Being in tune with oneself, children, and parents : meanings of being a supporter to families with children who disabilities as narrated by parent-selected professionals.

• The importance of giving professional support to parents who have a child with a disability is well documented in the research literature. Research from parents' perspective shows however that how support is delivered for an entire family's well-being is crucial. The aim of this study was to illuminate the meanings of being a supporter as narrated by nine parent-selected professionals. The findings show that having a personal and professional philosophy on being and doing is crucial when helping parents care for their child. Being confident that it is always possible to help means to seek unique solutions for each child and family. Being a trustworthy partner of parents means to trust in parents as invaluable partners as well as to exert efforts to gain the parents' trust, seeing parents as both persons and the child's carer, and being sensitive to parents' vulnerability. Enabling parents to gain competence and confidence in parenthood embraces the knowledge and skills necessary for the competence as their child's carer and respecting parental authority. The findings are interpreted as being in tune with oneself, children, and parents--which in this study implies freedom from being confined by bureaucracy, prestige, and institutional norms but freedom to be authentic and act according to personal philosophies.

Nyckelord

Adaptation; Psychological

Attitude of Health Personnel

Attitude to Health

Child

Clinical Competence/standards

Cooperative Behavior

Developmental Disabilities/prevention & control/*psychology

Health Knowledge; Attitudes; Practice

Helping Behavior

Humans

Narration

Nursing Methodology Research

Parents/*psychology

Pediatric Nursing/organization & administration

Pediatrics/organization & administration

Philosophy; Medical

Philosophy; Nursing

Professional Role

Professional-Family Relations

Questionnaires

Self Efficacy

Social Support

Trust

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