSVETENSKAP -- Psykologi (hsv//swe)
SOCIAL SCIENCES -- Psychology (hsv//eng)
MEDICIN OCH HÄLSOVETENSKAP -- Hälsovetenskap (hsv//swe)
MEDICAL AND HEALTH SCIENCES -- Health Sciences (hsv//eng)

Nyckelord

Adults with congenital heart disease
Cluster analysis
Health behaviours
Perceived health
Psychological functioning
Quality of life
Vårdvetenskap
Nursing science

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MEDICIN OCH HÄLSOVETENSKAP: MEDICIN OCH HÄLS ...; och Klinisk medicin; och Kardiologi

SAMHÄLLSVETENSKAP: SAMHÄLLSVETENSKA ...; och Psykologi

MEDICIN OCH HÄLSOVETENSKAP: MEDICIN OCH HÄLS ...; och Hälsovetenskap

Artiklar i publikationen: Health and Quali ...

Av lärosätet: Högskolan Väst; Umeå universitet; Göteborgs universitet

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