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Recruitment of Adolescent Young Carers to a Psychosocial Support Intervention Study in Six European Countries : Lessons Learned from the ME-WE Project

Barbabella, Francesco, Dr. 1984- (författare)
Linnéuniversitetet,Institutionen för hälso- och vårdvetenskap (HV),The Swedish Family Care Competence Centre (NKA), Sweden
Magnusson, Lennart, 1961- (författare)
Linnéuniversitetet,Institutionen för hälso- och vårdvetenskap (HV),The Swedish Family Care Competence Centre (NKA), Sweden
Boccaletti, Licia (författare)
Anziani e Non Solo Società Cooperativa Sociale, Italy
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Casu, Giulia (författare)
Anziani e Non Solo Società Cooperativa Sociale, Italy;University of Bologna, Italy
Hlebec, Valentina (författare)
University of Ljubljana, Slovenia
Bolko, Irena (författare)
University of Ljubljana, Slovenia
Lewis, Feylyn (författare)
Vanderbilt University, USA;University of Sussex, UK
Hoefman, Renske (författare)
The Netherlands Institute for Social Research (SCP), Netherlands
Brolin, Rosita, 1958- (författare)
Linnéuniversitetet,Institutionen för hälso- och vårdvetenskap (HV),The Swedish Family Care Competence Centre (NKA), Sweden
Santini, Sara (författare)
IRCCS INRCA-National Institute of Health and Science on Aging, Italy
Socci, Marco (författare)
IRCCS INRCA-National Institute of Health and Science on Aging, Italy
D’Amen, Barbara (författare)
IRCCS INRCA-National Institute of Health and Science on Aging, Italy
de Jong, Yvonne (författare)
Vilans—The National Centre of Expertise for Long-Term Care in The Netherlands, Netherlands
Bouwman, Tamara (författare)
Vilans—The National Centre of Expertise for Long-Term Care in The Netherlands, Netherlands
de Jong, Nynke (författare)
Vilans—The National Centre of Expertise for Long-Term Care in The Netherlands, Netherlands
Leu, Agnes (författare)
University of Basel, Switzerland;Kalaidos University of Applied Sciences, Switzerland
Phelps, Daniel (författare)
Kalaidos University of Applied Sciences, Switzerland; University of Winchester, UK
Guggiari, Elena (författare)
Kalaidos University of Applied Sciences, Switzerland
Wirth, Alexandra (författare)
Kalaidos University of Applied Sciences, Switzerland; Careum, Switzerland
Morgan, Vicky (författare)
Carers Trust, UK
Becker, Saul (författare)
University of Sussex, UK;Manchester Metropolitan University, UK
Hanson, Elizabeth, 1961- (författare)
Linnéuniversitetet,Institutionen för hälso- och vårdvetenskap (HV),The Swedish Family Care Competence Centre (NKA), Sweden
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 (creator_code:org_t)
2023-03-14
2023
Engelska.
Ingår i: International Journal of Environmental Research and Public Health. - : MDPI. - 1661-7827 .- 1660-4601. ; 20:6
Relaterad länk:
https://doi.org/10.3...
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https://urn.kb.se/re...
https://doi.org/10.3...
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  • Tidskriftsartikel (refereegranskat)
Abstract Ämnesord
Stäng  
  • Young carers provide a substantial amount of care to family members and support to friends, yet their situation has not been actively addressed in research and policy in many European countries or indeed globally. Awareness of their situation by professionals and among children and young carers themselves remains low overall. Thus, young carers remain a largely hidden group within society. This study reports and analyses the recruitment process in a multi-centre intervention study offering psychosocial support to adolescent young carers (AYCs) aged 15–17 years. A cluster-randomised controlled trial was designed, with recruitment taking place in Italy, the Netherlands, Slovenia, Sweden, Switzerland and the United Kingdom exploiting various channels, including partnerships with schools, health and social services and carers organisations. In total, 478 AYCs were recruited and, after screening failures, withdrawals and initial dropouts, 217 were enrolled and started the intervention. Challenges encountered in reaching, recruiting and retaining AYCs included low levels of awareness among AYCs, a low willingness to participate in study activities, uncertainty about the prevalence of AYCs, a limited school capacity to support the recruitment; COVID-19 spreading in 2020–2021 and related restrictions. Based on this experience, recommendations are put forward for how to better engage AYCs in research.

Ämnesord

MEDICIN OCH HÄLSOVETENSKAP  -- Hälsovetenskap (hsv//swe)
MEDICAL AND HEALTH SCIENCES  -- Health Sciences (hsv//eng)

Nyckelord

young carers; adolescent young carers; recruitment; co-design; COVID-19; psychosocial support; cluster-randomised controlled trial; intervention study
Health and Caring Sciences
Hälsovetenskap

Publikations- och innehållstyp

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