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Cancer disclosure-a...
Cancer disclosure-account from a pediatric oncology ward in Egypt
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- Hanan, El Malla (författare)
- Gothenburg University,Göteborgs universitet,Institutionen för socialt arbete,Department of Social Work
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- Steineck, Gunnar, 1952 (författare)
- Karolinska Institutet,Göteborgs universitet; Karolinska institutet
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- Ylitalo Helm, Nathalie (författare)
- Göteborgs universitet; Karolinska institutet
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- Wilderäng, Ulrica (författare)
- Göteborgs universitet
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- El Sayed Elborai, Yasser (författare)
- Egypt
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- Elshami, M (författare)
- Egypt
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- Kreicbergs, Ulrika (författare)
- Ersta Sköndal högskola,Karolinska Institutet,Sophiahemmet Högskola,Palliativt forskningscentrum, PFC,Karolinska institutet; Sophiahemmet högskola
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(creator_code:org_t)
- 2016-08-05
- 2017
- Engelska.
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Ingår i: Psycho-Oncology. - Chichester : Wiley. - 1057-9249 .- 1099-1611. ; 26:5, s. 679-685
- Relaterad länk:
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https://urn.kb.se/re...
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https://doi.org/10.1...
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http://kipublication...
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https://urn.kb.se/re...
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https://gup.ub.gu.se...
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Abstract
Ämnesord
Stäng
- OBJECTIVE: Informing the child about his/her diagnosis and treatment plan is essential; research has shown that it is related to the patient's quality of life and adherence to medication.METHODS: For 7 months during 2008 (February to September), 2 study-specific questionnaires were constructed and administered to 304 parents of children diagnosed with cancer at the Children's Cancer Hospital Egypt.RESULTS: Among the 313 eligible parents of children diagnosed with cancer, 304 (97%) answered the first questionnaire and 281 (92%) answered the second questionnaire. We found that nearly three-quarters (72%) of the parents had their child's cancer diagnosis communicated by the physician. Among the 72%, the rate of the children present with the parent or parents during the disease disclosure conversation was 39% (n = 85/219). The majority of the children were in the age group 5-18 years (55%).CONCLUSIONS: Our findings indicate that cancer disclosure at the Children's Cancer Hospital is to a certain degree common; yet even when disclosure does take place, it is mainly in the absence of the child. Moreover, the information provided during the conversation may not be fully comprehended by the parent or the child because of the physician's misleading use of terms when disclosing the disease. Therefore, better practice should be developed for disease disclosure, and proper communication should be established between the patients and the provider; patient autonomy should also have an influence in the clinical practice.
Ämnesord
- MEDICIN OCH HÄLSOVETENSKAP -- Annan medicin och hälsovetenskap -- Övrig annan medicin och hälsovetenskap (hsv//swe)
- MEDICAL AND HEALTH SCIENCES -- Other Medical and Health Sciences -- Other Medical and Health Sciences not elsewhere specified (hsv//eng)
- MEDICIN OCH HÄLSOVETENSKAP -- Annan medicin och hälsovetenskap (hsv//swe)
- MEDICAL AND HEALTH SCIENCES -- Other Medical and Health Sciences (hsv//eng)
Nyckelord
- Cancer
- Communication in health care
- Disease disclosure
- Oncology
- Pediatric oncology
- Psychosocial oncology
- cancer; communication in health care; disease disclosure; oncology; pediatric oncology; psychosocial oncology
Publikations- och innehållstyp
- ref (ämneskategori)
- art (ämneskategori)
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