High satisfaction rate ten years after bilateral prophylactic mastectomy - a longitudinal study

Wasteson, ElisabethMittuniversitetet,Institutionen för samhällsvetenskap (-2013) (author)

High satisfaction rate ten years after bilateral prophylactic mastectomy - a longitudinal study Women from families with an increased risk for breast/ovarian cancer have undergone bilateral prophylactic mastectomy (BPM) since the early 1990s at the Karolinska University Hospital in Sweden. Perceptions of BPM as reported by the first women who underwent the procedure have previously been evaluated on a short-term basis (1-3 years). The present study aims to evaluate the long-term (10 years) physical and psychological consequences of BPM in the same cohort of women. Some of the very first women to undergo BPM participated in the present interview study (n= 13). The semi-structured interviews focused on the women's long-term experiences related to BPM and immediate breast reconstruction. Overall, the women were satisfied with their decision to undergo BPM and perceived a negligible remaining risk of getting breast cancer. For most women, the operation had not resulted in changes in family life or lifestyle (n= 8), although some described that the relationship with their spouse was affected (8/13), either in a negative (n= 5) or positive (n= 3) way. The cosmetic results were mainly positive (n= 10). Recurrent counselling and support during the whole process of decision, treatment and follow up is recommended.

SAMHÄLLSVETENSKAP Psykologi hsv//swe
SOCIAL SCIENCES Psychology hsv//eng
breast cancer; ovarian cancer; bilateral prophylactic mastectomy; hereditary risk; patient satisfaction
Psychology
Psykologi

Sandelin, KerstinKarolinska Institutet (author)
Brandberg, YKarolinska Institutet (author)
Wickman, MKarolinska Institutet (author)
Arver, BKarolinska Institutet (author)
MittuniversitetetInstitutionen för samhällsvetenskap (-2013) (creator_code:org_t)

In:European Journal of Cancer Care: Hindawi Limited20:4, s. 508-5130961-54231365-2354

By the author/editor: Wasteson, Elisab ...; Sandelin, Kersti ...; Brandberg, Y; Wickman, M; Arver, B

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