Perceptions of sleep quality and stress by parents of children enrolled in hospital organized home-care

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Angelhoff, Charlotte,1974-Linköpings universitet,Institutionen för samhälls- och välfärdsstudier,Filosofiska fakulteten (author)

Perceptions of sleep quality and stress by parents of children enrolled in hospital organized home-care

Article/chapterEnglish2013

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2013
printrdacarrier

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LIBRIS-ID:oai:DiVA.org:liu-106053
https://urn.kb.se/resolve?urn=urn:nbn:se:liu:diva-106053URI

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Language:English
Summary in:English

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SwePubSwePub

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Subject category:vet swepub-contenttype
Subject category:kon swepub-publicationtype

Notes

IntroductionCaring for a sick child creates much greater demands for parents than those associated with raising a healthy child. Parents of chronically ill children reports higher levels of parental stress as a consequence of the substantial social, emotional and personal demands associated with caring. Sleep quality is an important aspect of wellbeing and is strongly related to stress and quality of life. In some Swedish counties families are offered hospital organized home-care for sick children. Caring for a child at home gives the family the opportunity to be together in an environment they know well and where they can feel comfortable and secure. On the other hand it includes several sleep disturbances during the night which affects the ability to handle the situation and support their child. No other study is found about how parents sleep when their child is enrolled in hospital organized home-care. AimTo explore parents’ perceptions of sleep quality and stress when they sleep at home with a child enrolled in hospital organized home-care. MaterialFifteen parents (11 mothers and 4 fathers) with children enrolled in hospital organized home-care from one university hospital and one general hospital in South-eastern Sweden were included. The children ranged in age 0-12 years. MethodParents were interviewed with open-ended questions. Data was analysed with a phenomenographic method according to Marton and Both. ResultsFour descriptive categories in the phenomenon of parents’ perceptions of sleep quality and stress when they sleep at home with a child enrolled in hospital organized home-care were identified; Routines helps to manage the situation, Time for oneself and the partner, Feelings of isolation and Need of support ConclusionSleep is important for the parents in several aspects. They are in a stressful situation with high demands both from the society and from themselves and there is often a lack of support from relatives and friends. Nurses need to acknowledge and promote parents’ sleep when they care for their sick children at home and support them in the caregiving.

Subject headings and genre

MEDICIN OCH HÄLSOVETENSKAP Hälsovetenskap Omvårdnad hsv//swe
MEDICAL AND HEALTH SCIENCES Health Sciences Nursing hsv//eng
Parents
Sleep
Home Care Services
Child
Caregiver
Nursing

Added entries (persons, corporate bodies, meetings, titles ...)

Edéll-Gustafsson, UllaLinköpings universitet,Avdelningen för omvårdnad,Hälsouniversitetet(Swepub:liu)ulled06 (author)
Mörelius, EvalotteÖstergötlands Läns Landsting,Linköpings universitet,Hälsa, Aktivitet, Vård (HAV),Hälsouniversitetet,Barn- och ungdomskliniken i Linköping(Swepub:liu)evamo96 (author)
Linköpings universitetInstitutionen för samhälls- och välfärdsstudier (creator_code:org_t)

Related titles

In:Nordic Advances in Health Care Sciences Research, Lund, 2013, s. 56-56

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http://pure.ltu.se/portal/files/44165923/Abstractbook_2013.pdfLink to publication
https://urn.kb.se/resolve?urn=urn:nbn:se:liu:diva-106053

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