Parental experiences of information within pediatric oncology

Parents of children with cancer use information to create knowledge about their child's disease. Information can help parents reduce chaos and create a feeling of control, but there are often obstacles to its acquisition, which has been described as similar to learning a new language. The purpose of this study was to describe parents' experiences of acquiring and using information to create knowledge about their child's cancer during the course of the illness. The authors used qualitative content analysis on data from focus groups and individual interviews with 14 parents of children with cancer. Two themes were constructed: (a) feeling acknowledged as a person of significance included feeling safe and secure in spite of uncertainty, having one's hopes supported, and getting relief from other families' experiences; (b) feeling like an unwelcome guest included feeling abandoned at important milestones, feeling forced to nag for information, and feeling burdened by the obligation to inform others. Parents may need extra attention at important milestones such as treatment cessation, with information meetings grounded in the parents' own needs.

Jansson, LilianUmeå universitet,Institutionen för omvårdnad(Swepub:umu)lija0001 (författare)
Hällgren Graneheim, UllaUmeå universitet,Institutionen för omvårdnad(Swepub:umu)ulha0002 (författare)
Umeå universitetInstitutionen för omvårdnad (creator_code:org_t)

Ingår i:Journal of Pediatric Oncology Nursing: SAGE Publications28:4, s. 244-2511043-45421532-8457

Av författaren/redakt...: Ringnér, Anders, ...; Jansson, Lilian; Hällgren Granehe ...

Om ämnet

MEDICIN OCH HÄLSOVETENSKAP: MEDICIN OCH HÄLS ...; och Hälsovetenskap; och Omvårdnad

Kungliga biblioteket hanterar dina personuppgifter i enlighet med EU:s dataskyddsförordning (2018), GDPR. Läs mer om hur det funkar här.
Så här hanterar KB dina uppgifter vid användning av denna tjänst.