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  • Alping, PeterKarolinska Institutet,Karolinska Inst, Sweden (author)

Validation of the Swedish Multiple Sclerosis Register Further Improving a Resource for Pharmacoepidemiologic Evaluations

  • Article/chapterEnglish2019

Publisher, publication year, extent ...

  • Lippincott Williams & Wilkins,2019
  • printrdacarrier

Numbers

  • LIBRIS-ID:oai:DiVA.org:oru-72870
  • https://urn.kb.se/resolve?urn=urn:nbn:se:oru:diva-72870URI
  • https://doi.org/10.1097/EDE.0000000000000948DOI
  • https://urn.kb.se/resolve?urn=urn:nbn:se:umu:diva-156860URI
  • https://urn.kb.se/resolve?urn=urn:nbn:se:uu:diva-378625URI
  • http://kipublications.ki.se/Default.aspx?queryparsed=id:140315200URI
  • https://urn.kb.se/resolve?urn=urn:nbn:se:liu:diva-154830URI

Supplementary language notes

  • Language:English
  • Summary in:English

Part of subdatabase

Classification

  • Subject category:ref swepub-contenttype
  • Subject category:art swepub-publicationtype

Notes

  • Funding Agencies:Patient-Centered Outcomes Research Institute (PCORI) Award  MS-1511-33196 Swedish Foundation for MS Research  Biogen  Roche  Biogen Idec  Genzyme  Novartis 
  • Funding Agencies|Patient-Centered Outcomes Research Institute (PCORI) Award [MS-1511-33196]; Swedish Foundation for MS Research; Biogen; Roche; Biogen Idec; Genzyme; Novartis
  • The Swedish Multiple Sclerosis Register is a national register monitoring treatment and clinical course for all Swedish multiple sclerosis (MS) patients, with high coverage and close integration with the clinic. Despite its great value for epidemiologic research, it has not previously been validated. In this brief report, we summarize a large validation of >3,000 patients in the register using clinical chart review in the context of the COMBAT-MS study. While further improving the data quality for a central cohort of patients available for future epidemiologic research, this study also allowed us to estimate the accuracy and completeness of the register data.

Subject headings and genre

Added entries (persons, corporate bodies, meetings, titles ...)

  • Piehl, FredrikKarolinska Institutet,Karolinska Inst, Sweden; Stockholm Hlth Serv, Sweden; Karolinska Univ Hosp, Sweden (author)
  • Langer-Gould, AnnetteClinical and Translational Neuroscience, Southern Clinical and Translational Neuroscience, Southern California Permanente Medical Group, Kaiser Permanente, Pasadena CA, USA,Kaiser Permanente, Southern Calif Permanente Med Grp, Southern Clin & Translat Neurosci, Clin & Translat Neurosci, Pasadena, CA USA;Kaiser Permanente, Southern Calif Permanente Med Grp, Clin & Translat Neurosci, Pasadena, CA USA (author)
  • Frisell, ThomasKarolinska Institutet,Karolinska Inst, Sweden (author)
  • Burman, Joachim,1974-Uppsala universitet,Neurologi,Uppsala Univ, Sweden(Swepub:uu)joabu293 (author)
  • Fink, KatharinaKarolinska Institutet,Karolinska Inst, Sweden (author)
  • Fogdell-Hahn, AnnaKarolinska Institutet,Karolinska Inst, Sweden (author)
  • Gunnarsson, Martin,1973-Örebro universitet,Institutionen för medicinska vetenskaper,Center for Health and Medical Psychology,Orebro Univ, Ctr Hlth & Med Psychol, Orebro, Sweden(Swepub:oru)mign (author)
  • Hillert, JanKarolinska Institutet,Karolinska Inst, Sweden (author)
  • Kockum, IngridKarolinska Institutet,Stockholm Hlth Serv, Sweden (author)
  • Lycke, JanDepartment of Clinical Neuroscience and Rehabilitation, University of Gothenburg, Gothenburg, Sweden,Univ Gothenburg, Dept Clin Neurosci & Rehabil, Gothenburg, Sweden (author)
  • Nilsson, PetraDepartment of Clinical Sciences/Neurology, Lund University, Lund, Sweden,Lund Univ, Dept Clin Sci Neurol, Lund, Sweden (author)
  • Olsson, TomasDepartment of Clinical Neuroscience, Karolinska Institutet, Stockholm, Sweden,Karolinska Inst, Dept Clin Neurosci, Stockholm, Sweden (author)
  • Salzer, JonatanUmeå universitet,Klinisk neurovetenskap,Department of Pharmacology and Clinical Neuroscience, Umeå University, Umeå,Umea Univ, Dept Pharmacol & Clin Neurosci, Umea, Sweden(Swepub:umu)jonser01 (author)
  • Svenningsson, AndersKarolinska Institutet,Danderyd Hosp, Sweden (author)
  • Virtanen, SuviDepartment of Clinical Neuroscience, Karolinska Institutet, Stockholm, Sweden,Karolinska Inst, Dept Clin Neurosci, Stockholm, Sweden (author)
  • Vrethem, Magnus,1955-Linköpings universitet,Avdelningen för neuro- och inflammationsvetenskap,Medicinska fakulteten,Region Östergötland, Neurologiska kliniken i Linköping(Swepub:liu)magvr07 (author)
  • Karolinska InstitutetKarolinska Inst, Sweden (creator_code:org_t)

Related titles

  • In:Epidemiology: Lippincott Williams & Wilkins30:2, s. 230-2331044-39831531-5487

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