SwePub
Sök i LIBRIS databas

  Utökad sökning

WFRF:(Serra Juhe Clara)
 

Sökning: WFRF:(Serra Juhe Clara) > Complementarity bet...

  • Paneque, MilenaUniversity of Porto, Portugal,Univ Porto, i3S, Oporto, Portugal.;Univ Porto, IBMC, Oporto, Portugal.;Univ Porto, CGPP, Rua Julio Amaral de Carvalho 45, P-4200135 Oporto, Portugal. (författare)

Complementarity between medical geneticists and genetic counsellors: its added value in genetic services in Europe

  • Artikel/kapitelEngelska2017

Förlag, utgivningsår, omfång ...

  • 2017-05-17
  • NATURE PUBLISHING GROUP,2017
  • printrdacarrier

Nummerbeteckningar

  • LIBRIS-ID:oai:DiVA.org:liu-139534
  • https://urn.kb.se/resolve?urn=urn:nbn:se:liu:diva-139534URI
  • https://doi.org/10.1038/ejhg.2017.76DOI
  • http://kipublications.ki.se/Default.aspx?queryparsed=id:136211642URI
  • https://urn.kb.se/resolve?urn=urn:nbn:se:uu:diva-329900URI

Kompletterande språkuppgifter

  • Språk:engelska
  • Sammanfattning på:engelska

Ingår i deldatabas

Klassifikation

  • Ämneskategori:ref swepub-contenttype
  • Ämneskategori:art swepub-publicationtype

Anmärkningar

  • Funding Agencies|Department of Clinical Genetics, and Department of Clinical and Experimental Medicine, Linkoping University, Linkoping, Sweden
  • Clinical genetic services have progressed significantly the last few decades. This has led to the need for non-medical health-care professionals working as genetic counsellors in Europe and worldwide. However, there is no unified approach to genetic counsellors role in health-care services in Europe, as in most countries the profession is still emerging and the educational backgrounds diverge noticeably, within and between countries. This qualitative study aims to describe the potential added value of genetic counsellors in clinical genetics teams and to explore their tasks and responsibilities in different European countries. A total of 143 participants providing genetic counselling in Europe at the time of the survey responded. The results show differences in activities of genetic counsellors, although there is a wide range of roles, which are similar. The ability to establish a quality relationship with consultands was frequently mentioned as one of the strengths of genetic counsellors, as well as a patient-centred approach. It is believed that genetic counsellors add a more holistic approach of psychosocial and familial dimensions of genetic concerns to the multidisciplinary teams. This study provides examples of successful integration of genetic counsellors in teams, as complementariness with medical geneticist became clear in several cases. Although the added value of genetic counsellors was manifested, professional recognition of genetic counsellors across Europe is still needed in order to support the quality of patients care and safety of practice.

Ämnesord och genrebeteckningar

Biuppslag (personer, institutioner, konferenser, titlar ...)

  • Serra-Juhe, ClaraUniversity of Pompeu Fabra, Spain; Institute Salud Carlos III, Spain,Univ Pompeu Fabra, Hosp Mar Res Inst IMIM, Genet Unit, Barcelona, Spain.;Inst Salud Carlos III, CIBERER, Madrid, Spain. (författare)
  • Pestoff, RebeckaLinköpings universitet,Avdelningen för cellbiologi,Medicinska fakulteten,Linkoping Univ Hosp, Dept Clin Genet, Linkoping, Sweden.;Linkoping Univ, Dept Clin & Expt Med, Linkoping, Sweden.(Swepub:liu)rebpe32 (författare)
  • Cordier, ChristopheKarolinska Institutet,Synlab Genet, Dept Genet, Lausanne, Switzerland. (författare)
  • Silva, JoaoUniversity of Porto, Portugal,Univ Porto, i3S, Oporto, Portugal.;Univ Porto, IBMC, Oporto, Portugal.;Univ Porto, CGPP, Rua Julio Amaral de Carvalho 45, P-4200135 Oporto, Portugal. (författare)
  • Moldovan, RamonaBabes Bolyai University, Romania,Babes Bolyai Univ, Dept Psychol, Cluj Napoca, Romania. (författare)
  • Ingvoldstad, CharlottaUppsala universitet,Livsstil och rehabilitering vid långvarig sjukdom,Obstetrisk och reproduktiv hälsoforskning,Karolinska Inst, Dept Clin Sci Intervent & Technol, Stockholm, Sweden.(Swepub:uu)cin24816 (författare)
  • University of Porto, PortugalUniv Porto, i3S, Oporto, Portugal.;Univ Porto, IBMC, Oporto, Portugal.;Univ Porto, CGPP, Rua Julio Amaral de Carvalho 45, P-4200135 Oporto, Portugal. (creator_code:org_t)

Sammanhörande titlar

  • Ingår i:European Journal of Human Genetics: NATURE PUBLISHING GROUP25:8, s. 918-9231018-48131476-5438

Internetlänk

Hitta via bibliotek

Till lärosätets databas

Kungliga biblioteket hanterar dina personuppgifter i enlighet med EU:s dataskyddsförordning (2018), GDPR. Läs mer om hur det funkar här.
Så här hanterar KB dina uppgifter vid användning av denna tjänst.

 
pil uppåt Stäng

Kopiera och spara länken för att återkomma till aktuell vy