Opening the doors a crack wider: palliative care research data in the public domain

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Lindqvist, OlavKarolinska Institutet,Umeå universitet,Institutionen för omvårdnad,Karolinska Inst, Dept Learning Informat Management & Eth, Med Management Ctr, Stockholm, Sweden (författare)

Opening the doors a crack wider : palliative care research data in the public domain

Artikel/kapitelEngelska2016

Förlag, utgivningsår, omfång ...

2016-01-18
BMJ,2016
printrdacarrier

Nummerbeteckningar

LIBRIS-ID:oai:DiVA.org:umu-118783
https://urn.kb.se/resolve?urn=urn:nbn:se:umu:diva-118783URI
https://doi.org/10.1136/bmjspcare-2015-000959DOI
https://lup.lub.lu.se/record/8577094URI
http://kipublications.ki.se/Default.aspx?queryparsed=id:137496563URI

Kompletterande språkuppgifter

Språk:engelska
Sammanfattning på:engelska

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SwePubSwePub

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Ämneskategori:ref swepub-contenttype
Ämneskategori:art swepub-publicationtype

Anmärkningar

This report builds further on OPCARE9, an EU 7th framework project aiming to identify knowledge gaps in care provision in the last days of life. This study began with curiosity about new ways of generating research questions to meet future challenges in palliative care (PC) and how to better engage disciplines not generally included in PC research. We here describe an innovative methodological approach to generating data; put data relevant for PC research in the public domain; and raise issues about open access in PC research. We aimed to compile research questions from different disciplines, based on raw data consisting of approximately 1000 descriptions of non-pharmacological caregiving activities (NPCAs), generated through previous research. 53 researchers from different fields were sent the full list of NPCAs and asked to generate research questions from their disciplinary perspective. Responses were received from 32 researchers from 9 countries, generating approximately 170 research topics, questions, reflections and ideas, from a wide variety of perspectives, which are presented here. Through these data, issues related to death and dying are addressed in several ways, in line with a new public health approach. By engaging a broader group of disciplines and facilitating availability of data in the public domain, we hope to stimulate more open dialogue about a wider variety of issues related to death and dying. We also introduce an innovative methodological approach to data generation, which resulted in a response rate at least equivalent to that in our Delphi survey of professionals in OPCARE9.

Ämnesord och genrebeteckningar

MEDICIN OCH HÄLSOVETENSKAP Hälsovetenskap Omvårdnad hsv//swe
MEDICAL AND HEALTH SCIENCES Health Sciences Nursing hsv//eng
palliative care
research data
OPCARE9

Biuppslag (personer, institutioner, konferenser, titlar ...)

Rasmussen, BirgitLund University,Lunds universitet,Äldres hälsa och personcentrerad vård,Forskargrupper vid Lunds universitet,Older people's health and Person-Centred care,Lund University Research Groups(Swepub:lu)med-bhu (författare)
Fürst, Carl JohanLund University,Lunds universitet,Bröstcancer-genetik,Sektion I,Institutionen för kliniska vetenskaper, Lund,Medicinska fakulteten,Breastcancer-genetics,Section I,Department of Clinical Sciences, Lund,Faculty of Medicine(Swepub:lu)med-crf (författare)
Tishelman, CarolKarolinska Institutet (författare)
Umeå universitetInstitutionen för omvårdnad (creator_code:org_t)

Sammanhörande titlar

Ingår i:BMJ Supportive & Palliative Care: BMJ6:1, s. 113-1152045-435X2045-4368

Internetlänk

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BMJ Supportive & Palliative Care (Sök värdpublikationen i LIBRIS)

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Av författaren/redakt...: Lindqvist, Olav; Rasmussen, Birgi ...; Fürst, Carl Joha ...; Tishelman, Carol

Om ämnet

MEDICIN OCH HÄLSOVETENSKAP: MEDICIN OCH HÄLS ...; och Hälsovetenskap; och Omvårdnad

Artiklar i publikationen: BMJ Supportive & ...

Av lärosätet: Umeå universitet; Lunds universitet; Karolinska Institutet

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