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Security and Privac...
Security and Privacy of Online Record Access : A Survey of Adolescents' Views and Experiences in Sweden
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- Hagström, Josefin (author)
- Uppsala universitet,E-hälsa och hälsodata
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- Åhlfeldt, Rose-Mharie, 1960- (author)
- Högskolan i Skövde,Institutionen för informationsteknologi,Forskningsmiljön Informationsteknologi,Informationssystem, Information Systems,School of Informatics, University of Skövde, Skövde, Sweden
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- Blease, Charlotte (author)
- Uppsala universitet,E-hälsa och hälsodata
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- Cajander, Åsa, Professor, 1971- (author)
- Uppsala universitet,Avdelningen Vi3
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- Rexhepi, Hanife, 1984- (author)
- Högskolan i Skövde,Institutionen för informationsteknologi,Forskningsmiljön Informationsteknologi,Informationssystem, Information Systems,School of Informatics, University of Skövde, Skövde, Sweden
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- Moll, Jonas, 1982- (author)
- Örebro universitet,Handelshögskolan vid Örebro Universitet,Centre for Empirical Research on Information Systems (CERIS)
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- Kane, Bridget (author)
- Karlstads universitet,Handelshögskolan (from 2013),Business School, Karlstad University, Karlstad, Sweden
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- Scandurra, Isabella, 1973- (author)
- Örebro universitet,Handelshögskolan vid Örebro Universitet,Centre for Empirical Research on Information Systems (CERIS)
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- Hägglund, Maria, Lektor, 1975- (author)
- Uppsala universitet,E-hälsa och hälsodata
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(creator_code:org_t)
- 2024
- 2024
- English.
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In: Journal of Adolescent Health. - : Elsevier. - 1054-139X .- 1879-1972.
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Abstract
Subject headings
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- Purpose: Ensuring security of online health records and patients' perceptions of security are concerns in adolescent healthcare. Little is known about adolescents' perceptions about healthcare's ability to protect online health records. This article explores adolescents' perspectives on security and privacy of their online health records, potential differences based on gender and health, attitudes to sharing information, and perceptions of what constitutes sensitive information. Methods: This study included a subset of items from a national online patient survey conducted in Sweden (January-February 2022), focusing on respondents aged 15–19 years. Gender and health status differences were calculated using the Kruskal-Wallis test. Results: Of 218 adolescent respondents (77.1% female), a minority had security and privacy concerns. A notable proportion (41.3%) wished to control who could see their records, and those who reported better perceived health were more likely to want to manage access to their electronic health record (H = 13.569, p = .009). Most had not experienced unauthorized access to their records (75.2%) and had never shared health information on other online applications (85.8%). More than half (56.0%) perceived some information as sensitive, where mental health was the most common (76.0%). Most felt that reading their notes improved their trust for their healthcare professional (65.6%) and supported better communication with healthcare professionals (66.5%). Discussion: In this national survey, adolescents generally reported few concerns about patient portals. Findings emphasize the need for security and privacy protection and to empower adolescents with greater control over access to their health information housed in electronic health record systems.
Subject headings
- NATURVETENSKAP -- Data- och informationsvetenskap -- Systemvetenskap, informationssystem och informatik (hsv//swe)
- NATURAL SCIENCES -- Computer and Information Sciences -- Information Systems (hsv//eng)
- SAMHÄLLSVETENSKAP -- Medie- och kommunikationsvetenskap -- Systemvetenskap, informationssystem och informatik med samhällsvetenskaplig inriktning (hsv//swe)
- SOCIAL SCIENCES -- Media and Communications -- Information Systems, Social aspects (hsv//eng)
- MEDICIN OCH HÄLSOVETENSKAP -- Hälsovetenskap -- Hälso- och sjukvårdsorganisation, hälsopolitik och hälsoekonomi (hsv//swe)
- MEDICAL AND HEALTH SCIENCES -- Health Sciences -- Health Care Service and Management, Health Policy and Services and Health Economy (hsv//eng)
- MEDICIN OCH HÄLSOVETENSKAP -- Hälsovetenskap -- Folkhälsovetenskap, global hälsa, socialmedicin och epidemiologi (hsv//swe)
- MEDICAL AND HEALTH SCIENCES -- Health Sciences -- Public Health, Global Health, Social Medicine and Epidemiology (hsv//eng)
- MEDICIN OCH HÄLSOVETENSKAP -- Hälsovetenskap -- Annan hälsovetenskap (hsv//swe)
- MEDICAL AND HEALTH SCIENCES -- Health Sciences -- Other Health Sciences (hsv//eng)
Keyword
- Adolescent health
- Adolescents
- eHealth
- Electronic health record (EHR)
- National survey
- Patient portal
- Security
- Privacy
- Patient accessible electronic health record (PAEHR)
- Usability
- Information Systems
- Informationssystem (IS)
- Information Systems
- Medical Informatics
Publication and Content Type
- ref (subject category)
- art (subject category)
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- By the author/editor
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Hagström, Josefi ...
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Åhlfeldt, Rose-M ...
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Blease, Charlott ...
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Cajander, Åsa, P ...
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Rexhepi, Hanife, ...
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Moll, Jonas, 198 ...
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Kane, Bridget
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Scandurra, Isabe ...
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Hägglund, Maria, ...
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- About the subject
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- NATURAL SCIENCES
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NATURAL SCIENCES
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and Computer and Inf ...
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and Information Syst ...
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- SOCIAL SCIENCES
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SOCIAL SCIENCES
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and Media and Commun ...
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and Information Syst ...
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- MEDICAL AND HEALTH SCIENCES
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MEDICAL AND HEAL ...
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and Health Sciences
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and Health Care Serv ...
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- MEDICAL AND HEALTH SCIENCES
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MEDICAL AND HEAL ...
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and Health Sciences
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and Public Health Gl ...
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- MEDICAL AND HEALTH SCIENCES
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MEDICAL AND HEAL ...
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and Health Sciences
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and Other Health Sci ...
- Articles in the publication
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Journal of Adole ...
- By the university
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University of Skövde
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Karlstad University
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Örebro University
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Uppsala University