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Experiences from pa...
Experiences from patients in mental healthcare accessing their electronic health records : Results from a cross-national survey in Estonia, Finland, Norway, and Sweden
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- Fagerlund, A. J. (author)
- Norwegian Centre for E-health Research, University Hospital of North Norway, Tromsø, Norway
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- Bärkås, Annika (author)
- Uppsala universitet,E-hälsa och hälsodata
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- Kharko, Anna (author)
- Uppsala universitet,E-hälsa och hälsodata
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- Blease, Charlotte (author)
- Uppsala universitet,E-hälsa och hälsodata
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- Hagström, Josefin (author)
- Uppsala universitet,E-hälsa och hälsodata
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- Huvila, Isto, Professor, 1976- (author)
- Uppsala universitet,Institutionen för ABM
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- Hörhammer, I. (author)
- Department of Computer Science, Aalto University, Espoo, Finland
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- Kane, Bridget (author)
- Uppsala universitet,Karlstads universitet,Handelshögskolan (from 2013),Participatory eHealth and Health Data Research Group, Department of Women's and Children's Health, Uppsala University, Uppsala, Sweden; Business School, Karlstad University, Karlstad, Sweden; Centre for Health Policy and Management, Trinity College Dublin, Dublin, Ireland,E-hälsa och hälsodata
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- Kristiansen, E. (author)
- Norwegian Centre for E-health Research, University Hospital of North Norway, Tromsø, Norway
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- Kujala, S. (author)
- Department of Computer Science, Aalto University, Espoo, Finland
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- Moll, Jonas, 1982- (author)
- Örebro universitet,Handelshögskolan vid Örebro Universitet,Centre for Empirical Research on Information systems
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- Rexhepi, Hanife, 1984- (author)
- Högskolan i Skövde,Institutionen för informationsteknologi,Forskningsmiljön Informationsteknologi,Information Systems,School of Informatics, University of Skövde, Skövde, Sweden
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- Scandurra, Isabella, 1973- (author)
- Örebro universitet,Handelshögskolan vid Örebro Universitet,Centre for Empirical Research on Information systems
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- Simola, S. (author)
- Department of Computer Science, Aalto University, Espoo, Finland
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- Soone, H. (author)
- E-Medicine Centre, Department of Health Technologies, Tallinn University of Technology, Tallinn, Estonia
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- Wang, B. (author)
- Norwegian Centre for E-health Research, University Hospital of North Norway, Tromsø, Norway
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- Åhlfeldt, Rose-Mharie, 1960- (author)
- Högskolan i Skövde,Institutionen för informationsteknologi,Forskningsmiljön Informationsteknologi,Information Systems,School of Informatics, University of Skövde, Skövde, Sweden
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- Hägglund, Maria, Lektor, 1975- (author)
- Uppsala universitet,E-hälsa och hälsodata
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- Johansen, M. A. (author)
- Norwegian Centre for E-health Research, University Hospital of North Norway, Tromsø, Norway
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(creator_code:org_t)
- BioMed Central (BMC), 2024
- 2024
- English.
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In: BMC Psychiatry. - : BioMed Central (BMC). - 1471-244X. ; 24:1
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https://urn.kb.se/re...
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https://doi.org/10.1...
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https://urn.kb.se/re...
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Abstract
Subject headings
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- Background: Patients’ online record access (ORA) enables patients to read and use their health data through online digital solutions. One such solution, patient-accessible electronic health records (PAEHRs) have been implemented in Estonia, Finland, Norway, and Sweden. While accumulated research has pointed to many potential benefits of ORA, its application in mental healthcare (MHC) continues to be contested. The present study aimed to describe MHC users’ overall experiences with national PAEHR services. Methods: The study analysed the MHC-part of the NORDeHEALTH 2022 Patient Survey, a large-scale multi-country survey. The survey consisted of 45 questions, including demographic variables and questions related to users’ experiences with ORA. We focused on the questions concerning positive experiences (benefits), negative experiences (errors, omissions, offence), and breaches of security and privacy. Participants were included in this analysis if they reported receiving mental healthcare within the past two years. Descriptive statistics were used to summarise data, and percentages were calculated on available data. Results: 6,157 respondents were included. In line with previous research, almost half (45%) reported very positive experiences with ORA. A majority in each country also reported improved trust (at least 69%) and communication (at least 71%) with healthcare providers. One-third (29.5%) reported very negative experiences with ORA. In total, half of the respondents (47.9%) found errors and a third (35.5%) found omissions in their medical documentation. One-third (34.8%) of all respondents also reported being offended by the content. When errors or omissions were identified, about half (46.5%) reported that they took no action. There seems to be differences in how patients experience errors, omissions, and missing information between the countries. A small proportion reported instances where family or others demanded access to their records (3.1%), and about one in ten (10.7%) noted that unauthorised individuals had seen their health information. Conclusions: Overall, MHC patients reported more positive experiences than negative, but a large portion of respondents reported problems with the content of the PAEHR. Further research on best practice in implementation of ORA in MHC is therefore needed, to ensure that all patients may reap the benefits while limiting potential negative consequences.
Subject headings
- MEDICIN OCH HÄLSOVETENSKAP -- Hälsovetenskap (hsv//swe)
- MEDICAL AND HEALTH SCIENCES -- Health Sciences (hsv//eng)
- NATURVETENSKAP -- Data- och informationsvetenskap -- Systemvetenskap, informationssystem och informatik (hsv//swe)
- NATURAL SCIENCES -- Computer and Information Sciences -- Information Systems (hsv//eng)
- MEDICIN OCH HÄLSOVETENSKAP -- Hälsovetenskap -- Hälso- och sjukvårdsorganisation, hälsopolitik och hälsoekonomi (hsv//swe)
- MEDICAL AND HEALTH SCIENCES -- Health Sciences -- Health Care Service and Management, Health Policy and Services and Health Economy (hsv//eng)
Keyword
- EHRs
- Electronic health records
- Mental healthcare
- Online record access
- ORA
- PAEHR
- Patient-accessible electronic health records
- Adolescent
- Adult
- Aged
- Estonia
- Female
- Finland
- Humans
- Male
- Mental Health Services
- Middle Aged
- Norway
- Patient Access to Records
- Surveys and Questionnaires
- Sweden
- Young Adult
- article
- best practice
- controlled study
- electronic health record
- health care personnel
- human
- major clinical study
- major histocompatibility complex
- medical documentation
- medical information
- privacy
- mental health service
- patient right
- questionnaire
- Information Systems
- Informatik
- Information Systems
- Medical Informatics
Publication and Content Type
- ref (subject category)
- art (subject category)
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To the university's database
- By the author/editor
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Fagerlund, A. J.
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Bärkås, Annika
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Kharko, Anna
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Blease, Charlott ...
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Hagström, Josefi ...
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Huvila, Isto, Pr ...
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show more...
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Hörhammer, I.
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Kane, Bridget
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Kristiansen, E.
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Kujala, S.
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Moll, Jonas, 198 ...
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Rexhepi, Hanife, ...
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Scandurra, Isabe ...
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Simola, S.
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Soone, H.
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Wang, B.
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Åhlfeldt, Rose-M ...
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Hägglund, Maria, ...
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Johansen, M. A.
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- About the subject
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- MEDICAL AND HEALTH SCIENCES
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MEDICAL AND HEAL ...
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and Health Sciences
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- NATURAL SCIENCES
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NATURAL SCIENCES
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and Computer and Inf ...
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and Information Syst ...
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- MEDICAL AND HEALTH SCIENCES
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MEDICAL AND HEAL ...
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and Health Sciences
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and Health Care Serv ...
- Articles in the publication
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BMC Psychiatry
- By the university
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Karlstad University
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University of Skövde
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Örebro University
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Uppsala University