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- Eriksson, M.Karolinska Institutet (författare)
Health-related quality of life and orthosis use in a Swedish population with arthrogryposis
- Artikel/kapitelEngelska2018
Förlag, utgivningsår, omfång ...
- Ovid Technologies (Wolters Kluwer Health),2018
Nummerbeteckningar
- LIBRIS-ID:oai:gup.ub.gu.se/269381
- https://gup.ub.gu.se/publication/269381URI
- https://doi.org/10.1177/0309364618774059DOI
- http://kipublications.ki.se/Default.aspx?queryparsed=id:138805289URI
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- Språk:engelska
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- Background: Joint contractures are the main characteristics for children with arthrogryposis multiplex congenita. Orthoses are often used to enable or facilitate walking. Objectives: To describe health-related quality of life in children with arthrogryposis multiplex congenita and satisfaction with orthoses in those using orthoses. Methods: A total of 33 children with arthrogryposis multiplex congenita participated in the study. Questionnaires were used which measured health-related quality of life (Child Health Questionnaire-Parent Form and EQ-5D youth), mobility and self-care (Paediatric Evaluation of Disability Inventory) and satisfaction with orthoses (Quebec User Evaluation of Satisfaction with Assistive Technology 2.0). Children were divided into groups based on the use of orthoses: Ort-D were dependent on orthoses for walking, Ort-ND used orthoses but were not dependent on them for walking and Non-Ort did not use orthoses. Results: Children with arthrogryposis multiplex congenita had significantly lower Child Health Questionnaire scores in 9 of 12 subscales compared to healthy controls. The children's reported perceived health with EQ-5D youth did not show any difference between children using orthoses or children using only shoes. Paediatric Evaluation of Disability Inventory showed less mobility in Ort-D than in Non-Ort. In total, both orthosis groups were quite satisfied' with their orthoses. Conclusion: Child Health Questionnaire-physical functioning was lowest in children who were dependent on orthoses (Ort-D) for walking. Both Ort-D and Ort-ND were similar satisfied with their orthoses. Clinical relevance This study contributes to knowledge about health-related quality of life in a group of ambulatory children with arthrogryposis multiplex congenita. For children using orthoses, it is relevant to capture their opinion about their orthoses but a questionnaire specifically for children should be developed.
Ämnesord och genrebeteckningar
- MEDICIN OCH HÄLSOVETENSKAP Klinisk medicin Ortopedi hsv//swe
- MEDICAL AND HEALTH SCIENCES Clinical Medicine Orthopaedics hsv//eng
- Arthrogryposis multiplex congenita
- bracing
- lower limb orthotics
- orthotics
- satisfaction
- walking
- multiple congenital contractures
- diagnostic-approach
- version
- validity
- children
- classification
- questionnaire
- reliability
- amyoplasia
- etiology
- Orthopedics
- Rehabilitation
Biuppslag (personer, institutioner, konferenser, titlar ...)
- Jylli, L. (författare)
- Villard, L. (författare)
- Kroksmark, Anna-KarinGothenburg University,Göteborgs universitet,Institutionen för neurovetenskap och fysiologi,Institute of Neuroscience and Physiology(Swepub:gu)xkrann (författare)
- Bartonek, A.Karolinska Institutet (författare)
- Karolinska InstitutetInstitutionen för neurovetenskap och fysiologi (creator_code:org_t)
Sammanhörande titlar
- Ingår i:Prosthetics and Orthotics International: Ovid Technologies (Wolters Kluwer Health)42:4, s. 402-4090309-36461746-1553
Internetlänk
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- Prosthetics and Orthotics International (Sök värdpublikationen i LIBRIS)
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