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Using co-design to ...
Using co-design to develop an intervention to improve communication about the heart failure trajectory and end-of-life care
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- Hjelmfors, Lisa (author)
- Linköpings universitet,Avdelningen för omvårdnad,Medicinska fakulteten
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- Strömberg, Anna, 1967- (author)
- Linköpings universitet,Medicinska fakulteten,Avdelningen för omvårdnad,Region Östergötland, Kardiologiska kliniken US
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- Friedrichsen, Maria (author)
- Linköpings universitet,Avdelningen för omvårdnad,Medicinska fakulteten,Region Östergötland, Palliativt kompetenscentrum
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- Sandgren, Anna, 1970- (author)
- Linnéuniversitetet,Institutionen för hälso- och vårdvetenskap (HV),Ctr Collaborat Palliat Care,Department of Health and Caring Sciences, Center for Collaborative Palliative Care, Linnaeus University, Växjö, Sweden,Linnaeus Univ, Sweden
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- Mårtensson, Jan, 1966- (author)
- Jönköping University,HHJ, Avdelningen för omvårdnad,HHJ. ADULT,Jonkoping Univ, Sweden
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- Jaarsma, Tiny (author)
- Linköpings universitet,Avdelningen för omvårdnad,Medicinska fakulteten
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(creator_code:org_t)
- 2018-06-11
- 2018
- English.
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In: BMC Palliative Care. - : BioMed Central. - 1472-684X. ; 17
- Related links:
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https://doi.org/10.1...
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https://urn.kb.se/re...
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https://doi.org/10.1...
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Abstract
Subject headings
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- Background: The aim of this paper was to describe the development of an intervention that is developed to improve communication about the heart failure (HF) trajectory and end-of-life care. We also present data that provides a first insight in specific areas of feasibility of the intervention. Methods: Co-design was used and patients, family members and health care professionals were constructive participants in the design process of the intervention. Feasibility of the intervention was tested in two areas; acceptability and limited efficacy. Results: Two communication tools were designed and evaluated; 1) a Question Prompt List (QPL) for patients and family members and 2) a communication course for professionals which was web -based with one face-to-face training day with simulation. Data on feasibility was collected with questionnaires that were developed for this study, from the 13 participants who completed the course (all nurses). They reported improved knowledge, confidence and skills to discuss the HF trajectory and end-of-life care. The QPL was evaluated to be a useful tool in communication with patients and family members. Conclusions: In a co-design process, future users identified the need for a QPL and a communication course. These communication tools can be used as a dual intervention to improve communication about the HF trajectory and end-of-life care. The QPL can help patients and families to ask questions about the HF trajectory and end-of-life care. The communication course can prepare the professionals to be knowledgeable, confident and skilled to discuss the questions in the QPL. Before the tools are ready for implementation in clinical practice, further studies testing the feasibility of the intervention are needed, including also patients and their families.
Subject headings
- MEDICIN OCH HÄLSOVETENSKAP -- Hälsovetenskap -- Omvårdnad (hsv//swe)
- MEDICAL AND HEALTH SCIENCES -- Health Sciences -- Nursing (hsv//eng)
- MEDICIN OCH HÄLSOVETENSKAP -- Klinisk medicin -- Kardiologi (hsv//swe)
- MEDICAL AND HEALTH SCIENCES -- Clinical Medicine -- Cardiac and Cardiovascular Systems (hsv//eng)
- MEDICIN OCH HÄLSOVETENSKAP -- Hälsovetenskap -- Hälso- och sjukvårdsorganisation, hälsopolitik och hälsoekonomi (hsv//swe)
- MEDICAL AND HEALTH SCIENCES -- Health Sciences -- Health Care Service and Management, Health Policy and Services and Health Economy (hsv//eng)
Keyword
- Heart failure
- Illness trajectory
- End-of-life care
- Communication
- Co-design
- User perspective
- Hälsovetenskap
- Health and Caring Sciences
Publication and Content Type
- ref (subject category)
- art (subject category)
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