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Nurses’ challenges ...
Nurses’ challenges when supporting the family of patients with ALS in specialized palliative home care : A qualitative study
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- Beyermann, Alexandra (författare)
- Mälardalens universitet,Hälsa och välfärd,Care, Health and Recovery,Division of Caring Science, School of Health, Care and Social Welfare, Mälardalen University, Eskilstuna, Sweden
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- Asp, Margareta, professor, 1958- (författare)
- Mälardalens universitet,Hälsa och välfärd,Care, Health and Recovery,Division of Caring Science, School of Health, Care and Social Welfare, Mälardalen University, Eskilstuna, Sweden
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- Godskesen, Tove (författare)
- Marie Cederschiöld högskola,Uppsala universitet,Centrum för forsknings- och bioetik,Department of Health Care Sciences, Palliative Research Centre, Marie Cederschiöld University,Institutionen för vårdvetenskap,Centre for Research Ethics & Bioethics, Uppsala University, Sweden
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- Söderman, Mirkka, 1973- (författare)
- Mälardalens universitet,Hälsa och välfärd,Care, Health and Recovery,Division of Caring Science, School of Health, Care and Social Welfare, Mälardalen University, Eskilstuna, Sweden
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(creator_code:org_t)
- Taylor & Francis, 2023
- 2023
- Engelska.
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Ingår i: International Journal of Qualitative Studies on Health and Well-being. - : Taylor & Francis. - 1748-2623 .- 1748-2631. ; 18:1
- Relaterad länk:
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https://doi.org/10.1...
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https://uu.diva-port... (primary) (Raw object)
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https://urn.kb.se/re...
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https://doi.org/10.1...
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Abstract
Ämnesord
Stäng
- Purpose: Being a family member to someone who has amyotrophic lateral sclerosis (ALS) is demanding and often requires sacrificing a lot. Family members can experience fatigue, anxiety, guilt and need support. The aim was to explore registered nurses’ (RNs’) experiences of providing support to the families of patients with ALS within specialized palliative home care (SPHC).Methods: A qualitative explorative design. Interviews were conducted with RNs (n = 11) from five SPHCs in Sweden and analysed using qualitative content analysis.Results: The results emerged in the following categories:”To support in an increasingly difficult everyday life”, based on the sub-categories: “Creating a trusting relationship”, “Balancing between the needs of patients and their families”, and “Sharing knowledge about dying to the families”;”To support in emotionally challenging situations”, based on the sub-categories: “Harbouring family members’ difficult feelings”, “Providing support even though the situation is unpleasant” and “Being able to give support by receiving confirmation and support from others”.Conclusions: RNs working in SPHC have an important role in providing support in several ways to the families of patients with ALS, through facilitating their everyday life and giving emotional support when needed, based on the needs of both patients and the families.
Ämnesord
- MEDICIN OCH HÄLSOVETENSKAP -- Hälsovetenskap -- Omvårdnad (hsv//swe)
- MEDICAL AND HEALTH SCIENCES -- Health Sciences -- Nursing (hsv//eng)
Nyckelord
- ALS
- caregivers
- family
- home care nursing
- nurses experience
- palliative care
- qualitative
- relatives
- Care Sciences
- vårdvetenskap
Publikations- och innehållstyp
- ref (ämneskategori)
- art (ämneskategori)
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