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Cohort profile :
Cohort profile : The Swedish National Register of Urinary Bladder Cancer (SNRUBC) and the Bladder Cancer Data Base Sweden (BladderBaSe)
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- Häggström, Christel (författare)
- Uppsala universitet,Uppsala University,Umeå University,Umeå universitet,Enheten för biobanksforskning,Department of Surgical Sciences, Uppsala University, Uppsala, Sweden,Endokrinkirurgi,Umeå University, Department of Biobank Research,Uppsala University, Sweden; Umeå University, Sweden
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- Liedberg, Fredrik (författare)
- Lund University,Lunds universitet,Urologi - blåscancer, Malmö,Forskargrupper vid Lunds universitet,Urology - urothelial cancer, Malmö,Lund University Research Groups,Skåne University Hospital, Department of Urology; Lund University, Department of Translational Medicine,Skåne University Hospital, Sweden; Lund University, Sweden
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- Hagberg, Oskar (författare)
- Regional Cancer Centre South, Lund,Regional Cancer Centre South, Sweden
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- Aljabery, Firas (författare)
- Linköpings universitet,Linköping University,Linköping University, Division of Urology, Department of Clinical and Experimental Medicine,Avdelningen för Kirurgi, Ortopedi och Onkologi,Medicinska fakulteten,Region Östergötland, Urologiska kliniken i Östergötland
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- Ströck, Viveka (författare)
- Sahlgrenska University Hospital, Department of Urology,Sahlgrens University Hospital, Sweden
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- Hosseini, Abolfazl (författare)
- Karolinska University Hospital, Department of Urology,Karolinska University Hospital, Sweden
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- Gårdmark, Truls (författare)
- Karolinska Institutet,Karolinska Institute, Danderyd Hospital, Department of Clinical Sciences,Karolinska Institute, Sweden
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- Sherif, Amir (författare)
- Umeå University,Umeå universitet,Urologi och andrologi,Umeå University, Department of Surgical and Perioperative Sciences, Urology and Andrology,Umeå University, Sweden
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- Malmström, Per-Uno (författare)
- Uppsala universitet,Uppsala University,Urologkirurgi,Uppsala University, Sweden
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- Garmo, Hans (författare)
- King’s College London, Faculty of Life Sciences and Medicine, Division of Cancer Studies; Regional Cancer Centre Uppsala/Örebro,Kings Coll London, England; Regional Cancer Centre Uppsala Örebro, Sweden
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- Jahnson, Staffan (författare)
- Linköpings universitet,Linköping University,Linköping University, Division of Urology, Department of Clinical and Experimental Medicine,Avdelningen för Kirurgi, Ortopedi och Onkologi,Medicinska fakulteten,Region Östergötland, Urologiska kliniken i Östergötland
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- Holmberg, Lars (författare)
- Uppsala universitet,Uppsala University,King’s College London, Faculty of Life Sciences and Medicine, Division of Cancer Studies,Endokrinkirurgi,Uppsala University, Sweden; Kings Coll London, England
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(creator_code:org_t)
- 2017-09-27
- 2017
- Engelska.
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Ingår i: BMJ Open. - London : BMJ Publishing Group Ltd. - 2044-6055. ; 7:9
- Relaterad länk:
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https://doi.org/10.1...
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https://umu.diva-por... (primary) (Raw object)
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http://dx.doi.org/10... (free)
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https://liu.diva-por... (primary) (Raw object)
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https://urn.kb.se/re...
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https://doi.org/10.1...
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Abstract
Ämnesord
Stäng
- PURPOSE: To monitor the quality of bladder cancer care, the Swedish National Register of Urinary Bladder Cancer (SNRUBC) was initiated in 1997. During 2015, in order to study trends in incidence, effects of treatment and survival of men and women with bladder cancer, we linked the SNRUBC to other national healthcare and demographic registers and constructed the Bladder Cancer Data Base Sweden (BladderBaSe).PARTICIPANTS: The SNRUBC is a nationwide register with detailed information on 97% of bladder cancer cases in Sweden as compared with the Swedish Cancer Register. Participants in the SNRUBC have registered data on tumour characteristics at diagnosis, and for 98% of these treatment data have been captured. From 2009, the SNRUBC holds data on 88% of eligible participants for follow-up 5 years after diagnosis of non-muscle invasive bladder cancer, and from 2011, data on surgery details and complications for 85% of participants treated with radical cystectomy. The BladderBaSe includes all data in the SNRUBC from 1997 to 2014, and additional covariates and follow-up data from linked national register sources on comorbidity, socioeconomic factors, detailed information on readmissions and treatment side effects, and causes of death.FINDINGS TO DATE: Studies based on data in the SNRUBC have shown inequalities in survival and treatment indication by gender, regions and hospital volume. The BladderBaSe includes 38 658 participants registered in SNRUBC with bladder cancer diagnosed from 1 January 1997 to 31 December 2014. The BladderBaSe initiators are currently in collaboration with researchers from the SNRUBC investigating different aspects of bladder cancer survival.FUTURE PLANS: The SNRUBC and the BladderBaSe project are open for collaborations with national and international research teams. Collaborators can submit proposals for studies and study files can be uploaded to servers for remote access and analysis. For more information, please contact the corresponding author.
Ämnesord
- MEDICIN OCH HÄLSOVETENSKAP -- Klinisk medicin -- Urologi och njurmedicin (hsv//swe)
- MEDICAL AND HEALTH SCIENCES -- Clinical Medicine -- Urology and Nephrology (hsv//eng)
- MEDICIN OCH HÄLSOVETENSKAP -- Klinisk medicin -- Cancer och onkologi (hsv//swe)
- MEDICAL AND HEALTH SCIENCES -- Clinical Medicine -- Cancer and Oncology (hsv//eng)
Nyckelord
- Bladder cancer
- quality register
- radical cystectomy
- register linkage
Publikations- och innehållstyp
- ref (ämneskategori)
- art (ämneskategori)
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Häggström, Chris ...
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Liedberg, Fredri ...
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Hagberg, Oskar
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Aljabery, Firas
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Ströck, Viveka
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Hosseini, Abolfa ...
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Gårdmark, Truls
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Sherif, Amir
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Malmström, Per-U ...
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Garmo, Hans
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Jahnson, Staffan
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Holmberg, Lars
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- MEDICIN OCH HÄLSOVETENSKAP
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MEDICIN OCH HÄLS ...
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och Klinisk medicin
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och Urologi och njur ...
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MEDICIN OCH HÄLS ...
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och Klinisk medicin
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och Cancer och onkol ...
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BMJ Open
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Umeå universitet
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Lunds universitet
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Karolinska Institutet
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Uppsala universitet
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Linköpings universitet