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  • Bessa, AgustinaKing’s College London, London, United Kingdom,Kings Coll London, London, England. (author)

Designing a Pragmatic Intervention to Help Improve the Bladder Cancer Patient Experience

  • Article/chapterEnglish2021

Publisher, publication year, extent ...

  • 2021-07-16
  • Sage Publications,2021
  • electronicrdacarrier

Numbers

  • LIBRIS-ID:oai:DiVA.org:umu-186417
  • https://urn.kb.se/resolve?urn=urn:nbn:se:umu:diva-186417URI
  • https://doi.org/10.1177/00469580211030217DOI
  • https://urn.kb.se/resolve?urn=urn:nbn:se:uu:diva-455996URI

Supplementary language notes

  • Language:English
  • Summary in:English

Part of subdatabase

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  • Subject category:ref swepub-contenttype
  • Subject category:art swepub-publicationtype

Notes

  • Bladder cancer (BC) is the 10th most common malignancy worldwide and the patient experience is found to be worse than that for patients diagnosed with other cancer types. We aimed to develop a wellbeing intervention to help improve the bladder cancer patient experience by ameliorating their health-related Quality of Life (HRQoL). We followed the 3 phases of the modified Medical Research Council (MRC) Framework for development of complex interventions. Following a systematic review of the literature on mental, sexual, and physical wellbeing, we conducted discussion groups with patients and healthcare professionals on these 3 themes. A consultation phase was then conducted with all relevant stakeholders to co-design a wellbeing intervention as part of a feasibility study. A pragmatic wellbeing feasibility trial was designed based on the hypothesis that a wellbeing program will increase patient awareness and attendance to services available to them and will better support their needs to improve HRQoL. The primary feasibility endpoints are patient attendance to the services offered and changes in HRQoL. The principle of patient centered care has strengthened the commitment to provide a holistic approach to support BC patients. In this study, we developed a wellbeing intervention in collaboration with patients and healthcare professionals to meet an unmet need in terms of the BC patient experience.

Subject headings and genre

Added entries (persons, corporate bodies, meetings, titles ...)

  • Bosco, CeciliaKing’s College London, London, United Kingdom,Kings Coll London, London, England. (author)
  • Cahill, FidelmaKing’s College London, London, United Kingdom,Kings Coll London, London, England. (author)
  • Russell, BethKing’s College London, London, United Kingdom,Kings Coll London, London, England. (author)
  • Fox, LouisKing’s College London, London, United Kingdom,Kings Coll London, London, England. (author)
  • Moss, CharlotteKing’s College London, London, United Kingdom,Kings Coll London, London, England. (author)
  • Wylie, HarrietKing’s College London, London, United Kingdom,Kings Coll London, London, England. (author)
  • Haire, AnnaKing’s College London, London, United Kingdom,Kings Coll London, London, England. (author)
  • Green, SaranKing’s College London, London, United Kingdom,Kings Coll London, London, England. (author)
  • Enting, DeborahKing’s College London, London, United Kingdom; Guy’s and St Thomas’ NHS Foundation Trust, London, United Kingdom,Kings Coll London, London, England.;Guys & St Thomas NHS Fdn Trust, London, England. (author)
  • Khan, ShamimGuy’s and St Thomas’ NHS Foundation Trust, London, United Kingdom,Guys & St Thomas NHS Fdn Trust, London, England. (author)
  • Nair, RajeshGuy’s and St Thomas’ NHS Foundation Trust, London, United Kingdom,Guys & St Thomas NHS Fdn Trust, London, England. (author)
  • Thurairaja, RameshGuy’s and St Thomas’ NHS Foundation Trust, London, United Kingdom,Guys & St Thomas NHS Fdn Trust, London, England. (author)
  • Chatterton, KathrynGuy’s and St Thomas’ NHS Foundation Trust, London, United Kingdom,Guys & St Thomas NHS Fdn Trust, London, England. (author)
  • Amery, SuzanneGuy’s and St Thomas’ NHS Foundation Trust, London, United Kingdom,Guys & St Thomas NHS Fdn Trust, London, England. (author)
  • Peat, NicolaGuy’s and St Thomas’ NHS Foundation Trust, London, United Kingdom,Guys & St Thomas NHS Fdn Trust, London, England. (author)
  • Smith, SueGuy’s and St Thomas’ NHS Foundation Trust, London, United Kingdom,Guys & St Thomas NHS Fdn Trust, London, England. (author)
  • Spear, StuartGuy’s and St Thomas’ NHS Foundation Trust, London, United Kingdom,Guys & St Thomas NHS Fdn Trust, London, England. (author)
  • Bryan, Richard TUniversity of Birmingham, Birmingham, United Kingdom,Univ Birmingham, Birmingham, W Midlands, England. (author)
  • Frodsham, LeilaGuy’s and St Thomas’ NHS Foundation Trust, London, United Kingdom,Guys & St Thomas NHS Fdn Trust, London, England. (author)
  • Burke, DannyGuy’s and St Thomas’ NHS Foundation Trust, London, United Kingdom,Guys & St Thomas NHS Fdn Trust, London, England. (author)
  • Rigby, JeannieAction Bladder Cancer, Gloucestershire, United Kingdom,Act Bladder Canc, Tetbury, Glos, England. (author)
  • Makaroff, LydiaAction Bladder Cancer, Gloucestershire, United Kingdom,Act Bladder Canc, Tetbury, Glos, England. (author)
  • Kelly, PhilAction Bladder Cancer, Gloucestershire, United Kingdom,Act Bladder Canc, Tetbury, Glos, England. (author)
  • Costin, MelanieFight Bladder Cancer, Oxfordshire, United Kingdom,Fight Bladder Canc, Chinnor, Oxon, England. (author)
  • Häggström, ChristelUppsala universitet,Umeå universitet,Uppsala University, Uppsala, Sweden,Endokrinkirurgi,Umeå Univ, Umeå, Sweden.(Swepub:uu)chrha650 (author)
  • Van Hemelrijck, MiekeKing’s College London, London, United Kingdom,Kings Coll London, London, England. (author)
  • King’s College London, London, United KingdomKings Coll London, London, England. (creator_code:org_t)

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