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Defining a core out...
Defining a core outcome set for adolescent and young adult patients with a spinal deformity A collaborative effort for the Nordic Spine Surgery Registries
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- De Kleuver, Marinus (författare)
- Radboud University of Nijmegen, Netherlands
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- Faraj, Sayf S. A. (författare)
- Vrije University of Amsterdam, Netherlands
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- Holewijn, Roderick M. (författare)
- Vrije University of Amsterdam, Netherlands
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- Germscheid, Niccole M. (författare)
- AOSpine Int, Switzerland
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- Adobor, Raphael D. (författare)
- Oslo University Hospital, Norway
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- Andersen, Mikkel (författare)
- Middelfart Hospital, Denmark
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- Tropp, Hans, 1956- (författare)
- Linköpings universitet,Avdelningen för Kirurgi, Ortopedi och Onkologi,Medicinska fakulteten,Region Östergötland, Ryggkliniken US
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- Dahl, Benny (författare)
- University of Copenhagen, Denmark; Texas Childrens Hospital, TX 77030 USA; Baylor Coll Med, TX 77030 USA
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- Keskinen, Heli (författare)
- University of Turku, Finland; Turku University Hospital, Finland
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- Olai, Anders (författare)
- Region Östergötland, Ryggkliniken US
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- Polly, David W. (författare)
- University of Minnesota, MN 55455 USA
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- Van Hooff, Miranda L. (författare)
- Radboud University of Nijmegen, Netherlands; Sint Maartensklin, Netherlands
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- Haanstra, Tsjitske M. (författare)
- Radboud University of Nijmegen, Netherlands; Vrije University of Amsterdam, Netherlands
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(creator_code:org_t)
- 2017-09-15
- 2017
- Engelska.
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Ingår i: Acta Orthopaedica. - : TAYLOR & FRANCIS LTD. - 1745-3674 .- 1745-3682. ; 88:6, s. 612-618
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Abstract
Ämnesord
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- Background and purpose - Routine outcome measurement has been shown to improve performance in several fields of healthcare. National spine surgery registries have been initiated in 5 Nordic countries. However, there is no agreement on which outcomes are essential to measure for adolescent and young adult patients with a spinal deformity. The aim of this study was to develop a core outcome set (COS) that will facilitate benchmarking within and between the 5 countries of the Nordic Spinal Deformity Society (NSDS) and other registries worldwide. Material and methods - From August 2015 to September 2016, 7 representatives (panelists) of the national spinal surgery registries from each of the NSDS countries participated in a modified Delphi study. With a systematic literature review as a basis and the International Classification of Functioning, Disability and Health framework as guidance, 4 consensus rounds were held. Consensus was defined as agreement between at least 5 of the 7 representatives. Data were analyzed qualitatively and quantitatively. Results - Consensus was reached on the inclusion of 13 core outcome domains: "satisfaction with overall outcome of surgery", "satisfaction with cosmetic result of surgery", "pain interference", physical functioning", "health-related quality of life", "recreation and leisure", "pulmonary fatigue", "change in deformity", "selfimage", "pain intensity", "physical function", "complications", and "re-operation". Panelists agreed that the SRS-22r, EQ-5D, and a pulmonary fatigue questionnaire (yet to be developed) are the most appropriate set of patient-reported measurement instruments that cover these outcome domains. Interpretation - We have identified a COS for a large subgroup of spinal deformity patients for implementation and validation in the NSDS countries. This is the first study to further develop a COS in a global perspective.
Ämnesord
- MEDICIN OCH HÄLSOVETENSKAP -- Klinisk medicin -- Ortopedi (hsv//swe)
- MEDICAL AND HEALTH SCIENCES -- Clinical Medicine -- Orthopaedics (hsv//eng)
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De Kleuver, Mari ...
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Faraj, Sayf S. A ...
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Holewijn, Roderi ...
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Germscheid, Nicc ...
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Adobor, Raphael ...
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Andersen, Mikkel
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Tropp, Hans, 195 ...
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Dahl, Benny
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Keskinen, Heli
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Olai, Anders
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Polly, David W.
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Van Hooff, Miran ...
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Haanstra, Tsjits ...
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