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  • Roaldsen, Kirsti SkavbergKarolinska Institutet,Sunnaas Rehabil Hosp, Norway; Oslo Metropolitan Univ, Norway; Karolinska Inst, Sweden (author)

Pediatric spinal cord injury rehabilitation : A protocol for an international multicenter project (SINpedSCI)

  • Article/chapterEnglish2022

Publisher, publication year, extent ...

  • IOS Press,2022
  • electronicrdacarrier

Numbers

  • LIBRIS-ID:oai:DiVA.org:liu-187605
  • https://urn.kb.se/resolve?urn=urn:nbn:se:liu:diva-187605URI
  • https://doi.org/10.3233/PRM-201518DOI
  • http://kipublications.ki.se/Default.aspx?queryparsed=id:234974443URI

Supplementary language notes

  • Language:English
  • Summary in:English

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  • Subject category:ref swepub-contenttype
  • Subject category:art swepub-publicationtype

Notes

  • Funding Agencies|Southern and Eastern Norway Regional Health Authority; Norwegian Ministry of Health and Care Services; Sunnaas Rehabilitation Hospital
  • PURPOSE: Children and adolescents (<18 years old) who sustain a spinal cord injury (SCI) should ideally be managed in specialized rehabilitation services. This project aims to describe the organization of pediatric SCI in ten rehabilitation units in seven countries and to qualitatively explore psychosocial aspects of adolescents living with SCI. METHODS: A multicenter cross-sectional project is planned, using quantitative (web survey) and qualitative (interview) methods in ten rehabilitation units from Norway, Sweden, United States, Israel, PR China, Russia and Palestine. Individual interviews will be conducted with >= 20 adolescents aged 13-17 years at least 6 months post rehabilitation. RESULTS: Units involved will be described and compared, according to funding, attachment to an acute SCI unit, catchment area, number of beds, admittance and discharge procedures, availability of services, staff/patient ratio, content and intensity of rehabilitation programs, length of stay, measurement methods, follow-up services, health promotion services, and pediatric SCI prevention acts. The semi-structured interview guide will include experiences from acute care and primary rehabilitation, daily life, school, contact with friends, leisure time activities, peers, physical and psychological health, and the adolescents plans for the future. CONCLUSION: Based on the present protocol, this project is likely to provide new insight and knowledge on pediatric SCI rehabilitation and increase the understanding of pediatric SCI in adolescents and their families internationally.

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Added entries (persons, corporate bodies, meetings, titles ...)

  • Jorgensen, VivienSunnaas Rehabil Hosp, Norway (author)
  • Höfers, WiebkeSunnaas Rehabil Hosp, Norway; Oslo Metropolitan Univ, Norway (author)
  • Sällström, SusanneSunnaas Rehabil Hosp, Norway (author)
  • Augutis, MarikaKarolinska Institutet,Karolinska Inst, Sweden; Rehab Stn Stockholm, Sweden (author)
  • Ertzgaard, PerLinköpings universitet,Avdelningen för prevention, rehabilitering och nära vård,Medicinska fakulteten,Region Östergötland, Rehabiliteringsmedicinska kliniken,Region Östergötland, H.K.H. Kronprinsessan Victorias barn- och ungdomssjukhus(Swepub:liu)perer66 (author)
  • Wahman, KerstinKarolinska Institutet,Karolinska Inst, Sweden; Rehab Stn Stockholm, Sweden (author)
  • Strom, MonaSunnaas Rehabil Hosp, Norway (author)
  • Vege, Kristine MarieSunnaas Rehabil Hosp, Norway; Univ Oslo, Norway (author)
  • Sorland, KristineSunnaas Rehabil Hosp, Norway (author)
  • Liu, GenLinUniv Oslo, Norway (author)
  • Zhang, QiChina Rehabil Res Ctr CRRC, Peoples R China; Capital Med Univ, Peoples R China (author)
  • Yang, Yu-XiBayi Rehabil Ctr, Peoples R China (author)
  • Chen, YangBayi Rehabil Ctr, Peoples R China (author)
  • Zakharova, OlgaChildrens City Hosp, Russia (author)
  • Trukhankina, ZinaidaRepublican Childrens Hosp, Russia (author)
  • Ghatasha, AtheerBethlehem Arab Soc Specialized Rehabil & Surg, Palestine (author)
  • Hamdan, EmanBethlehem Arab Soc Specialized Rehabil & Surg, Palestine (author)
  • Krasovsky, TalEdmond & Lily Safra Childrens Hosp, Israel; Univ Haifa, Israel (author)
  • Guttman, DafnaEdmond & Lily Safra Childrens Hosp, Israel (author)
  • Sunnerhagen, Katharina StibrantUniv Gothenburg, Sweden (author)
  • New, Peter W.Caulfield Hosp, Australia; Monash Univ, Australia; Monash Univ, Australia (author)
  • Bushnik, TamaraNew York Univ Langone Hlth, NY USA (author)
  • Sukhov, RenatNew York Univ Langone Hlth, NY USA (author)
  • Stanghelle, Johan K.Sunnaas Rehabil Hosp, Norway; Univ Oslo, Norway (author)
  • Karolinska InstitutetSunnaas Rehabil Hosp, Norway; Oslo Metropolitan Univ, Norway; Karolinska Inst, Sweden (creator_code:org_t)

Related titles

  • In:Journal of Pediatric Rehabilitation Medicine: IOS Press15:2, s. 395-4031874-53931875-8894

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