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- Hjelmfors, LisaLinköpings universitet,Hälsa, Aktivitet, Vård (HAV),Medicinska fakulteten,Department of Social and Welfare Studies (ISV), Faculty of Health Sciences, Linköping University, Sweden,University of Groningen, Netherlands (author)
Patient-Nurse Communication about Prognosis and End-of-Life Care
- Article/chapterEnglish2015
Publisher, publication year, extent ...
- MARY ANN LIEBERT, INC,2015
- printrdacarrier
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- LIBRIS-ID:oai:DiVA.org:liu-122208
- https://urn.kb.se/resolve?urn=urn:nbn:se:liu:diva-122208URI
- https://doi.org/10.1089/jpm.2015.0037DOI
- https://urn.kb.se/resolve?urn=urn:nbn:se:hj:diva-27509URI
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- Language:English
- Summary in:English
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- Funding Agencies|Heart and Lung Foundation; King Gustaf V and Queen Victorias Foundation of the Freemasons
- Background: Although several studies advise that discussions about prognosis and end-of-life care should be held throughout the whole heart failure (HF) trajectory, data is lacking on the prevalence and practice of such discussions in HF care. Objective: The study objective was to explore how often and why HF nurses in outpatient clinics discuss prognosis and end-of-life care in the context of patient education. Methods: This was a descriptive and comparative study. Participants were HF nurses from Swedish and Dutch HF outpatient clinics. Measurements were taken via a survey for both quantitative and qualitative data. Additional data was collected via open-ended questions and analyzed with content analysis. Results: Two hundred seventy-nine nurses registered 1809 patient conversations using a checklist. Prognosis and end-of-life care were among the least frequently discussed topics, whereas symptoms of HF was discussed most often. Prognosis was discussed with 687 patients (38%), and end-of-life care was discussed with 179 patients (10%). Prognosis and end-of-life care were discussed more frequently in The Netherlands than in Sweden (41% versus 34%, pless than0.001, 13% versus 4%, pless than0.001). The nurses did not always recognize prognosis and end-of-life care discussions as a part of their professional role. Conclusions: Currently, patient-nurse communication about prognosis and end-of-life care does not seem to be routine in patient education in HF clinics, and these discussions could be included more often. The reasons for nurses to discuss these topics were related to clinical routines, the patients situation, and professional responsibilities. To improve future care, communication with patients needs to be further developed.
Subject headings and genre
- SAMHÄLLSVETENSKAP Sociologi hsv//swe
- SOCIAL SCIENCES Sociology hsv//eng
- MEDICIN OCH HÄLSOVETENSKAP Klinisk medicin hsv//swe
- MEDICAL AND HEALTH SCIENCES Clinical Medicine hsv//eng
Added entries (persons, corporate bodies, meetings, titles ...)
- van der Wal, Martje H. L.Linköpings universitet,Hälsa, Aktivitet, Vård (HAV),Medicinska fakulteten,University of Groningen, Netherlands (author)
- Friedrichsen, MariaLinköpings universitet,Hälsa, Aktivitet, Vård (HAV),Medicinska fakulteten,Region Östergötland, Palliativt kompetenscentrum,Department of Social and Welfare Studies (ISV), Faculty of Health Sciences, Linköping University, Sweden(Swepub:liu)marfr59 (author)
- Mårtensson, JanJönköping University,HHJ, Avdelningen för omvårdnad,HHJ. ADULT,Jonköping University, Sweden(Swepub:hj)maja (author)
- Strömberg, AnnaLinköpings universitet,Avdelningen för omvårdnad,Medicinska fakulteten,Region Östergötland, Kardiologiska kliniken US,Department of Medical and Health Sciences, Division of Nursing, Faculty of Health Sciences, Department of Cardiology, Linköping University, Sweden(Swepub:liu)annst40 (author)
- Jaarsma, TinyLinköpings universitet,Hälsa, Aktivitet, Vård (HAV),Medicinska fakulteten,Department of Social and Welfare Studies (ISV), Faculty of Health Sciences, Linköping University, Sweden(Swepub:liu)tinja77 (author)
- Linköpings universitetHälsa, Aktivitet, Vård (HAV) (creator_code:org_t)
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- In:Journal of Palliative Medicine: MARY ANN LIEBERT, INC18:10, s. 865-8711096-62181557-7740
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