Congenital cataract in newborns: A qualitative study on parents' experiences of the surgery and subsequent care

↓ Direkt till sidans innehåll
↓ Direkt till sidans sekundära innehåll (sidomenyn)

Search: id:"swepub:oai:DiVA.org:shh-3658" > Congenital cataract...

1 of 1
Previous record
Next record
To hitlist

Details
MARC

De Lima, SaraKarolinska Institutet (author)

Congenital cataract in newborns : A qualitative study on parents' experiences of the surgery and subsequent care

Article/chapterEnglish2020

Publisher, publication year, extent ...

2020-03-19
Wiley,2020
electronicrdacarrier

Numbers

LIBRIS-ID:oai:DiVA.org:shh-3658
https://urn.kb.se/resolve?urn=urn:nbn:se:shh:diva-3658URI
https://doi.org/10.1111/aos.14407DOI
http://kipublications.ki.se/Default.aspx?queryparsed=id:143236973URI

Supplementary language notes

Language:English
Summary in:English

Part of subdatabase

SwePubSwePub

Classification

Subject category:ref swepub-contenttype
Subject category:art swepub-publicationtype

Notes

PURPOSE: Having a child with congenital cataract that requires surgery, contact lens treatment, and frequent medication is a life-altering experience. The aim of this study was to provide more in-depth knowledge of parents' experiences of diagnosis, surgery, and subsequent care, in order to find the areas for improvement.METHODS: Data were collected via semi-structured interviews with parents recruited from St. Erik Eye Hospital, Sweden. The children were operated for congenital cataract before 3 months of age and were aged 12-24 months at the time of the interviews. The interviews were analysed using qualitative content analysis with an inductive approach.RESULTS: Three themes emerged from the data: living in a turbulent time before the diagnosis, coping during the time of initial treatment, and managing the responsibility of their child's visual development. All parents expressed confidence in the operating unit. However, there was a clear need for reliable information on the condition, the surgery, and likely the long-term outcome in the time between receiving the preliminary diagnosis at the maternity ward and getting it confirmed by a paediatric ophthalmologist.CONCLUSION: Much of the parents' concern in this turbulent time is linked to poor information before the visit to the eye hospital. We, therefore, recommend earlier contact with the eye hospital, preferably at the time of writing the referral. Moreover, the possibility of providing up-to-date information via alternative information channels such as smartphone apps should be investigated.

Subject headings and genre

MEDICIN OCH HÄLSOVETENSKAP Hälsovetenskap Omvårdnad hsv//swe
MEDICAL AND HEALTH SCIENCES Health Sciences Nursing hsv//eng
Congenital cataract
Paediatric cataract
Paediatric contact lenses
Parents
Qualitative content analysis
Quality of life

Added entries (persons, corporate bodies, meetings, titles ...)

Kugelberg, MariaKarolinska Institutet (author)
Jirwe, MariaKarolinska Institutet,Sophiahemmet Högskola(Swepub:shh)maria.jirwe (author)
Sophiahemmet HögskolaKarolinska Institutet (creator_code:org_t)

Related titles

In:Acta Ophthalmologica: Wiley98:6, s. 585-5911755-375X1755-3768

Internet link

Find in a library

Acta Ophthalmologica (Search for host publication in LIBRIS)

To the university's database

1 of 1
Previous record
Next record
To hitlist

Find more in SwePub

By the author/editor: De Lima, Sara; Kugelberg, Maria; Jirwe, Maria

About the subject

MEDICAL AND HEALTH SCIENCES: MEDICAL AND HEAL ...; and Health Sciences; and Nursing

Articles in the publication: Acta Ophthalmolo ...

By the university: Sophiahemmet University College; Karolinska Institutet

Search outside SwePub

Extend your search to:: Google; Google Book Search; Google Scholar

Kungliga biblioteket hanterar dina personuppgifter i enlighet med EU:s dataskyddsförordning (2018), GDPR. Läs mer om hur det funkar här.
Så här hanterar KB dina uppgifter vid användning av denna tjänst.

LIBRIS.kb.se