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Exploring the similarities and differences of burn registers globally: Results from a data dictionary comparison study

Bebbington, Emily (författare)
Bangor Univ, Wales
Miles, Joanna (författare)
Norfolk & Norwich Univ Hosp, England
Young, Amber (författare)
Bristol Ctr Surg Res, England
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van Baar, Margriet E. (författare)
Maasstad Hosp, Netherlands
Bernal, Nicole (författare)
Ohio State Univ, OH 43210 USA; Amer Burn Assoc, IL USA
Brekke, Ragnvald Ljones (författare)
Haukeland Hosp, Norway
van Dammen, Lotte (författare)
Dutch Burns Fdn, Netherlands
Elmasry, Moustafa (författare)
Linköpings universitet,Avdelningen för kirurgi, ortopedi och onkologi,Medicinska fakulteten,Region Östergötland, Hand- och plastikkirurgiska kliniken US
Inoue, Yoshiaki (författare)
Lambdax Bldg, Japan
McMullen, Kara A. (författare)
Univ Washington, WA USA
Paton, Lia (författare)
NHS Natl Serv Scotland, Scotland
Thamm, Oliver C. (författare)
German Soc Burn Treatment DGV, Germany; Univ Witten Herdecke, Germany
Tracy, Lincoln M. (författare)
Monash Univ, Australia
Zia, Nukhba (författare)
Johns Hopkins Bloomberg Sch Publ Hlth, MD 21205 USA
Singer, Yvonne (författare)
Griffith Univ, Australia
Dunn, Ken (författare)
Burn Care Informat Grp NHS, England
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 (creator_code:org_t)
ELSEVIER SCI LTD, 2024
2024
Engelska.
Ingår i: Burns. - : ELSEVIER SCI LTD. - 0305-4179 .- 1879-1409. ; 50:4, s. 850-865
  • Tidskriftsartikel (refereegranskat)
Abstract Ämnesord
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  • Introduction: Pooling and comparing data from the existing global network of burn registers represents a powerful, yet untapped, opportunity to improve burn prevention and care. There have been no studies investigating whether registers are sufficiently similar to allow data comparisons. It is also not known what differences exist that could bias analyses. Understanding this information is essential prior to any future data sharing. The aim of this project was to compare the variables collected in countrywide and intercountry burn registers to understand their similarities and differences. Methods: Register custodians were invited to participate and share their data dictionaries. Inclusion and exclusion criteria were compared to understand each register population. Descriptive statistics were calculated for the number of unique variables. Variables were classified into themes. Definition, method, timing of measurement, and response options were compared for a sample of register concepts. Results: 13 burn registries participated in the study. Inclusion criteria varied between registers. Median number of variables per register was 94 (range 28 - 890), of which 24% (range 4.8 - 100%) were required to be collected. Six themes (patient information, admission details, injury, inpatient, outpatient, other) and 41 subthemes were identified. Register concepts of age and timing of injury show similarities in data collection. Intent, mechanism, inhalational injury, infection, and patient death show greater variation in measurement. Conclusions: We found some commonalities between registers and some differences. Commonalities would assist in any future efforts to pool and compare data between registers. Differences between registers could introduce selection and measurement bias, which needs to be addressed in any strategy aiming to facilitate burn register data sharing. We recommend the development of common data elements used in an international minimum data set for burn injuries, including standard definitions and methods of measurement, as the next step in achieving burn register data sharing. (c) 2024 The Authors. Published by Elsevier Ltd. This is an open access article under the CC BY license (http://creativecommons.org/licenses/by/4.0/).

Ämnesord

MEDICIN OCH HÄLSOVETENSKAP  -- Klinisk medicin -- Kirurgi (hsv//swe)
MEDICAL AND HEALTH SCIENCES  -- Clinical Medicine -- Surgery (hsv//eng)

Nyckelord

Burns; Registries; Routinely collected health data; Common data elements; Data science; Data dictionary

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