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The experience of c...
The experience of caregiver burden when being next of kin to a person with severe chronic obstructive pulmonary disease : A qualitative study
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- Johansson, Helena, 1980- (författare)
- Linköpings universitet,Avdelningen för omvårdnad och reproduktiv hälsa,Medicinska fakulteten,Region Östergötland, Medicinska specialistkliniken,Department of Medical Specialist in Motala, and Department of Health, Medicine and Caring Sciences, Linköping University, Linköping, Sweden
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- Berterö, Carina, 1959- (författare)
- Linköpings universitet,Avdelningen för omvårdnad och reproduktiv hälsa,Medicinska fakulteten,Department of Health, Medicine and Caring Sciences, Linköping University, Linköping, Sweden
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- Jonasson, Lise-Lotte, 1956- (författare)
- Jönköping University,HHJ, Avdelningen för omvårdnad,The Jönköping Academy for Improvement of Health and Welfare,Department of Nursing, School of Health and Welfare, Jönköping University, Jönköping, Sweden
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- Berg, Katarina, 1959- (författare)
- Linköpings universitet,Avdelningen för omvårdnad och reproduktiv hälsa,Medicinska fakulteten,Department of Health, Medicine and Caring Sciences, Linköping University, Linköping, Sweden
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(creator_code:org_t)
- Sage Publications, 2023
- 2023
- Engelska.
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Ingår i: Chronic Respiratory Disease. - : Sage Publications. - 1479-9723 .- 1479-9731. ; 20
- Relaterad länk:
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https://liu.diva-por... (primary) (Raw object)
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https://doi.org/10.1...
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https://urn.kb.se/re...
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https://doi.org/10.1...
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https://urn.kb.se/re...
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Abstract
Ämnesord
Stäng
- BACKGROUND: Chronic obstructive pulmonary disease (COPD) is an inflammatory and irreversible lung disease. For next of kin caregiver burden can be a consequence of the situation of being close to a person affected by a chronic disease and in need of help. When there is an imbalance between stressors and resources to cope with the situation, caregiver burden emerges. Knowledge is sparse about how the caregiver burden is experienced by the next of kin. Therefore, the aim of this study is to identify and describe the caregiver burden experienced by next of kin of persons with severe COPD.METHOD: Qualitative interviews with 21 next of kin were conducted. Thematic analysis was used in accordance with the six steps of Braun and Clarke.RESULTS: The next of kin experience caregiver burden as 1) changed roles in daily life 2) putting life on hold 3) to stand aside. The next of kin are in need of support to manage daily life.CONCLUSIONS: The caregiver burden affect the next of kin physically and emotionally. To prevent advance consequences, person-centered care can be used to support the next of kin in the situation.
Ämnesord
- MEDICIN OCH HÄLSOVETENSKAP -- Hälsovetenskap -- Omvårdnad (hsv//swe)
- MEDICAL AND HEALTH SCIENCES -- Health Sciences -- Nursing (hsv//eng)
Nyckelord
- COPD
- Caregiver burden
- informal caregiver
- interviews
- next of kin
- thematic analysis
Publikations- och innehållstyp
- ref (ämneskategori)
- art (ämneskategori)
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