Heart Failure and Patient-Reported Outcomes in Adults With Congenital Heart Disease from 15 Countries

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Heart Failure and Patient-Reported Outcomes in Adults With Congenital Heart Disease from 15 Countries

Lu, Chun-Wei (författare): Department of Pediatrics, , National Taiwan University Hospital, , Taipei (TWN)

Wang, Jou-Kou (författare): Department of Pediatrics, , National Taiwan University Hospital, , Taipei (TWN)Department of Nursing, , National Taiwan University Hospital, , Taipe

Yang, Hsiao-Ling (författare): Department of Nursing, , National Taiwan University Hospital, , Taipei (TWN)

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Kovacs, Adrienne H. (författare): Toronto Adult Congenital Heart Disease Program, Peter Munk Cardiac Center, University Health Network, University of Toronto, , Toronto, (CAN)

Luyckx, Koen (författare): KU Leuven School Psychology and Development in Context, , KU Leuven, , Leuven (BEL)

Ruperti-Repilado, Francisco Javier (författare): Center for Congenital Heart Disease , Department of Cardiology, , Inselspital ‐ Bern University Hospital, University of Bern, , Bern (CHE)

Van De Bruaene, Alexander (författare): KU Leuven Department of Cardiovascular Sciences, , KU Leuven, , Leuven (BEL)

Enomoto, Junko (författare): Department of Education, , Toyo University, , Tokyo, (JPN)

Sluman, Maayke A. (författare): Coronel Institute of Occupational Health, Amsterdam UMC, University of Amsterdam, , Amsterdam, (NLD)

Jackson, Jamie L. (författare): Center for Biobehavioral Health, , Nationwide Children’s Hospital, , Columbus, (USA)

Khairy, Paul (författare): Adult Congenital Heart Center, Montreal Heart Institute, Université de Montréal, , Montreal, (CAN)

Cook, Stephen C. (författare): Indiana University Health Adult Congenital Heart Disease Program, , Indianapolis (USA)

Chidambarathanu, Shanthi (författare): Pediatric Cardiology, , Frontier Lifeline Hospital (Dr. K. M. Cherian Heart Foundation), , Chennai (IND)

Alday, Luis (författare): Division of Cardiology, , Hospital de Niños, , Córdoba (ARG)

Oechslin, Erwin (författare): Toronto Adult Congenital Heart Disease Program, Peter Munk Cardiac Center, University Health Network, University of Toronto (CAN)

Eriksen, Katrine (författare): Adult Congenital Heart Disease Center, , Oslo University Hospital ‐ Rikshospitalet, , Oslo, (NOR)

Dellborg, Mikael (författare): Institute of Medicine, , The Sahlgrenska Academy at University of Gothenburg, , Gothenburg (SWE)

Berghammer, Malin, 1970- (författare): Högskolan Väst,Avdelningen för omvårdnad - avancerad nivå,Department of Paediatrics, , Queen Silvia Children’s Hospital, Sahlgrenska University Hospital, , Gothenburg (SWE),LOV

Johansson, Bengt (författare): Umeå universitet,Avdelningen för medicin,Department of Public Health and Clinical Medicine, , Umeå University, , Umeå (SWE)

Mackie, Andrew S. (författare): Division of Cardiology, , Stollery Children’s Hospital, University of Alberta, , Edmonton (CAN)

Menahem, Samuel (författare): Monash Heart, Monash Medical Centre, Monash University, , Melbourne (AUS)

Caruana, Maryanne (författare): Department of Cardiology, , Mater Dei Hospital, , Birkirkara Bypass (MLT)

Veldtman, Gruschen (författare): Adult Congenital Heart Disease Center, Cincinnati Children's Hospital Medical Center, , Cincinnati, , OH (USA)

Soufi, Alexandra (författare): Department of Cardiac Rehabilitation, , Médipôle Lyon‐Villeurbanne, , Lyon (FRA)

Fernandes, Susan M. (författare): Adult Congenital Heart Program at Stanford, Lucile Packard Children’s Hospital and Stanford Health Care, , Palo Alto, , CA (USA)

White, Kamila (författare): Adult Congenital Heart Disease Center, Washington University and Barnes Jewish Heart & Vascular Center, University of Missouri, , Saint Louis, , MO (USA)

Callus, Edward (författare): Department of Biomedical Sciences for Health, , University of Milan, , Milan (ITA)

Kutty, Shelby (författare): Adult Congenital Heart Disease Center University of Nebraska, Medical Center/Children’s Hospital and Medical Center, , Omaha, , NE Taussig Heart Center, Johns Hopkins School of Medicine, , Baltimore, , MD (USA)

Apers, Silke (författare): KU Leuven Department of Public Health and Primary Care, , KU Leuven, , Leuven (BEL)

Moons, Philip (författare): KU Leuven Department of Public Health and Primary Care, Kapucijnenvoer 35, Box 7001, B‐3000 Leuven, (BEL)

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American Heart Association, 2022
2022
Engelska.
Ingår i: Journal of the American Heart Association. - : American Heart Association. - 2047-9980 .- 2047-9980. ; 11:9

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Tidskriftsartikel (refereegranskat)

Abstract Ämnesord

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Background: Heart failure (HF) is the leading cause of mortality and associated with significant morbidity in adults with congenital heart disease. We sought to assess the association between HF and patient-report outcomes in adults with congenital heart disease.Methods and Results: As part of the APPROACH-IS (Assessment of Patterns of Patient-Reported Outcomes in Adults with Congenital Heart disease-International Study), we collected data on HF status and patient-reported outcomes in 3959 patients from 15 countries across 5 continents. Patient-report outcomes were: perceived health status (12-item Short Form Health Survey), quality of life (Linear Analogue Scale and Satisfaction with Life Scale), sense of coherence-13, psychological distress (Hospital Anxiety and Depression Scale), and illness perception (Brief Illness Perception Questionnaire). In this sample, 137 (3.5%) had HF at the time of investigation, 298 (7.5%) had a history of HF, and 3524 (89.0%) had no current or past episode of HF. Patients with current or past HF were older and had a higher prevalence of complex congenital heart disease, arrhythmias, implantable cardioverter-defibrillators, other clinical comorbidities, and mood disorders than those who never had HF. Patients with HF had worse physical functioning, mental functioning, quality of life, satisfaction with life, sense of coherence, depressive symptoms, and illness perception scores. Magnitudes of differences were large for physical functioning and illness perception and moderate for mental functioning, quality of life, and depressive symptoms.Conclusions: HF in adults with congenital heart disease is associated with poorer patient-reported outcomes, with large effect sizes for physical functioning and illness perception.

Ämnesord

MEDICIN OCH HÄLSOVETENSKAP -- Hälsovetenskap -- Omvårdnad (hsv//swe)
MEDICAL AND HEALTH SCIENCES -- Health Sciences -- Nursing (hsv//eng)
MEDICIN OCH HÄLSOVETENSKAP -- Klinisk medicin -- Kardiologi (hsv//swe)
MEDICAL AND HEALTH SCIENCES -- Clinical Medicine -- Cardiac and Cardiovascular Systems (hsv//eng)

Nyckelord

adult congenital heart disease
heart failure
patient‐reported outcomes
quality of life
kardiologi
Cardiology
Vårdvetenskap

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MEDICIN OCH HÄLSOVETENSKAP: MEDICIN OCH HÄLS ...; och Hälsovetenskap; och Omvårdnad

MEDICIN OCH HÄLSOVETENSKAP: MEDICIN OCH HÄLS ...; och Klinisk medicin; och Kardiologi

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Av lärosätet: Umeå universitet; Högskolan Väst

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