The phenomena of participation and non-participation in health care: experiences of patients attending a nurse-led clinic for chronic heart failure

Eldh, Ann CatrineÖrebro universitet,Hälsovetenskapliga institutionen,St Görans sjukhus, Stockholm; Örebro universitet, Hälsovetenskapliga institutionen (author)

The phenomena of participation and non-participation in health care : experiences of patients attending a nurse-led clinic for chronic heart failure

Background: Patient participation is stressed in the health care acts of many western countries yet a common definition of the concept is lacking. The understanding of experiences of patients with chronic heart failure (CHF) who attend nurse-led specialist clinics, a form of care suggested as beneficiary to this group, may promote a better understanding of participation. Aim: To investigate the meanings of participation and non-participation as experienced by patients living with CHF. Methods: Narrative interviews analysed in the phenomenological hermeneutic tradition inspired by Ricoeur where the interpretation is made in the hermeneutic circle, explaining and understanding the experienced phenomena. Findings: Participation was experienced as to “be confident”, “comprehend” and “seek and maintain a sense of control”. Non-participation was experienced as to “not understand”, “not be in control”, “lack a relationship” and “not be accountable”. The findings indicate that the experiences of participation and non-participation can change over time and phases of the disease and treatment. Conclusion: The study suggests an extended view on the concept of participation. Patients' experiences of participation in health care can vary and should therefore be an issue for dialogue between nurses and patients with CHF in nurse-led specialist clinics.

Ehnfors, MargaretaÖrebro universitet,Institutionen för vårdvetenskap och omsorg,Örebro universitet, Institutionen för vårdvetenskap och omsorg(Swepub:oru)mes (author)
Ekman, Inger,1952Gothenburg University,Göteborgs universitet,Institutionen för omvårdnad,Institute of Nursing(Swepub:gu)xekmin (author)
Örebro universitetHälsovetenskapliga institutionen (creator_code:org_t)

In:European Journal of Cardiovascular Nursing: Oxford University Press (OUP)3:3, s. 239-2461474-51511873-1953

By the author/editor: Eldh, Ann Catrin ...; Ehnfors, Margare ...; Ekman, Inger, 19 ...

About the subject

SOCIAL SCIENCES: SOCIAL SCIENCES; and Other Social Sci ...; and Social Sciences ...

MEDICAL AND HEALTH SCIENCES: MEDICAL AND HEAL ...; and Health Sciences; and Nursing

By the university: Örebro University; Linköping University; Högskolan Dalarna; University of Gothenburg

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