Children Undergoing Radiotherapy: Swedish Parents' Experiences and Suggestions for Improvement

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MARC

Ångström-Brännström, CharlotteUmeå universitet,Institutionen för omvårdnad,Department of Nursing, Umeå University, Umeå, Sweden (author)

Children Undergoing Radiotherapy : Swedish Parents' Experiences and Suggestions for Improvement

Article/chapterEnglish2015

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2015-10-28
Public library science,2015
electronicrdacarrier

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LIBRIS-ID:oai:DiVA.org:umu-112008
https://urn.kb.se/resolve?urn=urn:nbn:se:umu:diva-112008URI
https://doi.org/10.1371/journal.pone.0141086DOI
https://urn.kb.se/resolve?urn=urn:nbn:se:uu:diva-267761URI

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Language:English
Summary in:English

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SwePubSwePub

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Subject category:ref swepub-contenttype
Subject category:art swepub-publicationtype

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De två första författarna delar förstaförfattarskapet.
Approximately 300 children, from 0 to 18 years old, are diagnosed with cancer in Sweden every year. Of these children, 80-90 of them undergo radiotherapy treatment for their cancer. Although radiotherapy is an encounter with advanced technology, few studies have investigated the child's and the parent's view of the procedure. As part of an ongoing multi-center study aimed to improve patient preparation and the care environment in pediatric radiotherapy, this article reports the findings from interviews with parents at baseline. The aim of the present study was twofold: to describe parents' experience when their child undergoes radiotherapy treatment, and to report parents' suggestions for improvements during radiotherapy for their children. Sixteen mothers and sixteen fathers of children between 2-16 years old with various cancer diagnoses were interviewed. Data were analyzed using content analysis. The findings showed that cancer and treatment turns people's lives upside down, affecting the entire family. Further, the parents experience the child's suffering and must cope with intense feelings. Radiotherapy treatment includes preparation by skilled and empathetic staff. The parents gradually find that they can deal with the process; and lastly, parents have suggestions for improvements during the radiotherapy treatment. An overarching theme emerged: that despair gradually turns to a sense of security, with a sustained focus on and close interaction with the child. In conclusion, an extreme burden was experienced around the start of radiotherapy, though parents gradually coped with the process.

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Engvall, Gunn,1955-Uppsala universitet,Institutionen för kvinnors och barns hälsa,Barnonkologisk forskning/Ljungman(Swepub:uu)gueng932 (author)
Mullaney, TaraUmeå universitet,Designhögskolan vid Umeå universitet,Umeå Institute of Design, Umeå University, Umeå, Sweden(Swepub:umu)tamu0007 (author)
Nilsson, KristinaSection of Oncology, Department of Oncology, Radiology and Clinical Immunology, Uppsala University Hospital, Uppsala, Sweden (author)
Wickart-Johansson, GunDepartment of Oncology, Radiumhemmet, Karolinska University Hospital, Stockholm, Sweden (author)
Svärd, Anna-MajaUmeå universitet,Institutionen för strålningsvetenskaper,Department of Radiation Sciences, Umeå University, Umeå, Sweden(Swepub:umu)anasvd98 (author)
Nyholm, TufveUmeå universitet,Institutionen för strålningsvetenskaper,Department of Radiation Sciences, Umeå University, Umeå, Sweden(Swepub:umu)tuny0001 (author)
Lindh, JackUmeå universitet,Institutionen för strålningsvetenskaper,Department of Radiation Sciences, Umeå University, Umeå, Sweden(Swepub:umu)jali0001 (author)
Lindh, VivecaUmeå universitet,Institutionen för omvårdnad,Department of Nursing, Umeå University, Umeå, Sweden(Swepub:umu)vialih96 (author)
Umeå universitetInstitutionen för omvårdnad (creator_code:org_t)

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In:PLOS ONE: Public library science10:101932-6203

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MEDICAL AND HEALTH SCIENCES: MEDICAL AND HEAL ...; and Clinical Medicin ...; and Cancer and Oncol ...

MEDICAL AND HEALTH SCIENCES: MEDICAL AND HEAL ...; and Clinical Medicin ...; and Pediatrics

MEDICAL AND HEALTH SCIENCES: MEDICAL AND HEAL ...; and Clinical Medicin ...; and Radiology Nuclea ...

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