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Views on everyday l...
Views on everyday life among adults with spina bifida : an exploration through photovoice
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- Gabrielsson, Hanna, 1977- (författare)
- Ersta Sköndal Bräcke högskola,Örebro universitet,Institutionen för hälsovetenskaper,Department of Health Care Sciences, Ersta Sköndal Bräcke University College, Stockholm, Sweden; Spinalis, SCI Unit, RehabStation Stockholm, Stockholm, Sweden,Örebro University, Sweden; Ersta Sköndal Bräcke University College, Sweden; Rehab Station Stockholm,,Institutionen för vårdvetenskap
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- Hultling, Claes (författare)
- Sophiahemmet University,Karolinska Institutet,Sophiahemmet Högskola,Stiftelsen Spinalis, Sweden; Sophiahemmet College, Sweden; Karolinska institutet, Sweden,Spinal Foundation,Stiftelsen Spinalis; Sophiahemmet högskola; Karolinska institutet
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- Cronqvist, Agneta, 1953- (författare)
- Ersta Sköndal Bräcke högskola,Institutionen för vårdvetenskap
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- Asaba, Eric (författare)
- Karolinska Institutet,Lund University,Lunds universitet,Hållbar vardag och hälsa i ett livsperspektiv,Forskargrupper vid Lunds universitet,Sustainable occupations and health in a life course perspective,Lund University Research Groups,Stockholms Sjukhem Foundation,Karolinska institutet; Stiftelsen Stockholms sjukhem; Lunds universitet
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(creator_code:org_t)
- 2020-11-04
- 2020
- Engelska.
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Ingår i: International Journal of Qualitative Studies on Health and Well-being. - : Co-Action Publishing. - 1748-2623 .- 1748-2631. ; 15:1
- Relaterad länk:
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https://doi.org/10.1...
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https://www.tandfonl...
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https://shh.diva-por... (primary) (Raw object)
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https://www.ncbi.nlm...
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http://dx.doi.org/10... (free)
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https://urn.kb.se/re...
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https://doi.org/10.1...
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https://urn.kb.se/re...
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https://urn.kb.se/re...
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https://lup.lub.lu.s...
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https://urn.kb.se/re...
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http://kipublication...
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Abstract
Ämnesord
Stäng
- The aim of this study was to actively integrate expertise of persons living with spina bifida, to explore conditions embedded in their everyday life. This was important because young adults with spina bifida risk not being able to fully participate in the community on equal terms and in accordance with their own preferences. Photovoice, a community-based participatory research approach, was utilized to engage participants through dialogue and photography. An exhibition was created to share results with community and stakeholders. An overarching theme that characterized the experiences of the group was, "an adaptation for us, but it works for no one". Findings are presented as: "Accessibility-a never-ending project," "Tensions of a normative view," and "Power to influence." Findings integrated everyday life metaphors photographically depicted by broken elevators, unsafe transportation, closed doors and not experiencing real opportunities of involvement. Tensions in everyday life experienced by persons living with spina bifida can inform conditions relevant and necessary to support community participation, particulary among persons living with disability.
Ämnesord
- MEDICIN OCH HÄLSOVETENSKAP -- Hälsovetenskap -- Arbetsterapi (hsv//swe)
- MEDICAL AND HEALTH SCIENCES -- Health Sciences -- Occupational Therapy (hsv//eng)
- MEDICIN OCH HÄLSOVETENSKAP -- Hälsovetenskap -- Annan hälsovetenskap (hsv//swe)
- MEDICAL AND HEALTH SCIENCES -- Health Sciences -- Other Health Sciences (hsv//eng)
- MEDICIN OCH HÄLSOVETENSKAP -- Hälsovetenskap -- Omvårdnad (hsv//swe)
- MEDICAL AND HEALTH SCIENCES -- Health Sciences -- Nursing (hsv//eng)
- MEDICIN OCH HÄLSOVETENSKAP -- Hälsovetenskap -- Arbetsmedicin och miljömedicin (hsv//swe)
- MEDICAL AND HEALTH SCIENCES -- Health Sciences -- Occupational Health and Environmental Health (hsv//eng)
- MEDICIN OCH HÄLSOVETENSKAP -- Klinisk medicin -- Neurologi (hsv//swe)
- MEDICAL AND HEALTH SCIENCES -- Clinical Medicine -- Neurology (hsv//eng)
Nyckelord
- Spina bifida
- adults
- community-based participatory research
- photovoice
- adults
- community-based participatory research
- photovoice
- Spina bifida
Publikations- och innehållstyp
- ref (ämneskategori)
- art (ämneskategori)
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