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Patient-Reported Ou...
Patient-Reported Outcome Measures in Colorectal Surgery: Construction of Core Measures Using Open-Source Research Method
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- El-Hussuna, Alaa (författare)
- Aalborg Univ Hosp, Denmark
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- Rubio-Perez, Ines (författare)
- Cirujano Gen Hosp Univ La Paz, Spain
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- Millan, Monica (författare)
- Hosp Univ & Politecn La Fe, Spain
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- Pellino, Gianluca (författare)
- Vall dHebron Barcelona Hosp, Italy
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- Negoi, Ionut (författare)
- Carol Davila Univ Med & Pharm Bucharest, Romania
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- Gallo, Gaetano (författare)
- Magna Graecia Univ Catanzaro, Italy
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- Shalaby, Mostafa (författare)
- Mansoura Univ, Egypt
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- Celentano, Valerio (författare)
- Univ Portsmouth, England
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- Green, Ryan (författare)
- Exter Hosp, England
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- Minaya-Bravo, Ana (författare)
- Henares Hosp, Spain
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- Emile, Sameh (författare)
- Mansoura Univ, Egypt
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- Smart, Neil J. (författare)
- Exter Hosp, England
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- Maeda, Yasuko (författare)
- Western Gen Hosp Harrow, England
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- Ivatury, Srinivas J. (författare)
- Dartmouth Hitchock Hosp, NH USA
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- Mackenzie, Graham (författare)
- Penicuik Med Practice, Scotland
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- Yalcinkaya, Ali (författare)
- Gazi Univ, Turkey
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- Mellenthin, Claudia (författare)
- Univ Fribourg, Switzerland; Univ Freiburg, Switzerland
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- N. Dudi-Venkata, Nagendra (författare)
- Univ Adelaide, Australia
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- Davies, Justin (författare)
- Univ Cambridge, England
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- McNair, Angus (författare)
- Univ Bristol, England
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- Pata, Francesco (författare)
- Giannettsio Hosp ASP Cosenza, Italy
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- Gymoese Berthelsen, Kasper (författare)
- Aalborg Univ Hosp, Denmark
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- Rivadeneira, David (författare)
- Huntigton Hosp Northwest Hlth Syst, NY USA
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- Spinelli, Antonino (författare)
- Humanitas Res Hosp, Italy
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- Myrelid, Pär (författare)
- Linköpings universitet,Avdelningen för kirurgi, ortopedi och onkologi,Medicinska fakulteten,Region Östergötland, Kirurgiska kliniken US
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- Mayol, Julio (författare)
- Univ Complutense Madrid, Spain
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- Wexner, Steven (författare)
- Clevland Clin, FL USA
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(creator_code:org_t)
- 2021-03-12
- 2021
- Engelska.
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Ingår i: Surgical Innovation. - : SAGE PUBLICATIONS INC. - 1553-3506 .- 1553-3514. ; 28:5, s. 560-566
- Relaterad länk:
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https://urn.kb.se/re...
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https://doi.org/10.1...
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Abstract
Ämnesord
Stäng
- Purpose. The primary aim of the study was to review the existing literature about patient-reported outcome measures (PROMs) in colorectal cancer and IBD. The secondary aim was to present a road map to develop a core outcome set via opinion gathering using social media. Method. This study is the first step of a three-step project aimed at constructing simple, applicable PROMs in colorectal surgery. This article was written in a collaborative manner with authors invited both through Twitter via the #OpenSourceResearch hashtag. The 5 most used PROMs were presented and discussed as slides/images on Twitter. Inputs from a wide spectrum of participants including researchers, surgeons, physicians, nurses, patients, and patients organizations were collected and analyzed. The final draft was emailed to all contributors and 6 patients representatives for proofreading and approval. Results. Five PROM sets were identified and discussed: EORTC QLQ-CR29, IBDQ short health questionnaire, EORTC QLQ-C30, ED-Q5-5L, and Short Form-36. There were 315 tweets posted by 50 tweeters with 1458 retweets. Awareness about PROMs was generally limited. The general psycho-physical well-being score (GPP) was suggested and discussed, and then a survey was conducted in which more than 2/3 of voters agreed that GPP covers the most important aspects in PROMs. Conclusion. Despite the limitations of this exploratory study, it offered a new method to conduct clinical research with opportunity to engage patients. The general psycho-physical well-being score suggested as simple, applicable PROMs to be eventually combined procedure-specific, disease-specific, or symptom-specific PROMs if needed.
Ämnesord
- MEDICIN OCH HÄLSOVETENSKAP -- Klinisk medicin -- Kirurgi (hsv//swe)
- MEDICAL AND HEALTH SCIENCES -- Clinical Medicine -- Surgery (hsv//eng)
Nyckelord
- patient-reported outcome measures; colorectal; surgery; inflammatory bowel disease; collaborative; patient
Publikations- och innehållstyp
- ref (ämneskategori)
- art (ämneskategori)
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Till lärosätets databas
- Av författaren/redakt...
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El-Hussuna, Alaa
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Rubio-Perez, Ine ...
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Millan, Monica
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Pellino, Gianluc ...
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Negoi, Ionut
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Gallo, Gaetano
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visa fler...
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Shalaby, Mostafa
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Celentano, Valer ...
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Green, Ryan
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Minaya-Bravo, An ...
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Emile, Sameh
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Smart, Neil J.
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Maeda, Yasuko
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Ivatury, Sriniva ...
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Mackenzie, Graha ...
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Yalcinkaya, Ali
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Mellenthin, Clau ...
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N. Dudi-Venkata, ...
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Davies, Justin
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McNair, Angus
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Pata, Francesco
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Gymoese Berthels ...
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Rivadeneira, Dav ...
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Spinelli, Antoni ...
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Myrelid, Pär
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Mayol, Julio
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Wexner, Steven
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