Patient-reported outcomes of adults with congenital heart disease from eight European countries: scrutinising the association with healthcare system performance

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MARC

Van Bulck, LiesbetKU Leuven – University of Leuven, Department of Public Health and Primary Care, Belgium (author)

Patient-reported outcomes of adults with congenital heart disease from eight European countries : scrutinising the association with healthcare system performance

Article/chapterEnglish2019

Publisher, publication year, extent ...

2019-02-26
Sage Publications,2019
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LIBRIS-ID:oai:DiVA.org:umu-162396
https://urn.kb.se/resolve?urn=urn:nbn:se:umu:diva-162396URI
https://doi.org/10.1177/1474515119834484DOI
https://urn.kb.se/resolve?urn=urn:nbn:se:hv:diva-13738URI
https://gup.ub.gu.se/publication/278430URI

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Language:English
Summary in:English

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SwePubSwePub

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Subject category:ref swepub-contenttype
Subject category:art swepub-publicationtype

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Funders: KU Leuven (Leuven, Belgium) , OT/11/033;University of Gothenburg
Background: Inter-country variation in patient-reported outcomes of adults with congenital heart disease has been observed. Country-specific characteristics may play a role. A previous study found an association between healthcare system performance and patient-reported outcomes. However, it remains unknown which specific components of the countries’ healthcare system performance are of importance for patient-reported outcomes.Aims: The aim of this study was to investigate the relationship between components of healthcare system performance and patient-reported outcomes in a large sample of adults with congenital heart disease.Methods: A total of 1591 adults with congenital heart disease (median age 34 years; 51% men; 32% simple, 48% moderate and 20% complex defects) from eight European countries were included in this cross-sectional study. The following patient-reported outcomes were measured: perceived physical and mental health, psychological distress, health behaviours and quality of life. The Euro Health Consumer Index 2015 and the Euro Heart Index 2016 were used as measures of healthcare system performance. General linear mixed models were conducted, adjusting for patient-specific variables and unmeasured country differences.Results: Health risk behaviours were associated with the Euro Health Consumer Index subdomains about patient rights and information, health outcomes and financing and access to pharmaceuticals. Perceived physical health was associated with the Euro Health Consumer Index subdomain about prevention of chronic diseases. Subscales of the Euro Heart Index were not associated with patient-reported outcomes.Conclusion: Several features of healthcare system performance are associated with perceived physical health and health risk behaviour in adults with congenital heart disease. Before recommendations for policy-makers and clinicians can be conducted, future research ought to investigate the impact of the healthcare system performance on outcomes further.

Subject headings and genre

MEDICIN OCH HÄLSOVETENSKAP Hälsovetenskap Omvårdnad hsv//swe
MEDICAL AND HEALTH SCIENCES Health Sciences Nursing hsv//eng
MEDICIN OCH HÄLSOVETENSKAP Hälsovetenskap Folkhälsovetenskap, global hälsa, socialmedicin och epidemiologi hsv//swe
MEDICAL AND HEALTH SCIENCES Health Sciences Public Health, Global Health, Social Medicine and Epidemiology hsv//eng
Healthcare system performance
heart defect
congenital
health services accessibility
patient reported outcome measures
Vårdvetenskap

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Luyckx, KoenKU Leuven – University of Leuven, School Psychology and Development in Context, Belgium; UNIBS, University of the Free State, South Africa (author)
Goossens, EvaKU Leuven – University of Leuven, Department of Public Health and Primary Care,Belgium; Research Foundation Flanders (FWO), Belgium; Division of Congenital and Structural Cardiology, University Hospitals Leuven, Belgium (author)
Apers, SilkeKU Leuven – University of Leuven, Department of Public Health and Primary Care, Belgium (author)
Kovacs, Adrienne H.University of Toronto, Peter Munk Cardiac Centre, Canada; Oregon Health & Science University, Knight Cardiovascular Institute, USA (author)
Thomet, CorinaCenter for Congenital Heart Disease, Bern University Hospital, Switzerland (author)
Budts, WernerDivision of Congenital and Structural Cardiology, University Hospitals Leuven, Belgium ; KU Leuven – University of Leuven, Department of Cardiovascular Sciences,Belgium (author)
Sluman, Maayke A.Department of Cardiology, Academic Medical Center, The Netherlands; Department of Cardiology, Jeroen Bosch Hospital, The Netherlands; Coronel Institute for Occupational Health, Academic Medical Centre, The Netherlands (author)
Eriksen, KatrineDepartment of Cardiology, Oslo University Hospital – Rikshospitalet, Norway (author)
Dellborg, Mikael,1954Gothenburg University,Göteborgs universitet,Institutionen för medicin,Centrum för personcentrerad vård vid Göteborgs universitet (GPCC),Institute of Medicine,University of Gothenburg Centre for person-centred care (GPCC)(Swepub:gu)xdelmi (author)
Berghammer, Malin,1970-Gothenburg University,Göteborgs universitet,Högskolan Väst,Avdelningen för omvårdnad - avancerad nivå,University of Gothenburg, Centre for Person-Centred Care (GPCC), Sweden,Centrum för personcentrerad vård vid Göteborgs universitet (GPCC),University of Gothenburg Centre for person-centred care (GPCC)(Swepub:gu)xbmalq (author)
Johansson, BengtUmeå universitet,Avdelningen för medicin,Umeå University, Department of Public Health and Clinical Medicine, Sweden(Swepub:umu)bejo0003 (author)
Caruana, MaryanneDepartment of Cardiology, Mater Dei Hospital, Malta (author)
Soufi, AlexandraDepartment of Congenital Heart Disease, Louis Pradel Hospital, France (author)
Callus, EdwardClinical Psychology Service, IRCCS Policlinico San Donato, Italy; Università degli Studi di Milano, Department of Biomedical Sciences for Health, Italy (author)
Moons, Philip,1968Gothenburg University,Göteborgs universitet,Institutionen för vårdvetenskap och hälsa,Institute of Health and Care Sciences(Swepub:gu)xmooph (author)
Alday, Luis (author)
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Ibrahim, Reda (author)
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Oechslin, Erwin (author)
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Grech, Victor (author)
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Mifsud, Anabel (author)
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Balbi, Matthew Mercieca (author)
Critien, Rachel Vella (author)
Farrugia, James (author)
Gatt, Yanika (author)
Muscat, Darlene (author)
Estensen, Mette-Elise (author)
Mattsson, Eva (author)
Strandberg, Anita (author)
Karlstrom-Hallberg, Pia (author)
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Waskowsky, Marc (author)
Veldtman, Gruschen (author)
Faust, Michelle (author)
Lozier, Colin (author)
Reed, Christy (author)
Hilfer, Jamie (author)
Daniels, Curt (author)
Jackson, Jamie (author)
Kutty, Shelby (author)
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Warta, Sara (author)
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Hindes, Morgan (author)
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MacMillen, Kirstie (author)
KU Leuven – University of Leuven, Department of Public Health and Primary Care, BelgiumKU Leuven – University of Leuven, School Psychology and Development in Context, Belgium; UNIBS, University of the Free State, South Africa (creator_code:org_t)

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In:European Journal of Cardiovascular Nursing: Sage Publications18:6, s. 465-4731474-51511873-1953

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